Well, I said I'd write more after I saw my onc., and I didn't! Hmmm. We discussed my clear CT, and some odd little things that showed up on there--my ureters (the tubes that carry urine from the kidney to the bladder) look dilated (bigger). There doesn't appear to be any blockage, so we'll keep an eye on it. I have had some bladder issues since my colon surgery, but nothing too major. I remember the surgeon telling me after the surgery that he had a kidney specialist come in and look at things and everything seemed to be working ok. I'm not real clear on why he needed the kidney doc to come in though.
Anyways...the MUGA showed more improvement on the heart function. It's up to 61% now (59 last time and 51 at the lowest point). The blood pressure med I'm on seems to be working! My potassium is good--not too high like it was before. I still have to be careful about getting too much, so I still am not drinking orange juice. I have an occasional clementine or tangerine though.
Not much else to say about that. I don't need to see the onc for 3 months, and I'll have another MUGA at that time. I will continue to get the Herceptin infusions every 3 weeks. My neuropathy has improved quite a bit, but is still there and holding steady right now. My left shoulder ( surgery side) still hurts, but I try to move it and stretch it daily. I might eventually have to have physical therapy for it.
I'm still working on some "female" issues from radiation, and a cyst in my ovary that is causing some discomfort (not pain though). I have another ultrasound in a few weeks for that. Might eventually have an oophorectomy (ovaries removed), but I'm not to keen on another surgery, so we'll see!
I have been tired again the past week. Hoping I'll get over this soon! I haven't been exercising because I've been pretty busy. Seems I'm always running somewhere, or babysitting Brennan (which I love!).
Well, speaking of Brennan--starting Sunday, he'll be here for about 2 and a half weeks! Rachel and Ken got the date to go over to the country they are adopting from (don't know if I'm allowed to say the country's name on here yet--the country doesn't want people thinking they don't take care of their orphans!). They have a meeting there on Wed., 3/16, and will hopefully get to meet their little boy (she thinks she's going to name him Charlie) on Friday. Then they'll have another court-type meeting about 2 weeks after the first one, and then they can come home for about 10 days before going back over to get Charlie. Ken will be staying home and working, and Rachel will be going back hopefully with Shonna to help her. Then, I think it'll be about 2 weeks more before they can actually leave with Charlie. I guess to get better details you should just read Rachel's blog--the link to her blog "Love is Sugar Free" is on the side of my page---->
We are very excited, and a little nervous to have Brennan here for so long. He's going to miss his parents (he already clings to Rachel when she tries to leave him at the nursery at church!), but he's so young, I think it won't affect him too much. He had his first sleepover here the weekend before last, and he did great. Ken's parents are going to take him on the weekends, and there are others that will help during the week too, to give me a little break. My mom is here to help too--thank God! She can watch him while I take my shower in the morning!
There is so much swirling through my head right now! Shonna is home on break until Friday, and that is keeping me busy! All of us girls are going to lunch today--Rachel (and Brennan--our only boy!), Alyssa, Shonna, Mom, Dee, and I.
I'm still doing the Beth Moore Breaking Free Bible study on Thursday mornings and I love it! The study is SUPER good, and I am learning and growing in God. I also love the fellowship of the women. I need to find a way to make that continue after the study is over.
This study has helped me realize what things I need to just give over to God. You know you hear from a lot of cancer patients that they learn who is there for them and who is not when going through something like this. That is true for me as well. I know who my friends are, and what family members I can count on. There are those I haven't heard from since my diagnoses. That bothered Rich and I for awhile, and especially the ones who don't even acknowledge my kids--heard nothing for graduation or a wedding! I've come to realize that I just need to give it over to God--not hold a grudge, not want to treat them like they've treated me. I choose to ignore their behavior. I will treat them with kindness, and continue to pray for them. I have God--what can man do to me? (Psalm 118:6).
Well, going to lunch in an hour--better go get ready! I actually have enough hair that I have to put a little shaping cream in it to help control it a bit! Maybe I'll post a pic soon!
Love and blessings!!
Tina
Tuesday, March 8, 2011
Monday, February 21, 2011
CT and MUGA Today
I had my 6 month CT scan and my 6 week MUGA scan today. The MUGA was first--at 10 am.(Rich drove me in the truck because the roads were bad from over a foot of snow! He's my hero!) The nurse accessed my port, then withdrew some blood. They have to call for an RN to do the port--the tech can draw blood from veins, but not the port. They mix the blood with a tracer (nuclear stuff), let it set for 20 minutes to combine, then put it back in me. For the scan I lay on a flat, narrow table and a machine moves over me and stays in one place for 10 minutes, then it moves closer and stays there for another 10 minutes, then it's done! Very easy! Well, unless you have a painful shoulder, like I do! My left shoulder has been bothering me since my mastectomy. It is getting worse. For the first of the 2 scans I had to have my left arm above my head for the whole 10 min. It hurt so bad. I'm glad the tech left, because if he had been in there I would have told him to stop the scan. I could hardly stand it--my whole body was screaming out for me to move my arm. I was praying and praying and thankfully the time did seem to go faster. The 2nd 10 min. scan I was able to keep my arms down--and that scan seemed to take forever. But I didn't mind--I was happy to just rest there after the pain I had just endured!
When that was done I went back to the imaging waiting room for the CT scan. I had to drink 4 cups of that awful berry flavored chalk. I remember thinking this stuff wasn't so bad (I've heard of people throwing up from it!), but this time it made me gag. The other flavor was banana, but I hate banana flavored stuff. After an hour of drinking that it was time for the scan. The scan itself is very quick; I think I was only gone for 15 minutes. At the end of the scan they inject me with some "contrast". The contrast is different somehow from the stuff you have to drink, and helps them see different things on the scan. I have what's called a power port, or smart port, so the contrast can go right in through the port. If you don't have one of these, then they put it in through an IV. Another reason I love my port! Anyway, sometimes at the end of the scan I get this intense nausea that only lasts about 5 minutes, but feels awful! I told the tech that so she could run the contrast in slower. That seems to help, as I did not get the nausea this time.
After my tests were done, Rich and I went to eat at a Chinese buffet. I was very hungry, but my stomach was starting to gurgle, and I wanted to get home, so we didn't stay too long. I forgot how that stuff affects my guts. Let's just say there has been much gurgling and frequent bathroom trips! Right now I just feel sort of wiped out, have a headache, and my stomach still doesn't feel to great. If it doesn't get better before bed I may just sleep in the recliner. That is my favorite place to be when my stomach bothers me (which happens quite a bit since my colon resection!). It also helps Rich sleep--he gets up so early, and doesn't sleep well the way it is, and I don't want to be bothering him all night.
So, about 3 hours after the ct was done, I got a call from my oncologist's nurse, Carol. She said Dr. J has seen the scan results and wanted me to know everything looked clear! So, good news!! I still have that mammo and mri to get through in April, then I will be really excited!
I really had no "scanxiety" this time. I kept waiting for it, assuming it would hit, but it never did. I am so thankful to God for giving me peace! He took away my fears, and took away the nausea that I used to get everytime I was on my way to Regions Hospital. Yes, He allowed me to go through 2 cancer diagnoses, but He has been right by my side through it all. I have learned so much about my Lord, and that's what really matters. As I like to say---it's not about me, it's all about GOD!
I'll check back in a few days, after meeting with my wonderful Dr. Jahagirdar!
Please say a prayer for my cousin Jim, as he lost his wife unexpectedly this weekend--very sad!
Tina
When that was done I went back to the imaging waiting room for the CT scan. I had to drink 4 cups of that awful berry flavored chalk. I remember thinking this stuff wasn't so bad (I've heard of people throwing up from it!), but this time it made me gag. The other flavor was banana, but I hate banana flavored stuff. After an hour of drinking that it was time for the scan. The scan itself is very quick; I think I was only gone for 15 minutes. At the end of the scan they inject me with some "contrast". The contrast is different somehow from the stuff you have to drink, and helps them see different things on the scan. I have what's called a power port, or smart port, so the contrast can go right in through the port. If you don't have one of these, then they put it in through an IV. Another reason I love my port! Anyway, sometimes at the end of the scan I get this intense nausea that only lasts about 5 minutes, but feels awful! I told the tech that so she could run the contrast in slower. That seems to help, as I did not get the nausea this time.
After my tests were done, Rich and I went to eat at a Chinese buffet. I was very hungry, but my stomach was starting to gurgle, and I wanted to get home, so we didn't stay too long. I forgot how that stuff affects my guts. Let's just say there has been much gurgling and frequent bathroom trips! Right now I just feel sort of wiped out, have a headache, and my stomach still doesn't feel to great. If it doesn't get better before bed I may just sleep in the recliner. That is my favorite place to be when my stomach bothers me (which happens quite a bit since my colon resection!). It also helps Rich sleep--he gets up so early, and doesn't sleep well the way it is, and I don't want to be bothering him all night.
So, about 3 hours after the ct was done, I got a call from my oncologist's nurse, Carol. She said Dr. J has seen the scan results and wanted me to know everything looked clear! So, good news!! I still have that mammo and mri to get through in April, then I will be really excited!
I really had no "scanxiety" this time. I kept waiting for it, assuming it would hit, but it never did. I am so thankful to God for giving me peace! He took away my fears, and took away the nausea that I used to get everytime I was on my way to Regions Hospital. Yes, He allowed me to go through 2 cancer diagnoses, but He has been right by my side through it all. I have learned so much about my Lord, and that's what really matters. As I like to say---it's not about me, it's all about GOD!
I'll check back in a few days, after meeting with my wonderful Dr. Jahagirdar!
Please say a prayer for my cousin Jim, as he lost his wife unexpectedly this weekend--very sad!
Tina
Saturday, February 19, 2011
Orphans
As most of you know, my daughter Rachel is in the process of adopting a 3 (almost 4!) year old boy from an Eastern Europe country. She is adopting through an organization called Reece's Rainbow. Most of the kids on their website have Down Syndrome, as does the little boy she is adopting. Rachel's papers (dossier) have been submitted in the country, so now she waits to find out that they were approved and what date she needs to be over there. Hopefully she and hubby will be traveling in 5-7 weeks! Well, my point in all of this is to tell you about the blog Rachel has started to advocate for orphans. She tells about many of them that desperately need families (and lets us know when they get their family!), and she lists many ways people can help. Many of us feel we aren't called to adopt, but there are so many other ways to help. Sharing her blog, giving financially to the kids (You can pick which one you want to help and donate directly to that child's fund!), and buying supplies for the orphanage are just a few ways you can help. These children are the "least of these" that Jesus talks about. They need our help. Ignoring them isn't an option. Please visit her blog, and if nothing else, pray for the children. Click HERE. Thank you!!
Now for a little update about me. I've had some tests lately, and so far, so good! I had an ultrasound to see what my ovaries are doing (I've had cysts in the past and we also wanted to see if things look menopausal), and some blood tests. The u/s showed that I still have a cyst, which seems to always be there, and we are going to check it again in 6 weeks. I heard the words "with your history" several times from my obgyn, and that is why we are watching things more carefully. I also had the ca-125 test, which is for ovarian cancer. It's only reliable if the number is high--then something is wrong. But if the # is normal, is doesn't mean you don't have cancer. We are pretty sure, though, that I don't have ovarian cancer...but with my history....sigh. We also did the FSH blood test which gives an idea if I am producing any estrogen. At the moment I am not, but that could be from radiation and chemo, so my menopause may not be permanent. There is no way to tell. In 6 weeks we might discuss having the ovaries removed--my obgyn seems to want that, but technically there is no reason other than something less to worry about. I'll have to take that up with God--I'm not sure removing body parts "just in case" (when it's not even a high risk) is something He would think is a good idea. We'll see. I'll discuss it with my onc this week too.
Monday I have a ct scan (I think chest, abdomen and pelvic area again), and a MUGA scan. The CT is for the colon cancer (to look for mets) and the MUGA is to check on my heart to make sure it's still functioning well. You may recall that my heart function decreased from the Herceptin, but the bp med (Enalapril) increased it. I see my onc on Wed., when I will have labs done and get my next Herceptin infusion. We'll discuss everything then.
I don't have my mammo and MRI scheduled yet, but they should be in April--then I will be declared cancer free! Can't wait!!
I complain about being poked, prodded, and nuked, but these tests do give me a sense of security. My onc wants me to have a ct scan every 6 months for awhile, and that's ok with me. Most of us that have had cancer worry about what might be going on in our body when we are not being tested!
I am still enjoying my time off, but not getting nearly as much done as I wanted! I seem to be pretty busy running here and there. Doc and test appointments take up a lot of time. I get frustrated sometimes with how tired I still feel. I'm still working on making exercise a routine. I do it only if I "have time", or "feel like it". It needs to happen more often!! Yeah, the dieting is not going so well either...
Oh--big news!! I went "topless" (with out a scarf) for the first time today! I went to the women's breakfast at church this morning and of course everyone noticed. Everyone was real nice and said I looked great! I knew the first time was going to be the hardest, because everyone would notice, so I just had to do it and get it over with! I felt really awkward at first. Too bad it's so darn cold! I hate the cold on my neck and ears!
Well, that's all for now! I'll update later this week, after seeing my oncologist on Wed.
Love and blessings!
Tina
Now for a little update about me. I've had some tests lately, and so far, so good! I had an ultrasound to see what my ovaries are doing (I've had cysts in the past and we also wanted to see if things look menopausal), and some blood tests. The u/s showed that I still have a cyst, which seems to always be there, and we are going to check it again in 6 weeks. I heard the words "with your history" several times from my obgyn, and that is why we are watching things more carefully. I also had the ca-125 test, which is for ovarian cancer. It's only reliable if the number is high--then something is wrong. But if the # is normal, is doesn't mean you don't have cancer. We are pretty sure, though, that I don't have ovarian cancer...but with my history....sigh. We also did the FSH blood test which gives an idea if I am producing any estrogen. At the moment I am not, but that could be from radiation and chemo, so my menopause may not be permanent. There is no way to tell. In 6 weeks we might discuss having the ovaries removed--my obgyn seems to want that, but technically there is no reason other than something less to worry about. I'll have to take that up with God--I'm not sure removing body parts "just in case" (when it's not even a high risk) is something He would think is a good idea. We'll see. I'll discuss it with my onc this week too.
Monday I have a ct scan (I think chest, abdomen and pelvic area again), and a MUGA scan. The CT is for the colon cancer (to look for mets) and the MUGA is to check on my heart to make sure it's still functioning well. You may recall that my heart function decreased from the Herceptin, but the bp med (Enalapril) increased it. I see my onc on Wed., when I will have labs done and get my next Herceptin infusion. We'll discuss everything then.
I don't have my mammo and MRI scheduled yet, but they should be in April--then I will be declared cancer free! Can't wait!!
I complain about being poked, prodded, and nuked, but these tests do give me a sense of security. My onc wants me to have a ct scan every 6 months for awhile, and that's ok with me. Most of us that have had cancer worry about what might be going on in our body when we are not being tested!
I am still enjoying my time off, but not getting nearly as much done as I wanted! I seem to be pretty busy running here and there. Doc and test appointments take up a lot of time. I get frustrated sometimes with how tired I still feel. I'm still working on making exercise a routine. I do it only if I "have time", or "feel like it". It needs to happen more often!! Yeah, the dieting is not going so well either...
Oh--big news!! I went "topless" (with out a scarf) for the first time today! I went to the women's breakfast at church this morning and of course everyone noticed. Everyone was real nice and said I looked great! I knew the first time was going to be the hardest, because everyone would notice, so I just had to do it and get it over with! I felt really awkward at first. Too bad it's so darn cold! I hate the cold on my neck and ears!
Well, that's all for now! I'll update later this week, after seeing my oncologist on Wed.
Love and blessings!
Tina
Tuesday, February 8, 2011
2 Year Cancerversary
Sunday, February 6th, was 2 years since I first found out I had cancer. That was the day I had the colonoscopy and the tumor was found. Boy, how life changes when you hear "you have cancer"!! You can read about what I've been through by clicking on the tab "My Journey" above.
I had my 14th Herceptin infusion last Wed. (the 2nd). This one made me more tired than usual. I'm not sure why. I watched Brennan that afternoon, and thankfully Rich came home a little early from work to help out! The next day I made it to Bible Study at 9:30, but I was still really tired. And Friday I took mom to get groceries (she came home from Craig's on Wed. eve), still very tired! It even lasted into the weekend. Also, my stomach was a little upset, sort of gurgly, and moments of nausea. So, in 3 weeks, when I get my next one, I won't plan ANYTHING for the 2 or 3 days after. Except Bible study.
This Friday I have an ultrasound (for female troubles--some of which were caused by radiation--the gift that keeps on giving!), and the Mon. before my next Herceptin I have a CT scan (to make sure the colon cancer didn't spread anywhere) and a MUGA scan (for the heart to make sure the Herceptin isn't doing anymore damage). Sometime in April I will have a mammo and mri, and hopefully after all those tests I will be declared NED (No Evidence of Disease)!! That will be a happy day!!
Enough about me--Alyssa and Jaren are back from their mission trip. It was a good trip and they both enjoyed it. Alyssa took care of kids all week while the moms were in a Bible study (they used Beth Moore's Esther study), and Jaren helped pour concrete for the foundation of a new room. There were a few nights that they had a Marriage conference also. Both of them gave their testimony about their relationship, and Alyssa shared a bit of her testimony at the women's study. I am so very proud of them both!
Jaren is currently going to school to be a cop, while working for 2 of our nearby police departments as a Community Service Officer (CSO). He is still a member of the Nat'l Guard, and spends 1 weekend a month and 2 weeks in the summer with them. Hopefully no more trips to Iraq or Afghanistan! He is a busy boy!
Alyssa is still a cheerleading coach, and decided to continue doing it next year too. She loves the job and the girls she coaches! She finished her Assoc. degree in Bus. Management and is looking for a part time job (anyone need a great receptionist or office worker? She has great customer service skills!)
Rachel submitted all her paperwork to the country of her little boy. We are hoping it will be submitted to the judge (or whoever) on Thurs. Then about 2 weeks after that, if it is approved, she will be contacted with the date to go over there! We are getting closer! Rich and I will have Brennan here while Rachel and Ken are overseas. We need to get his room ready!
Sat. Rachel and Ken had the flu, and I had to take Rachel to the ER around 11 pm. She was getting very dehydrated. Also, being diabetic, that can be dangerous. So we went in and she got a couple of bags of fluids, they ran a few blood tests, and we got to go home. I got home a little after 3am. Needless to say, I didn't get up for church Sunday!(I did listen to the sermon online today--very good!) That really threw me off! I think I was either still feeling the effects of the Herceptin, or fighting off the flu myself. We went to Alyssa's for the Superbowl, but left before it was done because I wasn't feeling well. Still tired yesterday, but today I feel pretty good. Sadly, the Steelers lost.
We are trying to plan little trip to see Shonna in KC. We might go this weekend. We want to go see all the Harry Truman stuff in Independence, Mo. Rich and I toured his home about 20 years ago. Shonna is a history buff, like us, and would like to see it too. Her schedule is so busy that Sundays are about the only day she can do anything.
Mom and Dee are going to Mexico soon, for a vacation. I could go, but it's not something I want to spend money on. I'm saving my pennies for a Duluth vacation this summer on my birthday--remember I'm going to be cancer free for this birthday and I want to celebrate because the last 2 I was too sick!
Well, another long and rambling blog entry for you all. HI to my relatives! Hope everyone is healthy and staying warm!
Love and blessings!
Tina
ps I put some new links on the side of my blog. One of them is "This Little Light" (on the blog list) and it's Rachel's blog for orphan advocacy--check it out! Also, her other blog is there too-"Love is sugar free".
I had my 14th Herceptin infusion last Wed. (the 2nd). This one made me more tired than usual. I'm not sure why. I watched Brennan that afternoon, and thankfully Rich came home a little early from work to help out! The next day I made it to Bible Study at 9:30, but I was still really tired. And Friday I took mom to get groceries (she came home from Craig's on Wed. eve), still very tired! It even lasted into the weekend. Also, my stomach was a little upset, sort of gurgly, and moments of nausea. So, in 3 weeks, when I get my next one, I won't plan ANYTHING for the 2 or 3 days after. Except Bible study.
This Friday I have an ultrasound (for female troubles--some of which were caused by radiation--the gift that keeps on giving!), and the Mon. before my next Herceptin I have a CT scan (to make sure the colon cancer didn't spread anywhere) and a MUGA scan (for the heart to make sure the Herceptin isn't doing anymore damage). Sometime in April I will have a mammo and mri, and hopefully after all those tests I will be declared NED (No Evidence of Disease)!! That will be a happy day!!
Enough about me--Alyssa and Jaren are back from their mission trip. It was a good trip and they both enjoyed it. Alyssa took care of kids all week while the moms were in a Bible study (they used Beth Moore's Esther study), and Jaren helped pour concrete for the foundation of a new room. There were a few nights that they had a Marriage conference also. Both of them gave their testimony about their relationship, and Alyssa shared a bit of her testimony at the women's study. I am so very proud of them both!
Jaren is currently going to school to be a cop, while working for 2 of our nearby police departments as a Community Service Officer (CSO). He is still a member of the Nat'l Guard, and spends 1 weekend a month and 2 weeks in the summer with them. Hopefully no more trips to Iraq or Afghanistan! He is a busy boy!
Alyssa is still a cheerleading coach, and decided to continue doing it next year too. She loves the job and the girls she coaches! She finished her Assoc. degree in Bus. Management and is looking for a part time job (anyone need a great receptionist or office worker? She has great customer service skills!)
Rachel submitted all her paperwork to the country of her little boy. We are hoping it will be submitted to the judge (or whoever) on Thurs. Then about 2 weeks after that, if it is approved, she will be contacted with the date to go over there! We are getting closer! Rich and I will have Brennan here while Rachel and Ken are overseas. We need to get his room ready!
Sat. Rachel and Ken had the flu, and I had to take Rachel to the ER around 11 pm. She was getting very dehydrated. Also, being diabetic, that can be dangerous. So we went in and she got a couple of bags of fluids, they ran a few blood tests, and we got to go home. I got home a little after 3am. Needless to say, I didn't get up for church Sunday!(I did listen to the sermon online today--very good!) That really threw me off! I think I was either still feeling the effects of the Herceptin, or fighting off the flu myself. We went to Alyssa's for the Superbowl, but left before it was done because I wasn't feeling well. Still tired yesterday, but today I feel pretty good. Sadly, the Steelers lost.
We are trying to plan little trip to see Shonna in KC. We might go this weekend. We want to go see all the Harry Truman stuff in Independence, Mo. Rich and I toured his home about 20 years ago. Shonna is a history buff, like us, and would like to see it too. Her schedule is so busy that Sundays are about the only day she can do anything.
Mom and Dee are going to Mexico soon, for a vacation. I could go, but it's not something I want to spend money on. I'm saving my pennies for a Duluth vacation this summer on my birthday--remember I'm going to be cancer free for this birthday and I want to celebrate because the last 2 I was too sick!
Well, another long and rambling blog entry for you all. HI to my relatives! Hope everyone is healthy and staying warm!
Love and blessings!
Tina
ps I put some new links on the side of my blog. One of them is "This Little Light" (on the blog list) and it's Rachel's blog for orphan advocacy--check it out! Also, her other blog is there too-"Love is sugar free".
Friday, January 28, 2011
A Video of Me With a Pet Therapy Dog
While at Regions getting chemo last year (sometime in Sept. or Oct., 2010) I was asked if I wanted a visit from a pet therapy dog, and if yes, could it be recorded? I said yes, and received a visit from Chilly. I have met Chilly and his handler, Mary before. I love when the dogs come by to visit. The whole video is interesting, but if you haven't got time to watch it all, my part starts at 13:44. I was reluctant to put this on here, because my face is puffy from steroids, and I have no eyelashes or eyebrows, but the blog is about my experiences with cancer--so here it is! The video is part of a cable program called "Knowledge for Wellness".
Monday, January 24, 2011
January 24th Update
Hey everyone! I haven't been posting much because there just isn't much to say! I am enjoying life, and giving myself time to heal.
I want to mention my sadness over the loss of a sister blogger. She passed away a few days ago after a long battle with stage 4 breast cancer. I knew she was getting worse, but there still seemed to be hope, so this was sort of sudden. She occasionally read my blog, and it is sad writing this one knowing she won't be reading it. We will miss you Daria! Please pray for her husband and family.
Last Thursday, the 20th, was one year since I finished the FOLFOX chemo for colon cancer. Coming up soon will be my 2 year "cancerversary". In about a month I'll have my CT scan to check for more cancer. The thought doesn't make me nervous yet, but we'll see what happens when the date gets closer! Even though I know God is with me, I still wouldn't like to hear there is more cancer!
As far as the breast cancer goes, I will have my next Herceptin infusion next Wed., Feb. 2nd. The infusions are every 3 weeks. I might have to have some labs done because of the bp med I'm taking, but I won't be seeing my onc at this appt. I'll see him next time to go over my CT and MUGA results.
I'm still thinking about whether or not I want to do reconstruction. I've been reading others' experiences, and there is a private website where you can look at pictures of reconstruction. I'm am so grateful to the women who have put their pictures and their stories there to help others. I would probably have to have some sort of "flap" surgery, because radiation affects the skin too much for implants. One of the flap procedures uses the muscle from your back and brings it around to the front. This sounds painful to me! I'm not sure I want to go through a major surgery and 6 week recovery again. We'll see... Any pros and cons from any readers that have gone through this(recon or not) please e-mail me!
I am LOVING my time off! I feel so guilty sometimes, then I remember all I've been through the past 2 years, and I don't feel so guilty anymore! Also, because of my neuropathy I can't work anyways, at least not until it warms up outside! I usually watch Brennan once or twice a week, I have time to IRON (something I always hated to do but mostly because I didn't have time! Rich was happy to have some of his shirts back!), I am helping out at church again ( I do copying and stuff for the Children's Pastor), AND I joined a women's Bible study that is on Thurs. mornings. It's a Beth Moore study called "Breaking Free". It's pretty intense, and helps you overcome anything that might be holding you captive. I have no idea what that might be right now, but I'm pretty sure I'm going to find out! God wanted me at this study for a reason. The study says that "A Christian is held captive by anything that hinders the abundant and effective Spirit-filled life God planned for her". I want that "abundant and effective Spirit-filled life" that God has planned for me! Rachel and Alyssa are doing the study too. Alyssa has also done other Beth Moore studies.
Speaking of Alyssa, she and Jaren are down in Cabo San Lucas on their mission trip right now. They will be building a classroom for the youth in the area and putting on a marriage seminar. She sent me an e-mail after their 1st day. It is warm and beautiful there and she saw some whales in the bay! They asked for prayer for sleep (apparently the bed and pillow are hard as rocks!), and for them not to have any stomach troubles or illness. Also, please pray for the lives they will be touching down there. This is a very poor area where the kids are often left alone during the day. There is lots of drug use also. Pray for the team to be strong in the Lord and the presence of the Holy Spirit to be with them.
Rachel is spending a lot of time trying to get all their paperwork done for the adoption. Many forms have had to be redone more than once. If everything is not PERFECT it has to be redone! They are hoping to be one of the first families called to go over there to adopt their son. Hopefully this will be in March or April!
Shonna is back at school and busy as ever. She works a few hours a week at a nearby library. She will be learning how to play the keyboard and has some sort of singing lessons too, I think. Also choir, theology, and required time in the prayer room. Here is a link to the prayer room. It's great to listen to during your own prayer time or Bible study time.
Well, that's all for today!
Love and blessings!
Tina
I want to mention my sadness over the loss of a sister blogger. She passed away a few days ago after a long battle with stage 4 breast cancer. I knew she was getting worse, but there still seemed to be hope, so this was sort of sudden. She occasionally read my blog, and it is sad writing this one knowing she won't be reading it. We will miss you Daria! Please pray for her husband and family.
Last Thursday, the 20th, was one year since I finished the FOLFOX chemo for colon cancer. Coming up soon will be my 2 year "cancerversary". In about a month I'll have my CT scan to check for more cancer. The thought doesn't make me nervous yet, but we'll see what happens when the date gets closer! Even though I know God is with me, I still wouldn't like to hear there is more cancer!
As far as the breast cancer goes, I will have my next Herceptin infusion next Wed., Feb. 2nd. The infusions are every 3 weeks. I might have to have some labs done because of the bp med I'm taking, but I won't be seeing my onc at this appt. I'll see him next time to go over my CT and MUGA results.
I'm still thinking about whether or not I want to do reconstruction. I've been reading others' experiences, and there is a private website where you can look at pictures of reconstruction. I'm am so grateful to the women who have put their pictures and their stories there to help others. I would probably have to have some sort of "flap" surgery, because radiation affects the skin too much for implants. One of the flap procedures uses the muscle from your back and brings it around to the front. This sounds painful to me! I'm not sure I want to go through a major surgery and 6 week recovery again. We'll see... Any pros and cons from any readers that have gone through this(recon or not) please e-mail me!
I am LOVING my time off! I feel so guilty sometimes, then I remember all I've been through the past 2 years, and I don't feel so guilty anymore! Also, because of my neuropathy I can't work anyways, at least not until it warms up outside! I usually watch Brennan once or twice a week, I have time to IRON (something I always hated to do but mostly because I didn't have time! Rich was happy to have some of his shirts back!), I am helping out at church again ( I do copying and stuff for the Children's Pastor), AND I joined a women's Bible study that is on Thurs. mornings. It's a Beth Moore study called "Breaking Free". It's pretty intense, and helps you overcome anything that might be holding you captive. I have no idea what that might be right now, but I'm pretty sure I'm going to find out! God wanted me at this study for a reason. The study says that "A Christian is held captive by anything that hinders the abundant and effective Spirit-filled life God planned for her". I want that "abundant and effective Spirit-filled life" that God has planned for me! Rachel and Alyssa are doing the study too. Alyssa has also done other Beth Moore studies.
Speaking of Alyssa, she and Jaren are down in Cabo San Lucas on their mission trip right now. They will be building a classroom for the youth in the area and putting on a marriage seminar. She sent me an e-mail after their 1st day. It is warm and beautiful there and she saw some whales in the bay! They asked for prayer for sleep (apparently the bed and pillow are hard as rocks!), and for them not to have any stomach troubles or illness. Also, please pray for the lives they will be touching down there. This is a very poor area where the kids are often left alone during the day. There is lots of drug use also. Pray for the team to be strong in the Lord and the presence of the Holy Spirit to be with them.
Rachel is spending a lot of time trying to get all their paperwork done for the adoption. Many forms have had to be redone more than once. If everything is not PERFECT it has to be redone! They are hoping to be one of the first families called to go over there to adopt their son. Hopefully this will be in March or April!
Shonna is back at school and busy as ever. She works a few hours a week at a nearby library. She will be learning how to play the keyboard and has some sort of singing lessons too, I think. Also choir, theology, and required time in the prayer room. Here is a link to the prayer room. It's great to listen to during your own prayer time or Bible study time.
Well, that's all for today!
Love and blessings!
Tina
Wednesday, January 12, 2011
Herceptin #13 Update
Wow, it's been 2 weeks since I posted last! I think about it a lot, I just don't like taking the time to do it!
Last week I had another MUGA scan (for heart function). My heart function was 65% before I started treatment (which is very good), and after starting Herceptin it went down to 51. Then my onc. put me on Enalapril (a blood pressure med), and my heart function has increased to 56! And I haven't had any side effects from the med. I was worried about my bp dropping too low, but I am on a very low dose and am tolerating it well.
Other good news--my hemoglobin finally made it up to 12, which is the bottom of the normal range. It hasn't been normal since last April.
We scheduled some upcoming tests--a CT scan and another MUGA on Feb. 21st (6 weeks), and an MRI and mammogram sometime in April. The CT scan is for the colon cancer--to watch for a recurrence. My onc. wants me to have them every 6 months for awhile. He said because I'm so young, he wants to make sure if anything does show up again we catch it early. He did say, though, that he thinks we did a pretty good job of fighting it so it shouldn't come back!
I do not need another colonoscopy for 2 years (3 years from my last one), and after this mammo and mri I won't need another one for a year.
Some side effects I still have are neuropathy (numbness) in my fingers and feet, and just tired and out of shape! I am starting to work on building my strength and stamina. I have a lot of damage from the colon cancer radiation, and also issues that have to do with missing 18" of my colon! These are annoyances that I will have to live with, although they may get better with time. I am also praying that God will take these problems away and restore to me what cancer has taken. I can be very persistent! I also need to continue to stretch my left arm and shoulder, or it quickly stiffens up. When I had my MUGA last week I had to have my left arm above my head for 10 minutes and that really hurt! Stretching helps a lot, I guess I just have to keep doing it!
I am very pleased with how well my skin did with radiation. I was expecting much worse! The scar area peeled, but it didn't hurt. The whole area, including by the clavicle, is tan looking, and will probably always be that way. I will need to protect it with sunscreen anytime it's exposed (like with tank tops and scoop neck tops) for the rest of my life.
Family update: Shonna is still here on break. She goes back to KC this weekend. Alyssa and Jaren will be leaving on a mission trip next weekend (the 22nd). Rachel and Ken are almost ready to submit all their paperwork to the country they are adopting from. Hopefully they will get to go over sometime in March or April. They have to wait for the country to contact them with the date.
Life is good! God is better!!
Love and blessings!
Tina
Last week I had another MUGA scan (for heart function). My heart function was 65% before I started treatment (which is very good), and after starting Herceptin it went down to 51. Then my onc. put me on Enalapril (a blood pressure med), and my heart function has increased to 56! And I haven't had any side effects from the med. I was worried about my bp dropping too low, but I am on a very low dose and am tolerating it well.
Other good news--my hemoglobin finally made it up to 12, which is the bottom of the normal range. It hasn't been normal since last April.
We scheduled some upcoming tests--a CT scan and another MUGA on Feb. 21st (6 weeks), and an MRI and mammogram sometime in April. The CT scan is for the colon cancer--to watch for a recurrence. My onc. wants me to have them every 6 months for awhile. He said because I'm so young, he wants to make sure if anything does show up again we catch it early. He did say, though, that he thinks we did a pretty good job of fighting it so it shouldn't come back!
I do not need another colonoscopy for 2 years (3 years from my last one), and after this mammo and mri I won't need another one for a year.
Some side effects I still have are neuropathy (numbness) in my fingers and feet, and just tired and out of shape! I am starting to work on building my strength and stamina. I have a lot of damage from the colon cancer radiation, and also issues that have to do with missing 18" of my colon! These are annoyances that I will have to live with, although they may get better with time. I am also praying that God will take these problems away and restore to me what cancer has taken. I can be very persistent! I also need to continue to stretch my left arm and shoulder, or it quickly stiffens up. When I had my MUGA last week I had to have my left arm above my head for 10 minutes and that really hurt! Stretching helps a lot, I guess I just have to keep doing it!
I am very pleased with how well my skin did with radiation. I was expecting much worse! The scar area peeled, but it didn't hurt. The whole area, including by the clavicle, is tan looking, and will probably always be that way. I will need to protect it with sunscreen anytime it's exposed (like with tank tops and scoop neck tops) for the rest of my life.
Family update: Shonna is still here on break. She goes back to KC this weekend. Alyssa and Jaren will be leaving on a mission trip next weekend (the 22nd). Rachel and Ken are almost ready to submit all their paperwork to the country they are adopting from. Hopefully they will get to go over sometime in March or April. They have to wait for the country to contact them with the date.
Life is good! God is better!!
Love and blessings!
Tina
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