Today was supposed to be Charlie's surgery day. He was finally going to get that hole in his heart fixed. Rachel had everything ready for the week, Brennan's schedule worked out, and Ken took the week off. They took Charlie into surgery at 8:30 am, and a little while later the surgeon came out. Not a good sign! Charlie's fever went back up to 102.2. He has had fevers off and on all summer. They have done zillions of tests and can't find the reason. So, now they do a bunch more tests and cultures and see if they are missing anything. He is still intubated and sedated, and they should let him wake up in about an hour or so. Rachel and Ken are waiting for the test results and will talk to the specialists and decide what to do. You can read more details here: Love is Sugar Free.
In other news about Charlie, he is doing so well in so many ways! He knows several signs (sign language), and says a few words. He has been having physical, occupational, and speech therapy twice a week and they are getting him to use his legs! At first he wouldn't even put his feet on the ground, and now he can use his legs to support himself! He is happy and loves to snuggle. Now if only we could get his heart healed...
Brennan will be 2 on Sept. 26th! He knows most of his colors and the signs for them! He is talking a lot more, although he is hard to understand unless you know the context. But he will try to say most everything now. He even makes up signs for things too! He says things like "mommy's car gold" and "Sissa's(Alyssa's) car". He recognized Alyssa's car after just seeing it one time before! He is a sweet, fun little boy. Of course he has the occasional melt down--but they don't last very long.
I am getting excited about going back to work (although this surgery stuff is putting a damper on that now). I start next Tues, Sept. 6th. I even did a little clothes shopping--it's been awhile since I've needed clothes for work! I wish I could say that I've lost all the weight I gained this last year, but I haven't. I'm working on it though! I'm feeling pretty good, and getting my strength and stamina back!
Please keep Charlie in your prayers. God is hearing those prayers, I know. I'm sure there is a good reason the surgery was cancelled, because God was there with Charlie and the surgeons.
Love and blessings!