Well now, I've neglected this blog for over 6 months! Anyone just stopping by for the first time, make sure you check out the tab at the top labeled "My Journey". That will give you an overview of my 2 cancers and treatments, and also give you links to take you to the beginning of each cancer diagnosis.
I recently had several tests done and met with my oncologist for my 6 month check up. I've had CT scans of my chest, abdomen, and pelvis, a brain MRI, lots of labs, a mammogram, and .....I think that's it, although I feel like I'm missing something. Bottom line---everything looks good!! And yes, I DO have a brain! ;)
I won't have to have any more CT scans, because I've reached my 5 year anniversary for the colon cancer, which means NO MORE colon cancer! I will still have a chest MRI for the breast cancer, and see my onc. every 6 months.
My brain MRI was because of some unusual headaches I've been having. Still don't know what's causing them, but it's not brain cancer (THANK YOU LORD!!!!!). That is the only test that has really scared me. I REALLY was afraid that they might find a tumor up there. I can handle tumors almost anywhere else--just NOT MY BRAIN.
The other thing I've been having issues with is the neuropathy in my feet. I talked to my primary physician, and she put me on Neurontin (gabepentin). I only stayed on it 9 days because it made me so groggy. I was supposed to double the dose on day 14, but there was no way I was going to do that. My onc. wants me to try acupuncture, which surprised me because he's sort of a skeptic about things, but we've both heard many people say they've had improvement with it. I haven't done it yet...I keep forgetting to call my insurance to see if they cover it. If that doesn't work, Cymbalta might help. My neuropathy isn't too bad, but the burning feeling on the bottoms of my feet has been getting worse. It's never terribly painful, just annoying. It hurts worse when I've been on my feet a lot, or with any extreme temperature. Too hot or too cold--they both cause that burning feeling.
Stomach/digestive issues are still there, but probably always will be due to the type of colon resection surgery I had (Low Anterior Resection). Things are better, but I find the side effects from cancer treatment to be very annoying some days. I get tired of it and it gets me down sometimes. I realized a while ago that I am almost always in some kind of pain/discomfort--no wonder I feel blue sometimes! But don't worry, overall I feel happy and blessed! Because, hey, I'm alive and cancer free, right?? :)
Well, that's my little update for now. March is Colorectal Cancer Awareness month, so if you are over 50, and haven't had your colonoscopy, GO GET IT DONE ASAP. Colorectal cancer can be PREVENTED by getting your screenings done! If you are younger and have any bowel changes, bleeding, etc. INSIST on getting a colonoscopy. More and more young people are getting colon and rectal cancer now. The best way to fight this disease is to catch it early!
Blessings!!
Tina
Showing posts with label ct scan. Show all posts
Showing posts with label ct scan. Show all posts
Friday, March 7, 2014
Monday, August 26, 2013
Past...Present...Future
I recently got an e-mail notification that someone left a comment on my last blog entry...which was in March! I couldn't believe it had been that long...surely I updated in May or June? Nope. So, I'm pretty sure no one will read this, but I thought it was time to do a little update!
Since my last update I've had a DEXA (bone density) scan, MRI, CT scans, labs, and port flushes. All is well! My bones show some "pre" osteoporosis, so I need to take calcium (which I keep forgetting to take!). I'm still eating mostly low-residue, but have the occasional wheat bread, salad, fruits, and veggies. The trick is to spread them out throughout the week, and not overdo it. I mostly avoid carrots, cucumbers, and spaghetti sauce, but might have a small amount now and then.
I see my oncologist in 2 days, but not sure what we will talk about since I already have all the results of the tests I did last week! I'm sure he'll ask about Rich, my grandchildren, and especially my adopted grandson, Charlie. This time I'll have some more family news to share! (More on that later...) I am most interested to find out if I can start going 1 year between scans, and do I really need those labs every 3 months? I am 4.5 years out from the colon cancer dx, and 3.5 years from the breast cancer dx. I know my onc. was worried about me, with all that cancer, but I'm doing well now. And as our insurance covers less and less, we have to pay more and more of the costs of all the tests!
My worst complaint has been fatigue. I planned to work on that this summer, and talk to my primary care physician (PCP) if things didn't improve. I think the fatigue has improved a bit. Last summer, even though I don't work in the summer, I was still tired a lot. Many days, by mid-afternoon, I was just as tired as if I had worked. Not good. Then of course during the school year I felt awful. I worked 4.25 hours, and then came home and could barely function most days. I was VERY frustrated! I do know my job is draining, and does sap a lot of my energy (I don't know how anyone lasts for 6.5 hours, much less the teachers who work WAY beyond that!), but I shouldn't feel that bad! So, this summer, I have been eating a bit better--cutting down on chemicals and processed foods--and exercising more (which I will do when I'm done writing this). I am eating less, and have lost just a few pounds, but at least I've made the scale go down instead of up for the first time since chemo! I'm learning what my body can do with and without (my body does NOT like to be hungry). I started using the 'myfitnesspal' website, which counts calories for you, and helps you figure out how many calories you need each day to lose the amount you want to lose. It's been helpful for portion control. So, overall, I feel better.
I start back to work a week from tomorrow! I REALLY, REALLY hope I feel better this year! I get done with work at 1:30, which should leave me plenty of time to do other stuff. Praying I have the energy I need! As much as I would love to not have to work at all, I do think getting back into a routine is good for me. I make better use of my time when there is routine. And I really do like working with the kids!
I see my oncologist in 2 days, but not sure what we will talk about since I already have all the results of the tests I did last week! I'm sure he'll ask about Rich, my grandchildren, and especially my adopted grandson, Charlie. This time I'll have some more family news to share! (More on that later...) I am most interested to find out if I can start going 1 year between scans, and do I really need those labs every 3 months? I am 4.5 years out from the colon cancer dx, and 3.5 years from the breast cancer dx. I know my onc. was worried about me, with all that cancer, but I'm doing well now. And as our insurance covers less and less, we have to pay more and more of the costs of all the tests!
My worst complaint has been fatigue. I planned to work on that this summer, and talk to my primary care physician (PCP) if things didn't improve. I think the fatigue has improved a bit. Last summer, even though I don't work in the summer, I was still tired a lot. Many days, by mid-afternoon, I was just as tired as if I had worked. Not good. Then of course during the school year I felt awful. I worked 4.25 hours, and then came home and could barely function most days. I was VERY frustrated! I do know my job is draining, and does sap a lot of my energy (I don't know how anyone lasts for 6.5 hours, much less the teachers who work WAY beyond that!), but I shouldn't feel that bad! So, this summer, I have been eating a bit better--cutting down on chemicals and processed foods--and exercising more (which I will do when I'm done writing this). I am eating less, and have lost just a few pounds, but at least I've made the scale go down instead of up for the first time since chemo! I'm learning what my body can do with and without (my body does NOT like to be hungry). I started using the 'myfitnesspal' website, which counts calories for you, and helps you figure out how many calories you need each day to lose the amount you want to lose. It's been helpful for portion control. So, overall, I feel better.
I start back to work a week from tomorrow! I REALLY, REALLY hope I feel better this year! I get done with work at 1:30, which should leave me plenty of time to do other stuff. Praying I have the energy I need! As much as I would love to not have to work at all, I do think getting back into a routine is good for me. I make better use of my time when there is routine. And I really do like working with the kids!
A little family update: Rich is doing well at his new job--he's been there about a year and a half. Pay and benefits are good, and it's just 'normal' work stress, not the stress and low morale of his previous job. SO BLESSED to be out of that place! His drive is too long (26 miles one way), and sometimes we worry about lay-offs, but over all it's good.
Rachel and her husband are doing foster care now, and are in the process of adopting another child! This is a child placed with them soon after they got their license. He's 2 and has down syndrome also. He is active, and smart, and lets you know what he thinks about things! :) They also have a very sweet little baby girl that we would all love to keep in the family, but it looks like the baby's mom will be able to take her to live with her soon. Praying God will do what's best for baby, and if she has to go, I hope we'll still be able to see her once in awhile! Rachel's older 2 boys are doing very well, even with other kids coming and going! Charlie just turned 6 and will be in kindergarten this year! He is our super-hero! Brennan will be 4 soon. He is as smart as ever, and there is no end to the amusing things he says! Love those boys!
Alyssa, hubby, and baby girl are doing GREAT. Selah is 10 months old. She is really picking up things fast--she always amazes us! She'll be walking soon, I think. She is soooo adorable! We get to watch her often, and she is a smiley, happy little girl!
Our youngest, Shonna, is starting her 2nd year at the U, and she is majoring in journalism. She has a lot of talent as a writer. She is a junior now, and has 3 semesters left. She may get a minor also (but I forgot in what! Oops!). She moved out of my sister's house into an apartment closer to school. I don't always see her as often as I would like, but we did get to spend some time shopping and antiquing recently, and I enjoyed that!
Our youngest, Shonna, is starting her 2nd year at the U, and she is majoring in journalism. She has a lot of talent as a writer. She is a junior now, and has 3 semesters left. She may get a minor also (but I forgot in what! Oops!). She moved out of my sister's house into an apartment closer to school. I don't always see her as often as I would like, but we did get to spend some time shopping and antiquing recently, and I enjoyed that!
We all managed to get to Duluth for a few days this summer. Alyssa, hubby, baby, and Shonna were with us at the beginning, then Shonna's boyfriend joined us, then Alyssa and fam had to leave, and Rachel and her 4 kids joined us the last day! So we got to spend time with everyone (except Rachel's husband), just not at the same time! Next year I'm thinking about staying at a resort/lodge/cabin type of place a little farther up, right on Lake Superior. I think it would be better for the kids if we can find a place that has a nice play area and beach. I'm still thinking about getting away with just my hubby for a night or two up north this fall. We'll see~we might be too busy building a deck!
When I stop to think about where I was this time 4 years ago, I am amazed that I am here, cancer-free, and so blessed. 4 years ago I had just finished radiation, was weak and tired, was being treated for C-diff and giving myself shots for a blood clot, and had endured a very painful summer. I was healing and gaining my strength back to do 8 more rounds of FOLFOX. Little did I know the next summer I would be doing another difficult chemo regimen for breast cancer! That is all behind me now. These last scans I didn't even have any "scanxiety", except for that brief moment when I saw my oncologist's phone number on my cell phone. His nurse was calling me to tell me all my tests were good!
I make a point of remembering what I've been through every now and then, because it helps me to be grateful for every moment I am blessed with. It reminds me of the wonderful ways God showed up for me and helped me through those difficult times.
My future? It looks fabulous. Retirement someday with the man I love, doing the things we love and enjoy, being a grandma, and spending time with my children, grandchildren, and foster "grandchildren". Yep, looks pretty good from here!
Love and blessings!
Love and blessings!
Tina
PS Rich and I also went on our first 'real' vacation together in June--we went to Las Vegas! But that is another story for another day... ;)
Sunday, February 24, 2013
Update on Scans and Labs
Hello!
Just wanted to do a quick update about my CT scans and lab tests I had done last Monday. By Monday evening I already had the results! Everything looks good! My hemoglobin is up a little (finally--I've been taking iron pills!). My platelets are at the low end of the range, and have been since surgery. Before that they were much higher. I'm going to ask my oncologist about that when I see him on Tues. I have a list of things in my head that I want to ask him--I really need to write these questions down!
I will have another little surgery on my backside on March 8th. Not going to do any major surgery on the fistula yet. My surgeon can't guarantee the outcome, so we will hold off as long as possible. There is a chance it might close up on it's own, eventually.
I had to miss another day of work due to my 'digestive system'. The barium stuff I have to drink for the CT scan really messes me up, and I spent most of the evening and into the night in the bathroom. I wasn't able to go to work the next day either. I think that's 5 days I've missed this school year related to my cancer treatment/side effects. Then I missed 4 days due to illness recently too--first a stomach bug, then a cold/chest/cough thing. I don't usually get those type of viruses, so it was weird to get them one right after another. I've already used up the 10 days I get per school year! I'm praying I don't miss any more this year!
It's a relief to have my scans done and over with. I was getting a little nervous this time. I couldn't shake the feeling that 'this might be it'. On the way to the hospital to get my tests done, as I was driving, I was praying and praying. And I was asking forgiveness for the fear, because I knew I shouldn't be afraid--I should be trusting in God. Finally, I realized where the fear was coming from and I said out loud "Satan, you can't touch this! I am a child of the Most High King, and covered by the blood of the Lamb! I have no cancer in me, and I will trust in God and not be afraid!". I felt soooo much better after declaring that for the devil to hear. He fled and I was filled with peace! I was able to be joyful the rest of the day, which I think was nice for those around me in the hospital. That can be a very stressful place, and I made sure I smiled at everyone!
Oh-- I have to mention my infusion nurses again. One of my regular nurses is working at a different place (I will miss her and hearing about her lovely children and family!), and the other 'regular' one wasn't there either. The nurse I had, Carol (Carole?), is one I know though, from being there over the last 4 years, and she had a person with her that was in training. At the end, when I was ready to go, Carol started asking me about my grandkids, and how I was doing after treatment. I was only going to tell her a little, to not take up too much of her time, but she kept asking, so I kept talking! That was so special to me, that she took the time to REALLY ask how I was doing. Usually when I don't have one of my 'regular' 2 nurses, I am in and out of there pretty quick. Everyone is very nice and says hi, but I am only there for a port flush or labs. It just made me feel really good, that she remembered things about my family, and really cared about how I was doing. Chemo nurses are truly angels!
Well, I see my oncologist Tuesday, and have my mammogram Thurs., then the following week I have a pre-op, and my minor surgery. Then I think I'll be done for awhile! *Whew*!
More updates later this week. Hope everyone feels blessed this week, and feels the love of Jesus surrounding them! Amen!
Tina
Just wanted to do a quick update about my CT scans and lab tests I had done last Monday. By Monday evening I already had the results! Everything looks good! My hemoglobin is up a little (finally--I've been taking iron pills!). My platelets are at the low end of the range, and have been since surgery. Before that they were much higher. I'm going to ask my oncologist about that when I see him on Tues. I have a list of things in my head that I want to ask him--I really need to write these questions down!
I will have another little surgery on my backside on March 8th. Not going to do any major surgery on the fistula yet. My surgeon can't guarantee the outcome, so we will hold off as long as possible. There is a chance it might close up on it's own, eventually.
I had to miss another day of work due to my 'digestive system'. The barium stuff I have to drink for the CT scan really messes me up, and I spent most of the evening and into the night in the bathroom. I wasn't able to go to work the next day either. I think that's 5 days I've missed this school year related to my cancer treatment/side effects. Then I missed 4 days due to illness recently too--first a stomach bug, then a cold/chest/cough thing. I don't usually get those type of viruses, so it was weird to get them one right after another. I've already used up the 10 days I get per school year! I'm praying I don't miss any more this year!
It's a relief to have my scans done and over with. I was getting a little nervous this time. I couldn't shake the feeling that 'this might be it'. On the way to the hospital to get my tests done, as I was driving, I was praying and praying. And I was asking forgiveness for the fear, because I knew I shouldn't be afraid--I should be trusting in God. Finally, I realized where the fear was coming from and I said out loud "Satan, you can't touch this! I am a child of the Most High King, and covered by the blood of the Lamb! I have no cancer in me, and I will trust in God and not be afraid!". I felt soooo much better after declaring that for the devil to hear. He fled and I was filled with peace! I was able to be joyful the rest of the day, which I think was nice for those around me in the hospital. That can be a very stressful place, and I made sure I smiled at everyone!
Oh-- I have to mention my infusion nurses again. One of my regular nurses is working at a different place (I will miss her and hearing about her lovely children and family!), and the other 'regular' one wasn't there either. The nurse I had, Carol (Carole?), is one I know though, from being there over the last 4 years, and she had a person with her that was in training. At the end, when I was ready to go, Carol started asking me about my grandkids, and how I was doing after treatment. I was only going to tell her a little, to not take up too much of her time, but she kept asking, so I kept talking! That was so special to me, that she took the time to REALLY ask how I was doing. Usually when I don't have one of my 'regular' 2 nurses, I am in and out of there pretty quick. Everyone is very nice and says hi, but I am only there for a port flush or labs. It just made me feel really good, that she remembered things about my family, and really cared about how I was doing. Chemo nurses are truly angels!
Well, I see my oncologist Tuesday, and have my mammogram Thurs., then the following week I have a pre-op, and my minor surgery. Then I think I'll be done for awhile! *Whew*!
More updates later this week. Hope everyone feels blessed this week, and feels the love of Jesus surrounding them! Amen!
Tina
Monday, February 11, 2013
Four Years!
February 6th was the 4 year anniversary of my tumor being found during a colonoscopy. I was having some symptoms that my primary Dr.(pcp) and gastro Dr. both thought were irritable bowel or colitis. Thankfully, before my pcp looked further into my symptoms, she wanted me to have a colonoscopy, and then we'd know more what we were dealing with. We were ALL surprised when the tumor was found. The gastro doc doing the procedure saw it right away (I was given some good drugs, but was fully awake) and said "See that? That shouldn't be there". After the exam the doc came in and told us he was sure it was cancer, although we needed to wait for the pathology report for the 'official' word. I am so grateful Rich was with me! We just held each other when the Dr. left. Then he came back, and told me he had set up a CT scan for me that afternoon. Things moved really fast! I remember the nurse giving me a hug when she walked us out and telling me I was going to be ok. That was so sweet, and yet scared me because I didn't really realize the gravity of the situation yet. Thanks to my 'happy drugs', I wasn't too upset yet--I told Rich in the truck after to stop looking so gloomy! Poor guy, he just found out his wife had cancer! I'm sure he was overwhelmed! (I don't think I'll ever know how hard all of this was on him, as he did a good job of keeping it from me. He was an EXCELLENT caregiver, and I'll always be grateful for that!)
Like I said, things moved quickly. My CT scan didn't show any other areas of cancer (except a possible lymph node). My gastro doc also contacted a surgeon, and an appt. to see him was scheduled, then my pre-op, then the surgery on Feb. 20th, just 2 weeks later. During surgery, 18" of my colon was removed and I was able to be reconnected. I came close to needing a colostomy, but am thankful I didn't! It was a tough surgery, and I was in the hospital 8 days. 2 of 20 lymph nodes had cancer, and I was stage 3b.
My wonderful oncologist told me this type of cancer could be CURED. Because of my young age (44), I was given everything they could possibly throw at me! None of my chemos were reduced, even with bad side effects. Once he even let me get chemo when my counts were really low--the nurse had to go ask him if the orders were correct! But he knew my counts always bounced back quickly when I had a neupogen shot, so he wasn't worried! I think it made a difference that my onc knew me well enough to know that I really wanted to complete all the treatments. If I had said it was too hard and I wanted to back off a bit he probably would have, as I think he would have respected my wishes. Same thing with radiation. That was even more difficult, and I was told I didn't need to finish, but it was important to me to finish those last 3, and I did! Although, I have to say, I never realized all the side effects I would have to live with!
Sometimes I have a hard time remembering how awful it all was, and other times I remember too well! I get frustrated dealing with painful side effects, but mostly, I am just so glad to be living life, cancer free. I am enjoying my children and grandchildren. My girls are such a blessing to me! They really stepped up and did everything they could to help me get through those tough days of cancer treatment. I'm sure it was hard to watch their mom get cancer TWICE. They are amazing young women!
Enough reminiscing...my 6 month CT scans are coming up next Monday, Feb. 18th. I'll also get my labs done that day too. Then the following week I see my oncologist and have a mammogram. This coming Thurs. (the 14th) I'll see my colorectal surgeon about the fistula, and I'm thinking I'll have to have surgery on that soon. That is a side effect from surgery and radiation. :(
1 more year and I'll hit that 5 year mark! I'm going to ask Dr. J about being 'cured'; if that still fits my case or not. I don't remember if the breast cancer will ever be considered cured--maybe because I was only stage 2b, I can be cured of that too. I'm not sure--I hope I remember to ask! April 1st will be 3 years from the breast cancer diagnosis.
Life goes on, and God is good! :)
Love,
Tina
Like I said, things moved quickly. My CT scan didn't show any other areas of cancer (except a possible lymph node). My gastro doc also contacted a surgeon, and an appt. to see him was scheduled, then my pre-op, then the surgery on Feb. 20th, just 2 weeks later. During surgery, 18" of my colon was removed and I was able to be reconnected. I came close to needing a colostomy, but am thankful I didn't! It was a tough surgery, and I was in the hospital 8 days. 2 of 20 lymph nodes had cancer, and I was stage 3b.
My wonderful oncologist told me this type of cancer could be CURED. Because of my young age (44), I was given everything they could possibly throw at me! None of my chemos were reduced, even with bad side effects. Once he even let me get chemo when my counts were really low--the nurse had to go ask him if the orders were correct! But he knew my counts always bounced back quickly when I had a neupogen shot, so he wasn't worried! I think it made a difference that my onc knew me well enough to know that I really wanted to complete all the treatments. If I had said it was too hard and I wanted to back off a bit he probably would have, as I think he would have respected my wishes. Same thing with radiation. That was even more difficult, and I was told I didn't need to finish, but it was important to me to finish those last 3, and I did! Although, I have to say, I never realized all the side effects I would have to live with!
Sometimes I have a hard time remembering how awful it all was, and other times I remember too well! I get frustrated dealing with painful side effects, but mostly, I am just so glad to be living life, cancer free. I am enjoying my children and grandchildren. My girls are such a blessing to me! They really stepped up and did everything they could to help me get through those tough days of cancer treatment. I'm sure it was hard to watch their mom get cancer TWICE. They are amazing young women!
Enough reminiscing...my 6 month CT scans are coming up next Monday, Feb. 18th. I'll also get my labs done that day too. Then the following week I see my oncologist and have a mammogram. This coming Thurs. (the 14th) I'll see my colorectal surgeon about the fistula, and I'm thinking I'll have to have surgery on that soon. That is a side effect from surgery and radiation. :(
1 more year and I'll hit that 5 year mark! I'm going to ask Dr. J about being 'cured'; if that still fits my case or not. I don't remember if the breast cancer will ever be considered cured--maybe because I was only stage 2b, I can be cured of that too. I'm not sure--I hope I remember to ask! April 1st will be 3 years from the breast cancer diagnosis.
Life goes on, and God is good! :)
Love,
Tina
Tuesday, August 14, 2012
Scans and Such
Well, I've had just about every part of my body scanned recently! I hope that's done for a while!
Last Friday I had to repeat the ultrasound I had back in June to look at my fistula. When I went to see my surgeon about it on Tues., she didn't have the results! She finally talked to a dr. (the "head honcho", as she called him) who read the scan to her over the phone. He only had 4 pictures and they weren't very good. He wanted to repeat the ultrasound, and do it himself. After talking with my surgeon he knew my background and exactly what she was looking for. I was very polite, and agreed, but I was SO BUMMED! I cried a little when I got out to the car, was mad at God, and used all 8 cylinders in the truck on my way home (nobody got in my way that day!). The ultrasound is a difficult test for me, causes pain and discomfort, and I really just hate it. I can't fully explain why, because that is just TMI. But I hope I never have to have that again! When I called my surgeon's clinic to schedule another appt. with her after having the repeat scan done, they wanted to schedule me 4-6 weeks out. Umm, no. They were able to get me in this Thurs., less than a week after the scan. ;)
Monday I had my MRI, to check for breast cancer, and today (Tues.) I had my ct scans and lab work. Most of my labs are done already, and I can check them online. So far, they all look good! My oncology nurse had a difficult time get blood from my port, so I had to let some "cath-flo" (draino like stuff) sit in there for about half an hour, then it worked fine. Sometimes little flaps develop in the port line and they let stuff in (like saline) but the flap closes when drawing blood out. The cath-flo eats that away and clears the line. It sure was nice having the port the past few days though. It was used for my MRI, labs, and CT scan. No big ugly bruises on my arm, and relatively little pain!
The bad part about the CT scan is that the yucky, horrible contrast I have to drink really messes up my stomach for the rest of the day. Lots of gurgling and discomfort. Oh well, by tomorrow I should be fine.
Now I wait for results. Thurs. I'll find out what we can do about the fistula, and next Tues. I'll see my onc and get the results of my scans. They'll be all clear, I'm sure!
Even with all the strife and discomfort of the last week or so, I've been very happy. I've been getting out for walks, now that the weather is cooler, and loving the exercise and the beautiful world God created for us. I've felt very connected to my Lord lately, growing in my trust and faith. I rarely worry about a recurrence, although I have been saddened that others I know have progressed to stage 4. I do wonder sometimes if it will happen to me, but most of the time (75%?) I feel as though I've been healed and will never have cancer again (which would be a miracle, given my "young" age for both cancers). No matter what happens though, I will continue to trust in God!
The rest of the fam is doing well--mom and Shonna are headed up north with my sister, and Alyssa and her husband. Rich and I will have the house to ourselves woo-hoo! :) We had a great time recently in Duluth with our kids and grandkids. I love having everyone together like that!
Life is good people--get out and enjoy it while you can!!
Love and blessings!
Tina
Last Friday I had to repeat the ultrasound I had back in June to look at my fistula. When I went to see my surgeon about it on Tues., she didn't have the results! She finally talked to a dr. (the "head honcho", as she called him) who read the scan to her over the phone. He only had 4 pictures and they weren't very good. He wanted to repeat the ultrasound, and do it himself. After talking with my surgeon he knew my background and exactly what she was looking for. I was very polite, and agreed, but I was SO BUMMED! I cried a little when I got out to the car, was mad at God, and used all 8 cylinders in the truck on my way home (nobody got in my way that day!). The ultrasound is a difficult test for me, causes pain and discomfort, and I really just hate it. I can't fully explain why, because that is just TMI. But I hope I never have to have that again! When I called my surgeon's clinic to schedule another appt. with her after having the repeat scan done, they wanted to schedule me 4-6 weeks out. Umm, no. They were able to get me in this Thurs., less than a week after the scan. ;)
Monday I had my MRI, to check for breast cancer, and today (Tues.) I had my ct scans and lab work. Most of my labs are done already, and I can check them online. So far, they all look good! My oncology nurse had a difficult time get blood from my port, so I had to let some "cath-flo" (draino like stuff) sit in there for about half an hour, then it worked fine. Sometimes little flaps develop in the port line and they let stuff in (like saline) but the flap closes when drawing blood out. The cath-flo eats that away and clears the line. It sure was nice having the port the past few days though. It was used for my MRI, labs, and CT scan. No big ugly bruises on my arm, and relatively little pain!
The bad part about the CT scan is that the yucky, horrible contrast I have to drink really messes up my stomach for the rest of the day. Lots of gurgling and discomfort. Oh well, by tomorrow I should be fine.
Now I wait for results. Thurs. I'll find out what we can do about the fistula, and next Tues. I'll see my onc and get the results of my scans. They'll be all clear, I'm sure!
Even with all the strife and discomfort of the last week or so, I've been very happy. I've been getting out for walks, now that the weather is cooler, and loving the exercise and the beautiful world God created for us. I've felt very connected to my Lord lately, growing in my trust and faith. I rarely worry about a recurrence, although I have been saddened that others I know have progressed to stage 4. I do wonder sometimes if it will happen to me, but most of the time (75%?) I feel as though I've been healed and will never have cancer again (which would be a miracle, given my "young" age for both cancers). No matter what happens though, I will continue to trust in God!
The rest of the fam is doing well--mom and Shonna are headed up north with my sister, and Alyssa and her husband. Rich and I will have the house to ourselves woo-hoo! :) We had a great time recently in Duluth with our kids and grandkids. I love having everyone together like that!
Life is good people--get out and enjoy it while you can!!
Love and blessings!
Tina
Thursday, February 16, 2012
Still Cancer Free!
Just had my CT scans and blood tests yesterday, and I already have the results--everything looks good! Thank you God! I'll see the onc next Wed., and the only thing I have a question about is why my white blood cells have dropped a bit below range. I think it's my body still recovering from all the chemo and radiation I had. He'll also let me know if I still have to have the scans every 6 months, or if I can go longer between scans. I am on the fence about this. I like knowing there is no cancer in my body, but the ct scans themselves pose a risk because of the radiation. I'll trust my oncologist's decision--he a great doc!
I have more tests at the end of the month--a mammogram and MRI, then I'll be free of tests for a while! Yay!
Stayed home from work today with a stuffed up head. Didn't sleep much last night and had stomach problems from that barium contrast stuff I had to drink yesterday for the scans. Man that stuff messes up my stomach! My frequent trips to the bathroom caused other issues, which eventually required a percocet for pain! It's been 2.5 years since I finished radiation for the colon cancer--I hope someday my skin will heal and I won't have these painful "issues" anymore!
Speaking of which, tomorrow is my little procedure to try to drain the fistula on my backside--another side effect of radiation. I have many people praying for me because with my sinus problems they might not let me go under anesthesia. I really want to get this done, but if doesn't happen, I'm going to trust that it's God's will, and He knows what's best for me!
So it's a mixed bag of news tonight. The reason I'm fitting all this medical stuff into one month is because our health insurance coverage will end at the end of Feb. Rich lost his job a few weeks ago. :( After 27 years they let him go. I can't even begin to explain the feelings we have had over this. Some of the folks he worked with are devastated by this. He was a great boss. I have been praying that he would get another job, because he has been miserable for over a year. They made things difficult for him; I think they were trying to get him to fail--well HE DIDN'T! They had to come up with some lame excuse. A bunch of people that he worked with (recently and in the past) got together for a little party for him. It was real nice--lots of people he hasn't seen in a long time--really lifted his spirits! We are trusting in God, knowing that this is an answer to prayer. As stressful as this is, it's so nice to have Rich around and be able to do more things together. Before he was always either working, or exhausted. That's no way to live. I know God has more for us than that!
That's all for now--getting sleepy and need to get to bed soon!
Blessings to all!
Tina
I have more tests at the end of the month--a mammogram and MRI, then I'll be free of tests for a while! Yay!
Stayed home from work today with a stuffed up head. Didn't sleep much last night and had stomach problems from that barium contrast stuff I had to drink yesterday for the scans. Man that stuff messes up my stomach! My frequent trips to the bathroom caused other issues, which eventually required a percocet for pain! It's been 2.5 years since I finished radiation for the colon cancer--I hope someday my skin will heal and I won't have these painful "issues" anymore!
Speaking of which, tomorrow is my little procedure to try to drain the fistula on my backside--another side effect of radiation. I have many people praying for me because with my sinus problems they might not let me go under anesthesia. I really want to get this done, but if doesn't happen, I'm going to trust that it's God's will, and He knows what's best for me!
So it's a mixed bag of news tonight. The reason I'm fitting all this medical stuff into one month is because our health insurance coverage will end at the end of Feb. Rich lost his job a few weeks ago. :( After 27 years they let him go. I can't even begin to explain the feelings we have had over this. Some of the folks he worked with are devastated by this. He was a great boss. I have been praying that he would get another job, because he has been miserable for over a year. They made things difficult for him; I think they were trying to get him to fail--well HE DIDN'T! They had to come up with some lame excuse. A bunch of people that he worked with (recently and in the past) got together for a little party for him. It was real nice--lots of people he hasn't seen in a long time--really lifted his spirits! We are trusting in God, knowing that this is an answer to prayer. As stressful as this is, it's so nice to have Rich around and be able to do more things together. Before he was always either working, or exhausted. That's no way to live. I know God has more for us than that!
That's all for now--getting sleepy and need to get to bed soon!
Blessings to all!
Tina
Monday, February 21, 2011
CT and MUGA Today
I had my 6 month CT scan and my 6 week MUGA scan today. The MUGA was first--at 10 am.(Rich drove me in the truck because the roads were bad from over a foot of snow! He's my hero!) The nurse accessed my port, then withdrew some blood. They have to call for an RN to do the port--the tech can draw blood from veins, but not the port. They mix the blood with a tracer (nuclear stuff), let it set for 20 minutes to combine, then put it back in me. For the scan I lay on a flat, narrow table and a machine moves over me and stays in one place for 10 minutes, then it moves closer and stays there for another 10 minutes, then it's done! Very easy! Well, unless you have a painful shoulder, like I do! My left shoulder has been bothering me since my mastectomy. It is getting worse. For the first of the 2 scans I had to have my left arm above my head for the whole 10 min. It hurt so bad. I'm glad the tech left, because if he had been in there I would have told him to stop the scan. I could hardly stand it--my whole body was screaming out for me to move my arm. I was praying and praying and thankfully the time did seem to go faster. The 2nd 10 min. scan I was able to keep my arms down--and that scan seemed to take forever. But I didn't mind--I was happy to just rest there after the pain I had just endured!
When that was done I went back to the imaging waiting room for the CT scan. I had to drink 4 cups of that awful berry flavored chalk. I remember thinking this stuff wasn't so bad (I've heard of people throwing up from it!), but this time it made me gag. The other flavor was banana, but I hate banana flavored stuff. After an hour of drinking that it was time for the scan. The scan itself is very quick; I think I was only gone for 15 minutes. At the end of the scan they inject me with some "contrast". The contrast is different somehow from the stuff you have to drink, and helps them see different things on the scan. I have what's called a power port, or smart port, so the contrast can go right in through the port. If you don't have one of these, then they put it in through an IV. Another reason I love my port! Anyway, sometimes at the end of the scan I get this intense nausea that only lasts about 5 minutes, but feels awful! I told the tech that so she could run the contrast in slower. That seems to help, as I did not get the nausea this time.
After my tests were done, Rich and I went to eat at a Chinese buffet. I was very hungry, but my stomach was starting to gurgle, and I wanted to get home, so we didn't stay too long. I forgot how that stuff affects my guts. Let's just say there has been much gurgling and frequent bathroom trips! Right now I just feel sort of wiped out, have a headache, and my stomach still doesn't feel to great. If it doesn't get better before bed I may just sleep in the recliner. That is my favorite place to be when my stomach bothers me (which happens quite a bit since my colon resection!). It also helps Rich sleep--he gets up so early, and doesn't sleep well the way it is, and I don't want to be bothering him all night.
So, about 3 hours after the ct was done, I got a call from my oncologist's nurse, Carol. She said Dr. J has seen the scan results and wanted me to know everything looked clear! So, good news!! I still have that mammo and mri to get through in April, then I will be really excited!
I really had no "scanxiety" this time. I kept waiting for it, assuming it would hit, but it never did. I am so thankful to God for giving me peace! He took away my fears, and took away the nausea that I used to get everytime I was on my way to Regions Hospital. Yes, He allowed me to go through 2 cancer diagnoses, but He has been right by my side through it all. I have learned so much about my Lord, and that's what really matters. As I like to say---it's not about me, it's all about GOD!
I'll check back in a few days, after meeting with my wonderful Dr. Jahagirdar!
Please say a prayer for my cousin Jim, as he lost his wife unexpectedly this weekend--very sad!
Tina
When that was done I went back to the imaging waiting room for the CT scan. I had to drink 4 cups of that awful berry flavored chalk. I remember thinking this stuff wasn't so bad (I've heard of people throwing up from it!), but this time it made me gag. The other flavor was banana, but I hate banana flavored stuff. After an hour of drinking that it was time for the scan. The scan itself is very quick; I think I was only gone for 15 minutes. At the end of the scan they inject me with some "contrast". The contrast is different somehow from the stuff you have to drink, and helps them see different things on the scan. I have what's called a power port, or smart port, so the contrast can go right in through the port. If you don't have one of these, then they put it in through an IV. Another reason I love my port! Anyway, sometimes at the end of the scan I get this intense nausea that only lasts about 5 minutes, but feels awful! I told the tech that so she could run the contrast in slower. That seems to help, as I did not get the nausea this time.
After my tests were done, Rich and I went to eat at a Chinese buffet. I was very hungry, but my stomach was starting to gurgle, and I wanted to get home, so we didn't stay too long. I forgot how that stuff affects my guts. Let's just say there has been much gurgling and frequent bathroom trips! Right now I just feel sort of wiped out, have a headache, and my stomach still doesn't feel to great. If it doesn't get better before bed I may just sleep in the recliner. That is my favorite place to be when my stomach bothers me (which happens quite a bit since my colon resection!). It also helps Rich sleep--he gets up so early, and doesn't sleep well the way it is, and I don't want to be bothering him all night.
So, about 3 hours after the ct was done, I got a call from my oncologist's nurse, Carol. She said Dr. J has seen the scan results and wanted me to know everything looked clear! So, good news!! I still have that mammo and mri to get through in April, then I will be really excited!
I really had no "scanxiety" this time. I kept waiting for it, assuming it would hit, but it never did. I am so thankful to God for giving me peace! He took away my fears, and took away the nausea that I used to get everytime I was on my way to Regions Hospital. Yes, He allowed me to go through 2 cancer diagnoses, but He has been right by my side through it all. I have learned so much about my Lord, and that's what really matters. As I like to say---it's not about me, it's all about GOD!
I'll check back in a few days, after meeting with my wonderful Dr. Jahagirdar!
Please say a prayer for my cousin Jim, as he lost his wife unexpectedly this weekend--very sad!
Tina
Saturday, February 19, 2011
Orphans
As most of you know, my daughter Rachel is in the process of adopting a 3 (almost 4!) year old boy from an Eastern Europe country. She is adopting through an organization called Reece's Rainbow. Most of the kids on their website have Down Syndrome, as does the little boy she is adopting. Rachel's papers (dossier) have been submitted in the country, so now she waits to find out that they were approved and what date she needs to be over there. Hopefully she and hubby will be traveling in 5-7 weeks! Well, my point in all of this is to tell you about the blog Rachel has started to advocate for orphans. She tells about many of them that desperately need families (and lets us know when they get their family!), and she lists many ways people can help. Many of us feel we aren't called to adopt, but there are so many other ways to help. Sharing her blog, giving financially to the kids (You can pick which one you want to help and donate directly to that child's fund!), and buying supplies for the orphanage are just a few ways you can help. These children are the "least of these" that Jesus talks about. They need our help. Ignoring them isn't an option. Please visit her blog, and if nothing else, pray for the children. Click HERE. Thank you!!
Now for a little update about me. I've had some tests lately, and so far, so good! I had an ultrasound to see what my ovaries are doing (I've had cysts in the past and we also wanted to see if things look menopausal), and some blood tests. The u/s showed that I still have a cyst, which seems to always be there, and we are going to check it again in 6 weeks. I heard the words "with your history" several times from my obgyn, and that is why we are watching things more carefully. I also had the ca-125 test, which is for ovarian cancer. It's only reliable if the number is high--then something is wrong. But if the # is normal, is doesn't mean you don't have cancer. We are pretty sure, though, that I don't have ovarian cancer...but with my history....sigh. We also did the FSH blood test which gives an idea if I am producing any estrogen. At the moment I am not, but that could be from radiation and chemo, so my menopause may not be permanent. There is no way to tell. In 6 weeks we might discuss having the ovaries removed--my obgyn seems to want that, but technically there is no reason other than something less to worry about. I'll have to take that up with God--I'm not sure removing body parts "just in case" (when it's not even a high risk) is something He would think is a good idea. We'll see. I'll discuss it with my onc this week too.
Monday I have a ct scan (I think chest, abdomen and pelvic area again), and a MUGA scan. The CT is for the colon cancer (to look for mets) and the MUGA is to check on my heart to make sure it's still functioning well. You may recall that my heart function decreased from the Herceptin, but the bp med (Enalapril) increased it. I see my onc on Wed., when I will have labs done and get my next Herceptin infusion. We'll discuss everything then.
I don't have my mammo and MRI scheduled yet, but they should be in April--then I will be declared cancer free! Can't wait!!
I complain about being poked, prodded, and nuked, but these tests do give me a sense of security. My onc wants me to have a ct scan every 6 months for awhile, and that's ok with me. Most of us that have had cancer worry about what might be going on in our body when we are not being tested!
I am still enjoying my time off, but not getting nearly as much done as I wanted! I seem to be pretty busy running here and there. Doc and test appointments take up a lot of time. I get frustrated sometimes with how tired I still feel. I'm still working on making exercise a routine. I do it only if I "have time", or "feel like it". It needs to happen more often!! Yeah, the dieting is not going so well either...
Oh--big news!! I went "topless" (with out a scarf) for the first time today! I went to the women's breakfast at church this morning and of course everyone noticed. Everyone was real nice and said I looked great! I knew the first time was going to be the hardest, because everyone would notice, so I just had to do it and get it over with! I felt really awkward at first. Too bad it's so darn cold! I hate the cold on my neck and ears!
Well, that's all for now! I'll update later this week, after seeing my oncologist on Wed.
Love and blessings!
Tina
Now for a little update about me. I've had some tests lately, and so far, so good! I had an ultrasound to see what my ovaries are doing (I've had cysts in the past and we also wanted to see if things look menopausal), and some blood tests. The u/s showed that I still have a cyst, which seems to always be there, and we are going to check it again in 6 weeks. I heard the words "with your history" several times from my obgyn, and that is why we are watching things more carefully. I also had the ca-125 test, which is for ovarian cancer. It's only reliable if the number is high--then something is wrong. But if the # is normal, is doesn't mean you don't have cancer. We are pretty sure, though, that I don't have ovarian cancer...but with my history....sigh. We also did the FSH blood test which gives an idea if I am producing any estrogen. At the moment I am not, but that could be from radiation and chemo, so my menopause may not be permanent. There is no way to tell. In 6 weeks we might discuss having the ovaries removed--my obgyn seems to want that, but technically there is no reason other than something less to worry about. I'll have to take that up with God--I'm not sure removing body parts "just in case" (when it's not even a high risk) is something He would think is a good idea. We'll see. I'll discuss it with my onc this week too.
Monday I have a ct scan (I think chest, abdomen and pelvic area again), and a MUGA scan. The CT is for the colon cancer (to look for mets) and the MUGA is to check on my heart to make sure it's still functioning well. You may recall that my heart function decreased from the Herceptin, but the bp med (Enalapril) increased it. I see my onc on Wed., when I will have labs done and get my next Herceptin infusion. We'll discuss everything then.
I don't have my mammo and MRI scheduled yet, but they should be in April--then I will be declared cancer free! Can't wait!!
I complain about being poked, prodded, and nuked, but these tests do give me a sense of security. My onc wants me to have a ct scan every 6 months for awhile, and that's ok with me. Most of us that have had cancer worry about what might be going on in our body when we are not being tested!
I am still enjoying my time off, but not getting nearly as much done as I wanted! I seem to be pretty busy running here and there. Doc and test appointments take up a lot of time. I get frustrated sometimes with how tired I still feel. I'm still working on making exercise a routine. I do it only if I "have time", or "feel like it". It needs to happen more often!! Yeah, the dieting is not going so well either...
Oh--big news!! I went "topless" (with out a scarf) for the first time today! I went to the women's breakfast at church this morning and of course everyone noticed. Everyone was real nice and said I looked great! I knew the first time was going to be the hardest, because everyone would notice, so I just had to do it and get it over with! I felt really awkward at first. Too bad it's so darn cold! I hate the cold on my neck and ears!
Well, that's all for now! I'll update later this week, after seeing my oncologist on Wed.
Love and blessings!
Tina
Tuesday, February 8, 2011
2 Year Cancerversary
Sunday, February 6th, was 2 years since I first found out I had cancer. That was the day I had the colonoscopy and the tumor was found. Boy, how life changes when you hear "you have cancer"!! You can read about what I've been through by clicking on the tab "My Journey" above.
I had my 14th Herceptin infusion last Wed. (the 2nd). This one made me more tired than usual. I'm not sure why. I watched Brennan that afternoon, and thankfully Rich came home a little early from work to help out! The next day I made it to Bible Study at 9:30, but I was still really tired. And Friday I took mom to get groceries (she came home from Craig's on Wed. eve), still very tired! It even lasted into the weekend. Also, my stomach was a little upset, sort of gurgly, and moments of nausea. So, in 3 weeks, when I get my next one, I won't plan ANYTHING for the 2 or 3 days after. Except Bible study.
This Friday I have an ultrasound (for female troubles--some of which were caused by radiation--the gift that keeps on giving!), and the Mon. before my next Herceptin I have a CT scan (to make sure the colon cancer didn't spread anywhere) and a MUGA scan (for the heart to make sure the Herceptin isn't doing anymore damage). Sometime in April I will have a mammo and mri, and hopefully after all those tests I will be declared NED (No Evidence of Disease)!! That will be a happy day!!
Enough about me--Alyssa and Jaren are back from their mission trip. It was a good trip and they both enjoyed it. Alyssa took care of kids all week while the moms were in a Bible study (they used Beth Moore's Esther study), and Jaren helped pour concrete for the foundation of a new room. There were a few nights that they had a Marriage conference also. Both of them gave their testimony about their relationship, and Alyssa shared a bit of her testimony at the women's study. I am so very proud of them both!
Jaren is currently going to school to be a cop, while working for 2 of our nearby police departments as a Community Service Officer (CSO). He is still a member of the Nat'l Guard, and spends 1 weekend a month and 2 weeks in the summer with them. Hopefully no more trips to Iraq or Afghanistan! He is a busy boy!
Alyssa is still a cheerleading coach, and decided to continue doing it next year too. She loves the job and the girls she coaches! She finished her Assoc. degree in Bus. Management and is looking for a part time job (anyone need a great receptionist or office worker? She has great customer service skills!)
Rachel submitted all her paperwork to the country of her little boy. We are hoping it will be submitted to the judge (or whoever) on Thurs. Then about 2 weeks after that, if it is approved, she will be contacted with the date to go over there! We are getting closer! Rich and I will have Brennan here while Rachel and Ken are overseas. We need to get his room ready!
Sat. Rachel and Ken had the flu, and I had to take Rachel to the ER around 11 pm. She was getting very dehydrated. Also, being diabetic, that can be dangerous. So we went in and she got a couple of bags of fluids, they ran a few blood tests, and we got to go home. I got home a little after 3am. Needless to say, I didn't get up for church Sunday!(I did listen to the sermon online today--very good!) That really threw me off! I think I was either still feeling the effects of the Herceptin, or fighting off the flu myself. We went to Alyssa's for the Superbowl, but left before it was done because I wasn't feeling well. Still tired yesterday, but today I feel pretty good. Sadly, the Steelers lost.
We are trying to plan little trip to see Shonna in KC. We might go this weekend. We want to go see all the Harry Truman stuff in Independence, Mo. Rich and I toured his home about 20 years ago. Shonna is a history buff, like us, and would like to see it too. Her schedule is so busy that Sundays are about the only day she can do anything.
Mom and Dee are going to Mexico soon, for a vacation. I could go, but it's not something I want to spend money on. I'm saving my pennies for a Duluth vacation this summer on my birthday--remember I'm going to be cancer free for this birthday and I want to celebrate because the last 2 I was too sick!
Well, another long and rambling blog entry for you all. HI to my relatives! Hope everyone is healthy and staying warm!
Love and blessings!
Tina
ps I put some new links on the side of my blog. One of them is "This Little Light" (on the blog list) and it's Rachel's blog for orphan advocacy--check it out! Also, her other blog is there too-"Love is sugar free".
I had my 14th Herceptin infusion last Wed. (the 2nd). This one made me more tired than usual. I'm not sure why. I watched Brennan that afternoon, and thankfully Rich came home a little early from work to help out! The next day I made it to Bible Study at 9:30, but I was still really tired. And Friday I took mom to get groceries (she came home from Craig's on Wed. eve), still very tired! It even lasted into the weekend. Also, my stomach was a little upset, sort of gurgly, and moments of nausea. So, in 3 weeks, when I get my next one, I won't plan ANYTHING for the 2 or 3 days after. Except Bible study.
This Friday I have an ultrasound (for female troubles--some of which were caused by radiation--the gift that keeps on giving!), and the Mon. before my next Herceptin I have a CT scan (to make sure the colon cancer didn't spread anywhere) and a MUGA scan (for the heart to make sure the Herceptin isn't doing anymore damage). Sometime in April I will have a mammo and mri, and hopefully after all those tests I will be declared NED (No Evidence of Disease)!! That will be a happy day!!
Enough about me--Alyssa and Jaren are back from their mission trip. It was a good trip and they both enjoyed it. Alyssa took care of kids all week while the moms were in a Bible study (they used Beth Moore's Esther study), and Jaren helped pour concrete for the foundation of a new room. There were a few nights that they had a Marriage conference also. Both of them gave their testimony about their relationship, and Alyssa shared a bit of her testimony at the women's study. I am so very proud of them both!
Jaren is currently going to school to be a cop, while working for 2 of our nearby police departments as a Community Service Officer (CSO). He is still a member of the Nat'l Guard, and spends 1 weekend a month and 2 weeks in the summer with them. Hopefully no more trips to Iraq or Afghanistan! He is a busy boy!
Alyssa is still a cheerleading coach, and decided to continue doing it next year too. She loves the job and the girls she coaches! She finished her Assoc. degree in Bus. Management and is looking for a part time job (anyone need a great receptionist or office worker? She has great customer service skills!)
Rachel submitted all her paperwork to the country of her little boy. We are hoping it will be submitted to the judge (or whoever) on Thurs. Then about 2 weeks after that, if it is approved, she will be contacted with the date to go over there! We are getting closer! Rich and I will have Brennan here while Rachel and Ken are overseas. We need to get his room ready!
Sat. Rachel and Ken had the flu, and I had to take Rachel to the ER around 11 pm. She was getting very dehydrated. Also, being diabetic, that can be dangerous. So we went in and she got a couple of bags of fluids, they ran a few blood tests, and we got to go home. I got home a little after 3am. Needless to say, I didn't get up for church Sunday!(I did listen to the sermon online today--very good!) That really threw me off! I think I was either still feeling the effects of the Herceptin, or fighting off the flu myself. We went to Alyssa's for the Superbowl, but left before it was done because I wasn't feeling well. Still tired yesterday, but today I feel pretty good. Sadly, the Steelers lost.
We are trying to plan little trip to see Shonna in KC. We might go this weekend. We want to go see all the Harry Truman stuff in Independence, Mo. Rich and I toured his home about 20 years ago. Shonna is a history buff, like us, and would like to see it too. Her schedule is so busy that Sundays are about the only day she can do anything.
Mom and Dee are going to Mexico soon, for a vacation. I could go, but it's not something I want to spend money on. I'm saving my pennies for a Duluth vacation this summer on my birthday--remember I'm going to be cancer free for this birthday and I want to celebrate because the last 2 I was too sick!
Well, another long and rambling blog entry for you all. HI to my relatives! Hope everyone is healthy and staying warm!
Love and blessings!
Tina
ps I put some new links on the side of my blog. One of them is "This Little Light" (on the blog list) and it's Rachel's blog for orphan advocacy--check it out! Also, her other blog is there too-"Love is sugar free".
Monday, January 24, 2011
January 24th Update
Hey everyone! I haven't been posting much because there just isn't much to say! I am enjoying life, and giving myself time to heal.
I want to mention my sadness over the loss of a sister blogger. She passed away a few days ago after a long battle with stage 4 breast cancer. I knew she was getting worse, but there still seemed to be hope, so this was sort of sudden. She occasionally read my blog, and it is sad writing this one knowing she won't be reading it. We will miss you Daria! Please pray for her husband and family.
Last Thursday, the 20th, was one year since I finished the FOLFOX chemo for colon cancer. Coming up soon will be my 2 year "cancerversary". In about a month I'll have my CT scan to check for more cancer. The thought doesn't make me nervous yet, but we'll see what happens when the date gets closer! Even though I know God is with me, I still wouldn't like to hear there is more cancer!
As far as the breast cancer goes, I will have my next Herceptin infusion next Wed., Feb. 2nd. The infusions are every 3 weeks. I might have to have some labs done because of the bp med I'm taking, but I won't be seeing my onc at this appt. I'll see him next time to go over my CT and MUGA results.
I'm still thinking about whether or not I want to do reconstruction. I've been reading others' experiences, and there is a private website where you can look at pictures of reconstruction. I'm am so grateful to the women who have put their pictures and their stories there to help others. I would probably have to have some sort of "flap" surgery, because radiation affects the skin too much for implants. One of the flap procedures uses the muscle from your back and brings it around to the front. This sounds painful to me! I'm not sure I want to go through a major surgery and 6 week recovery again. We'll see... Any pros and cons from any readers that have gone through this(recon or not) please e-mail me!
I am LOVING my time off! I feel so guilty sometimes, then I remember all I've been through the past 2 years, and I don't feel so guilty anymore! Also, because of my neuropathy I can't work anyways, at least not until it warms up outside! I usually watch Brennan once or twice a week, I have time to IRON (something I always hated to do but mostly because I didn't have time! Rich was happy to have some of his shirts back!), I am helping out at church again ( I do copying and stuff for the Children's Pastor), AND I joined a women's Bible study that is on Thurs. mornings. It's a Beth Moore study called "Breaking Free". It's pretty intense, and helps you overcome anything that might be holding you captive. I have no idea what that might be right now, but I'm pretty sure I'm going to find out! God wanted me at this study for a reason. The study says that "A Christian is held captive by anything that hinders the abundant and effective Spirit-filled life God planned for her". I want that "abundant and effective Spirit-filled life" that God has planned for me! Rachel and Alyssa are doing the study too. Alyssa has also done other Beth Moore studies.
Speaking of Alyssa, she and Jaren are down in Cabo San Lucas on their mission trip right now. They will be building a classroom for the youth in the area and putting on a marriage seminar. She sent me an e-mail after their 1st day. It is warm and beautiful there and she saw some whales in the bay! They asked for prayer for sleep (apparently the bed and pillow are hard as rocks!), and for them not to have any stomach troubles or illness. Also, please pray for the lives they will be touching down there. This is a very poor area where the kids are often left alone during the day. There is lots of drug use also. Pray for the team to be strong in the Lord and the presence of the Holy Spirit to be with them.
Rachel is spending a lot of time trying to get all their paperwork done for the adoption. Many forms have had to be redone more than once. If everything is not PERFECT it has to be redone! They are hoping to be one of the first families called to go over there to adopt their son. Hopefully this will be in March or April!
Shonna is back at school and busy as ever. She works a few hours a week at a nearby library. She will be learning how to play the keyboard and has some sort of singing lessons too, I think. Also choir, theology, and required time in the prayer room. Here is a link to the prayer room. It's great to listen to during your own prayer time or Bible study time.
Well, that's all for today!
Love and blessings!
Tina
I want to mention my sadness over the loss of a sister blogger. She passed away a few days ago after a long battle with stage 4 breast cancer. I knew she was getting worse, but there still seemed to be hope, so this was sort of sudden. She occasionally read my blog, and it is sad writing this one knowing she won't be reading it. We will miss you Daria! Please pray for her husband and family.
Last Thursday, the 20th, was one year since I finished the FOLFOX chemo for colon cancer. Coming up soon will be my 2 year "cancerversary". In about a month I'll have my CT scan to check for more cancer. The thought doesn't make me nervous yet, but we'll see what happens when the date gets closer! Even though I know God is with me, I still wouldn't like to hear there is more cancer!
As far as the breast cancer goes, I will have my next Herceptin infusion next Wed., Feb. 2nd. The infusions are every 3 weeks. I might have to have some labs done because of the bp med I'm taking, but I won't be seeing my onc at this appt. I'll see him next time to go over my CT and MUGA results.
I'm still thinking about whether or not I want to do reconstruction. I've been reading others' experiences, and there is a private website where you can look at pictures of reconstruction. I'm am so grateful to the women who have put their pictures and their stories there to help others. I would probably have to have some sort of "flap" surgery, because radiation affects the skin too much for implants. One of the flap procedures uses the muscle from your back and brings it around to the front. This sounds painful to me! I'm not sure I want to go through a major surgery and 6 week recovery again. We'll see... Any pros and cons from any readers that have gone through this(recon or not) please e-mail me!
I am LOVING my time off! I feel so guilty sometimes, then I remember all I've been through the past 2 years, and I don't feel so guilty anymore! Also, because of my neuropathy I can't work anyways, at least not until it warms up outside! I usually watch Brennan once or twice a week, I have time to IRON (something I always hated to do but mostly because I didn't have time! Rich was happy to have some of his shirts back!), I am helping out at church again ( I do copying and stuff for the Children's Pastor), AND I joined a women's Bible study that is on Thurs. mornings. It's a Beth Moore study called "Breaking Free". It's pretty intense, and helps you overcome anything that might be holding you captive. I have no idea what that might be right now, but I'm pretty sure I'm going to find out! God wanted me at this study for a reason. The study says that "A Christian is held captive by anything that hinders the abundant and effective Spirit-filled life God planned for her". I want that "abundant and effective Spirit-filled life" that God has planned for me! Rachel and Alyssa are doing the study too. Alyssa has also done other Beth Moore studies.
Speaking of Alyssa, she and Jaren are down in Cabo San Lucas on their mission trip right now. They will be building a classroom for the youth in the area and putting on a marriage seminar. She sent me an e-mail after their 1st day. It is warm and beautiful there and she saw some whales in the bay! They asked for prayer for sleep (apparently the bed and pillow are hard as rocks!), and for them not to have any stomach troubles or illness. Also, please pray for the lives they will be touching down there. This is a very poor area where the kids are often left alone during the day. There is lots of drug use also. Pray for the team to be strong in the Lord and the presence of the Holy Spirit to be with them.
Rachel is spending a lot of time trying to get all their paperwork done for the adoption. Many forms have had to be redone more than once. If everything is not PERFECT it has to be redone! They are hoping to be one of the first families called to go over there to adopt their son. Hopefully this will be in March or April!
Shonna is back at school and busy as ever. She works a few hours a week at a nearby library. She will be learning how to play the keyboard and has some sort of singing lessons too, I think. Also choir, theology, and required time in the prayer room. Here is a link to the prayer room. It's great to listen to during your own prayer time or Bible study time.
Well, that's all for today!
Love and blessings!
Tina
Wednesday, January 12, 2011
Herceptin #13 Update
Wow, it's been 2 weeks since I posted last! I think about it a lot, I just don't like taking the time to do it!
Last week I had another MUGA scan (for heart function). My heart function was 65% before I started treatment (which is very good), and after starting Herceptin it went down to 51. Then my onc. put me on Enalapril (a blood pressure med), and my heart function has increased to 56! And I haven't had any side effects from the med. I was worried about my bp dropping too low, but I am on a very low dose and am tolerating it well.
Other good news--my hemoglobin finally made it up to 12, which is the bottom of the normal range. It hasn't been normal since last April.
We scheduled some upcoming tests--a CT scan and another MUGA on Feb. 21st (6 weeks), and an MRI and mammogram sometime in April. The CT scan is for the colon cancer--to watch for a recurrence. My onc. wants me to have them every 6 months for awhile. He said because I'm so young, he wants to make sure if anything does show up again we catch it early. He did say, though, that he thinks we did a pretty good job of fighting it so it shouldn't come back!
I do not need another colonoscopy for 2 years (3 years from my last one), and after this mammo and mri I won't need another one for a year.
Some side effects I still have are neuropathy (numbness) in my fingers and feet, and just tired and out of shape! I am starting to work on building my strength and stamina. I have a lot of damage from the colon cancer radiation, and also issues that have to do with missing 18" of my colon! These are annoyances that I will have to live with, although they may get better with time. I am also praying that God will take these problems away and restore to me what cancer has taken. I can be very persistent! I also need to continue to stretch my left arm and shoulder, or it quickly stiffens up. When I had my MUGA last week I had to have my left arm above my head for 10 minutes and that really hurt! Stretching helps a lot, I guess I just have to keep doing it!
I am very pleased with how well my skin did with radiation. I was expecting much worse! The scar area peeled, but it didn't hurt. The whole area, including by the clavicle, is tan looking, and will probably always be that way. I will need to protect it with sunscreen anytime it's exposed (like with tank tops and scoop neck tops) for the rest of my life.
Family update: Shonna is still here on break. She goes back to KC this weekend. Alyssa and Jaren will be leaving on a mission trip next weekend (the 22nd). Rachel and Ken are almost ready to submit all their paperwork to the country they are adopting from. Hopefully they will get to go over sometime in March or April. They have to wait for the country to contact them with the date.
Life is good! God is better!!
Love and blessings!
Tina
Last week I had another MUGA scan (for heart function). My heart function was 65% before I started treatment (which is very good), and after starting Herceptin it went down to 51. Then my onc. put me on Enalapril (a blood pressure med), and my heart function has increased to 56! And I haven't had any side effects from the med. I was worried about my bp dropping too low, but I am on a very low dose and am tolerating it well.
Other good news--my hemoglobin finally made it up to 12, which is the bottom of the normal range. It hasn't been normal since last April.
We scheduled some upcoming tests--a CT scan and another MUGA on Feb. 21st (6 weeks), and an MRI and mammogram sometime in April. The CT scan is for the colon cancer--to watch for a recurrence. My onc. wants me to have them every 6 months for awhile. He said because I'm so young, he wants to make sure if anything does show up again we catch it early. He did say, though, that he thinks we did a pretty good job of fighting it so it shouldn't come back!
I do not need another colonoscopy for 2 years (3 years from my last one), and after this mammo and mri I won't need another one for a year.
Some side effects I still have are neuropathy (numbness) in my fingers and feet, and just tired and out of shape! I am starting to work on building my strength and stamina. I have a lot of damage from the colon cancer radiation, and also issues that have to do with missing 18" of my colon! These are annoyances that I will have to live with, although they may get better with time. I am also praying that God will take these problems away and restore to me what cancer has taken. I can be very persistent! I also need to continue to stretch my left arm and shoulder, or it quickly stiffens up. When I had my MUGA last week I had to have my left arm above my head for 10 minutes and that really hurt! Stretching helps a lot, I guess I just have to keep doing it!
I am very pleased with how well my skin did with radiation. I was expecting much worse! The scar area peeled, but it didn't hurt. The whole area, including by the clavicle, is tan looking, and will probably always be that way. I will need to protect it with sunscreen anytime it's exposed (like with tank tops and scoop neck tops) for the rest of my life.
Family update: Shonna is still here on break. She goes back to KC this weekend. Alyssa and Jaren will be leaving on a mission trip next weekend (the 22nd). Rachel and Ken are almost ready to submit all their paperwork to the country they are adopting from. Hopefully they will get to go over sometime in March or April. They have to wait for the country to contact them with the date.
Life is good! God is better!!
Love and blessings!
Tina
Saturday, May 8, 2010
Scan Results
My onc. called last night and left messages on both my home phone and my cell. Unfortunately I didn't hear my cell because I was at a restaurant with Rich, Jaren, and Alyssa. My ct scans and bone scans were all clear! So no cancer found anywhere else in my body! Finally some good news! Last week I was nervous about the scans,because everything seemed to be going wrong, but after much prayer, I hardly even thought about them after they were done. God gave me His peace! I didn't expect to know the results until I saw my doc next Wed.
One thing I am not sure about is whether or not a tiny amount of breast cancer would have shown up or not. Since I didn't have clear margins on the tissue removed in the lumpectomy, there might still be some cancer left in my breast. Hmmm, I wonder if I could have another MRI, and if that would show small amounts of cancer left. More questions to ask my onc. when I see him on Wed. I have a list of questions I keep adding to!
Yesterday was a long day at the hospital. We got there at 11:15 and went to the Breast Health Center to have my drain removed. Not sure how much I want to say about that...let's just say I'm one of the unlucky ones that it hurt real bad. I guess it doesn't hurt everyone that bad. I took a Percocet before I went, but that didn't help any. Just made me feel really woozy after the drain came out. It burned for several minutes after. Then it felt ok the rest of the day, and even with all the pain, I'm still glad to have it out!! Although it worries me that if I have a mastectomy I'll have to have a drain (maybe more than one) again. There's got to be a more humane way to do that!
After that I went to imaging and they started me drinking the yucky stuff for the ct scans. They also accessed my port and gave me an injection of some nuclear stuff for the bone scan. While I was waiting to finish the drink (it takes an hour to drink it all), we went to the cancer center to get my blood drawn for the labs my onc. wanted before I see him. It was nice to see and get a hug from my nurse Andrea! Then I had the ct scans--took about 5 minutes. I usually feel a few minutes of intense nausea after the test. The tech slowed down the contrast stuff they gave me through my port, and that may have helped a little. The feeling passed after a few minutes, then I was able to get up and go off to my bone scan! For the bone scan I just had to lie still for about 20 minutes while this huge machine moved slowly over me. Its the same machine that did my MUGA heart scan earlier this week.
I've got all my blood test results too already. Isn't it amazing how they can get all these tests done so fast these days? I can just look online and see all the results as soon as my doc releases them. My blood tests look even better than they did a few weeks ago at my pre-op. My platelets are up more and my hemoglobin is 12.5--finally in the normal range after being below normal since my colon resection over a year ago.
I was able to take the dressing off my drain site today, and tomorrow I can shower. Today I took a quick bath and washed my hair under the faucet.
I am having some occasional sharp pains in my armpit area and at the incision site, which is totally normal. The nurse said they call them "zingers". They get a little annoying, but not too bad. Still have a lot of soreness and stiffness in my upper arm and shoulder. I've been doing my exercises! And, of course, my breast is still bruised and sore, but that's not too bad either.
I think I'm going to stay home from church tomorrow. Its my last day before going back to work and I really just want to lie in bed and read the paper! We are having a picnic at the park nearby about 12:30. We always have our Mother's Day picnic there, and we always freeze! Hopefully it won't be too windy. Temp is supposed to get to around 60. And I think its supposed to be sunny.
Well, this week should prove interesting! Hopefully by the end of it I'll know what type of surgery I'm going to have and when, and when I can start chemo.
Keep me in your prayers!
Tina
One thing I am not sure about is whether or not a tiny amount of breast cancer would have shown up or not. Since I didn't have clear margins on the tissue removed in the lumpectomy, there might still be some cancer left in my breast. Hmmm, I wonder if I could have another MRI, and if that would show small amounts of cancer left. More questions to ask my onc. when I see him on Wed. I have a list of questions I keep adding to!
Yesterday was a long day at the hospital. We got there at 11:15 and went to the Breast Health Center to have my drain removed. Not sure how much I want to say about that...let's just say I'm one of the unlucky ones that it hurt real bad. I guess it doesn't hurt everyone that bad. I took a Percocet before I went, but that didn't help any. Just made me feel really woozy after the drain came out. It burned for several minutes after. Then it felt ok the rest of the day, and even with all the pain, I'm still glad to have it out!! Although it worries me that if I have a mastectomy I'll have to have a drain (maybe more than one) again. There's got to be a more humane way to do that!
After that I went to imaging and they started me drinking the yucky stuff for the ct scans. They also accessed my port and gave me an injection of some nuclear stuff for the bone scan. While I was waiting to finish the drink (it takes an hour to drink it all), we went to the cancer center to get my blood drawn for the labs my onc. wanted before I see him. It was nice to see and get a hug from my nurse Andrea! Then I had the ct scans--took about 5 minutes. I usually feel a few minutes of intense nausea after the test. The tech slowed down the contrast stuff they gave me through my port, and that may have helped a little. The feeling passed after a few minutes, then I was able to get up and go off to my bone scan! For the bone scan I just had to lie still for about 20 minutes while this huge machine moved slowly over me. Its the same machine that did my MUGA heart scan earlier this week.
I've got all my blood test results too already. Isn't it amazing how they can get all these tests done so fast these days? I can just look online and see all the results as soon as my doc releases them. My blood tests look even better than they did a few weeks ago at my pre-op. My platelets are up more and my hemoglobin is 12.5--finally in the normal range after being below normal since my colon resection over a year ago.
I was able to take the dressing off my drain site today, and tomorrow I can shower. Today I took a quick bath and washed my hair under the faucet.
I am having some occasional sharp pains in my armpit area and at the incision site, which is totally normal. The nurse said they call them "zingers". They get a little annoying, but not too bad. Still have a lot of soreness and stiffness in my upper arm and shoulder. I've been doing my exercises! And, of course, my breast is still bruised and sore, but that's not too bad either.
I think I'm going to stay home from church tomorrow. Its my last day before going back to work and I really just want to lie in bed and read the paper! We are having a picnic at the park nearby about 12:30. We always have our Mother's Day picnic there, and we always freeze! Hopefully it won't be too windy. Temp is supposed to get to around 60. And I think its supposed to be sunny.
Well, this week should prove interesting! Hopefully by the end of it I'll know what type of surgery I'm going to have and when, and when I can start chemo.
Keep me in your prayers!
Tina
Subscribe to:
Posts (Atom)