I've been thinking of writing this blog post since the end of August! I realize I've lost most of my readers by now, but I would still like to share the "after cancer" life. Many who stop by here have cancer, and I feel it might be helpful for them to know what life might be like after treatment is over. Also, it's important to me to let others, who haven't experienced cancer, know what life can be like.
How many of you thought that if you get cancer, and it hasn't spread, that you go through some treatments that make you sick and lose your hair, and then when you are finished you go on your merry way--never to think about cancer again? Show of hands?? Mine is raised too! I think I probably realized that life might be a little different for a survivor--you know, they stop and smell the roses more, that type of thing. Let me share a bit with you what life is really like.
FOLFOX is the standard chemo regimen for colorectal cancer. It does a great job of killing cancer cells. It also kills good things--like nerves, hair follicles, toenails, the skin on the hands and feet, etc. I've heard of people losing their hearing and having heart attacks from it. If you've ever had FOLFOX, you will probably have some sort of after effects from it. 4.5 years after finishing, I still have burning, numbness, and tingling in my hands and feet. I also had AC+T chemo for breast cancer. I completely lost my hair (which is still thinner now than before), and the Taxol made my neuropathy worse. It's another nasty combo that can also cause heart trouble.
Then there is the colon surgery. If you are fortunate enough to have a tumor that is high in the colon, you may not have as many issues as a person with a low tumor. But it is still a major surgery, and your colon will work differently, and there is always the risk of strictures and blockages caused by scar tissue. People with low tumors (like mine) have all sorts of changes in their bowels. Some days they can hardly leave the bathroom, and then, without warning they can be constipated for for several days. Some can't work because the issues are so bad. Some who had a temporary stoma, that was reversed and their colon was reconnected, have asked to go back to a bag because having to constantly "go" is ruining their life. Breast cancer surgery can cause "frozen shoulder" which can last for years, and some people never regain full use of their arm/s. Some surgeries move muscle around and then those people need physical therapy, and, again, they may never be able to get back to where they were before surgery. If lymph nodes are removed that person will always be at risk for lymphedema--which is swelling in the arm. They may need special massages, phys. therapy, and wear special sleeves. Once it starts, it never goes away. Oh, and it's usually not just one surgery for breast cancer, but many, over the course of many years. Did you expect your co-worker who had breast surgery to come back to work and be able to lift and carry and do everything they did before? Well, they may need to do things differently, and may be gone a lot for therapies and surgeries--be kind to them! And pray it never happens to you!
Some people who have cancer also have to have radiation. I had it for both my colorectal cancer, and my breast cancer. For some, this is the worst of all. There are lots of internal organs that also get blasted, esp. when the cancer is in the stomach or pelvic area. There are too many problems that can happen to even list here. Some are scar tissue build-up, colon and bladder scar tissue and bleeding, skin that never heals or is always easily irritated, weakening of structures that can lead to fistulas, hernias, and ruptures, and on and on. Other than tightening of the skin on my chest and armpit, I have not had too many side effects of the rads I had for breast cancer. It most likely caused some scarring on my heart and lungs, but hopefully I will never notice that. It also increased my risk for skin cancer and lung cancer--it is radiation after all! Both chemo and rads increase risk for cancer in the future.
Ok, those are only some things that can happen to colorectal and breast cancer survivors--there are many other types of cancer, each with their own set of problems. If you read all that, I want to thank you. You are a person who cares about others and wants to be aware of what people with cancer go through. Expecting your friend, co-worker, or loved one to be back to "normal" after their cancer is gone is not helpful. Ask them how they are doing, what side effects they still have, what help they may still need. I have a friend that just finished a long and difficult treatment for stage 4 colorectal cancer, and she is getting a break, but no one knows for how long. Her family has been pressuring her to go back to work, and they don't want to hear about any of her problems--she was even told she was making stuff up while she was still getting chemo!! I can't imagine! I'm sooooo very thankful for my family. They know I still have some difficult days, and sometimes I need to miss an event (which when I do I usually end up in tears because I'm sad and frustrated I have to stay home!). Thankfully, those days are getting fewer. 5.5 years out from my colon resection things are still slowly improving. I'm STILL learning what I can and can't eat, although sometimes there is just no rhyme or reason to it! Overall, I am doing better, and even my fatigue is better and I'm not completely exhausted every day after work.
Today is a "bad tummy" day, which causes me a lot of pain (you know, all those radiated areas!), and I came home from work and took a pain pill. (Which is why I have time to sit and write this--I can't do much else right now!) I hurt so bad that I wasn't going to suffer one more minute! Taking a pain pill is very rare--I took a 1/2 a pill about 2-3 weeks ago, and before that it had been about 6 weeks since I needed one. I had another surgery on my backside in Aug, and will need another one soon. Repairing things "back there" is tricky. One wrong cut could leave me needing diapers or a colostomy (bag) for the rest of my life. Also, radiated skin doesn't heal very well, so I could end up with a gaping wound that takes months and months to heal.
I had acupuncture this summer for neuropathy, and it helped a bit, but I think I'll save that for another post. I also need to tell you about my trip to Florida with my "Pearls" (breast cancer sisters!)! There are some blessings that came out of my cancer journey, and they are a huge blessing to me!
So, that gives me a few reasons to update again soon! If anyone with cancer comes across this blog, and wants to talk more, my e-mail address is nuttyoaks at gmail dot com. I have some great resources I can share with you, and am always willing to share my experiences and help you through your treatment!
God bless you all! Look for another update soon!
Tina
Showing posts with label colon cancer. Show all posts
Showing posts with label colon cancer. Show all posts
Tuesday, October 7, 2014
Friday, March 7, 2014
Neglected Blog!
Well now, I've neglected this blog for over 6 months! Anyone just stopping by for the first time, make sure you check out the tab at the top labeled "My Journey". That will give you an overview of my 2 cancers and treatments, and also give you links to take you to the beginning of each cancer diagnosis.
I recently had several tests done and met with my oncologist for my 6 month check up. I've had CT scans of my chest, abdomen, and pelvis, a brain MRI, lots of labs, a mammogram, and .....I think that's it, although I feel like I'm missing something. Bottom line---everything looks good!! And yes, I DO have a brain! ;)
I won't have to have any more CT scans, because I've reached my 5 year anniversary for the colon cancer, which means NO MORE colon cancer! I will still have a chest MRI for the breast cancer, and see my onc. every 6 months.
My brain MRI was because of some unusual headaches I've been having. Still don't know what's causing them, but it's not brain cancer (THANK YOU LORD!!!!!). That is the only test that has really scared me. I REALLY was afraid that they might find a tumor up there. I can handle tumors almost anywhere else--just NOT MY BRAIN.
The other thing I've been having issues with is the neuropathy in my feet. I talked to my primary physician, and she put me on Neurontin (gabepentin). I only stayed on it 9 days because it made me so groggy. I was supposed to double the dose on day 14, but there was no way I was going to do that. My onc. wants me to try acupuncture, which surprised me because he's sort of a skeptic about things, but we've both heard many people say they've had improvement with it. I haven't done it yet...I keep forgetting to call my insurance to see if they cover it. If that doesn't work, Cymbalta might help. My neuropathy isn't too bad, but the burning feeling on the bottoms of my feet has been getting worse. It's never terribly painful, just annoying. It hurts worse when I've been on my feet a lot, or with any extreme temperature. Too hot or too cold--they both cause that burning feeling.
Stomach/digestive issues are still there, but probably always will be due to the type of colon resection surgery I had (Low Anterior Resection). Things are better, but I find the side effects from cancer treatment to be very annoying some days. I get tired of it and it gets me down sometimes. I realized a while ago that I am almost always in some kind of pain/discomfort--no wonder I feel blue sometimes! But don't worry, overall I feel happy and blessed! Because, hey, I'm alive and cancer free, right?? :)
Well, that's my little update for now. March is Colorectal Cancer Awareness month, so if you are over 50, and haven't had your colonoscopy, GO GET IT DONE ASAP. Colorectal cancer can be PREVENTED by getting your screenings done! If you are younger and have any bowel changes, bleeding, etc. INSIST on getting a colonoscopy. More and more young people are getting colon and rectal cancer now. The best way to fight this disease is to catch it early!
Blessings!!
Tina
I recently had several tests done and met with my oncologist for my 6 month check up. I've had CT scans of my chest, abdomen, and pelvis, a brain MRI, lots of labs, a mammogram, and .....I think that's it, although I feel like I'm missing something. Bottom line---everything looks good!! And yes, I DO have a brain! ;)
I won't have to have any more CT scans, because I've reached my 5 year anniversary for the colon cancer, which means NO MORE colon cancer! I will still have a chest MRI for the breast cancer, and see my onc. every 6 months.
My brain MRI was because of some unusual headaches I've been having. Still don't know what's causing them, but it's not brain cancer (THANK YOU LORD!!!!!). That is the only test that has really scared me. I REALLY was afraid that they might find a tumor up there. I can handle tumors almost anywhere else--just NOT MY BRAIN.
The other thing I've been having issues with is the neuropathy in my feet. I talked to my primary physician, and she put me on Neurontin (gabepentin). I only stayed on it 9 days because it made me so groggy. I was supposed to double the dose on day 14, but there was no way I was going to do that. My onc. wants me to try acupuncture, which surprised me because he's sort of a skeptic about things, but we've both heard many people say they've had improvement with it. I haven't done it yet...I keep forgetting to call my insurance to see if they cover it. If that doesn't work, Cymbalta might help. My neuropathy isn't too bad, but the burning feeling on the bottoms of my feet has been getting worse. It's never terribly painful, just annoying. It hurts worse when I've been on my feet a lot, or with any extreme temperature. Too hot or too cold--they both cause that burning feeling.
Stomach/digestive issues are still there, but probably always will be due to the type of colon resection surgery I had (Low Anterior Resection). Things are better, but I find the side effects from cancer treatment to be very annoying some days. I get tired of it and it gets me down sometimes. I realized a while ago that I am almost always in some kind of pain/discomfort--no wonder I feel blue sometimes! But don't worry, overall I feel happy and blessed! Because, hey, I'm alive and cancer free, right?? :)
Well, that's my little update for now. March is Colorectal Cancer Awareness month, so if you are over 50, and haven't had your colonoscopy, GO GET IT DONE ASAP. Colorectal cancer can be PREVENTED by getting your screenings done! If you are younger and have any bowel changes, bleeding, etc. INSIST on getting a colonoscopy. More and more young people are getting colon and rectal cancer now. The best way to fight this disease is to catch it early!
Blessings!!
Tina
Monday, August 26, 2013
Past...Present...Future
I recently got an e-mail notification that someone left a comment on my last blog entry...which was in March! I couldn't believe it had been that long...surely I updated in May or June? Nope. So, I'm pretty sure no one will read this, but I thought it was time to do a little update!
Since my last update I've had a DEXA (bone density) scan, MRI, CT scans, labs, and port flushes. All is well! My bones show some "pre" osteoporosis, so I need to take calcium (which I keep forgetting to take!). I'm still eating mostly low-residue, but have the occasional wheat bread, salad, fruits, and veggies. The trick is to spread them out throughout the week, and not overdo it. I mostly avoid carrots, cucumbers, and spaghetti sauce, but might have a small amount now and then.
I see my oncologist in 2 days, but not sure what we will talk about since I already have all the results of the tests I did last week! I'm sure he'll ask about Rich, my grandchildren, and especially my adopted grandson, Charlie. This time I'll have some more family news to share! (More on that later...) I am most interested to find out if I can start going 1 year between scans, and do I really need those labs every 3 months? I am 4.5 years out from the colon cancer dx, and 3.5 years from the breast cancer dx. I know my onc. was worried about me, with all that cancer, but I'm doing well now. And as our insurance covers less and less, we have to pay more and more of the costs of all the tests!
My worst complaint has been fatigue. I planned to work on that this summer, and talk to my primary care physician (PCP) if things didn't improve. I think the fatigue has improved a bit. Last summer, even though I don't work in the summer, I was still tired a lot. Many days, by mid-afternoon, I was just as tired as if I had worked. Not good. Then of course during the school year I felt awful. I worked 4.25 hours, and then came home and could barely function most days. I was VERY frustrated! I do know my job is draining, and does sap a lot of my energy (I don't know how anyone lasts for 6.5 hours, much less the teachers who work WAY beyond that!), but I shouldn't feel that bad! So, this summer, I have been eating a bit better--cutting down on chemicals and processed foods--and exercising more (which I will do when I'm done writing this). I am eating less, and have lost just a few pounds, but at least I've made the scale go down instead of up for the first time since chemo! I'm learning what my body can do with and without (my body does NOT like to be hungry). I started using the 'myfitnesspal' website, which counts calories for you, and helps you figure out how many calories you need each day to lose the amount you want to lose. It's been helpful for portion control. So, overall, I feel better.
I start back to work a week from tomorrow! I REALLY, REALLY hope I feel better this year! I get done with work at 1:30, which should leave me plenty of time to do other stuff. Praying I have the energy I need! As much as I would love to not have to work at all, I do think getting back into a routine is good for me. I make better use of my time when there is routine. And I really do like working with the kids!
I see my oncologist in 2 days, but not sure what we will talk about since I already have all the results of the tests I did last week! I'm sure he'll ask about Rich, my grandchildren, and especially my adopted grandson, Charlie. This time I'll have some more family news to share! (More on that later...) I am most interested to find out if I can start going 1 year between scans, and do I really need those labs every 3 months? I am 4.5 years out from the colon cancer dx, and 3.5 years from the breast cancer dx. I know my onc. was worried about me, with all that cancer, but I'm doing well now. And as our insurance covers less and less, we have to pay more and more of the costs of all the tests!
My worst complaint has been fatigue. I planned to work on that this summer, and talk to my primary care physician (PCP) if things didn't improve. I think the fatigue has improved a bit. Last summer, even though I don't work in the summer, I was still tired a lot. Many days, by mid-afternoon, I was just as tired as if I had worked. Not good. Then of course during the school year I felt awful. I worked 4.25 hours, and then came home and could barely function most days. I was VERY frustrated! I do know my job is draining, and does sap a lot of my energy (I don't know how anyone lasts for 6.5 hours, much less the teachers who work WAY beyond that!), but I shouldn't feel that bad! So, this summer, I have been eating a bit better--cutting down on chemicals and processed foods--and exercising more (which I will do when I'm done writing this). I am eating less, and have lost just a few pounds, but at least I've made the scale go down instead of up for the first time since chemo! I'm learning what my body can do with and without (my body does NOT like to be hungry). I started using the 'myfitnesspal' website, which counts calories for you, and helps you figure out how many calories you need each day to lose the amount you want to lose. It's been helpful for portion control. So, overall, I feel better.
I start back to work a week from tomorrow! I REALLY, REALLY hope I feel better this year! I get done with work at 1:30, which should leave me plenty of time to do other stuff. Praying I have the energy I need! As much as I would love to not have to work at all, I do think getting back into a routine is good for me. I make better use of my time when there is routine. And I really do like working with the kids!
A little family update: Rich is doing well at his new job--he's been there about a year and a half. Pay and benefits are good, and it's just 'normal' work stress, not the stress and low morale of his previous job. SO BLESSED to be out of that place! His drive is too long (26 miles one way), and sometimes we worry about lay-offs, but over all it's good.
Rachel and her husband are doing foster care now, and are in the process of adopting another child! This is a child placed with them soon after they got their license. He's 2 and has down syndrome also. He is active, and smart, and lets you know what he thinks about things! :) They also have a very sweet little baby girl that we would all love to keep in the family, but it looks like the baby's mom will be able to take her to live with her soon. Praying God will do what's best for baby, and if she has to go, I hope we'll still be able to see her once in awhile! Rachel's older 2 boys are doing very well, even with other kids coming and going! Charlie just turned 6 and will be in kindergarten this year! He is our super-hero! Brennan will be 4 soon. He is as smart as ever, and there is no end to the amusing things he says! Love those boys!
Alyssa, hubby, and baby girl are doing GREAT. Selah is 10 months old. She is really picking up things fast--she always amazes us! She'll be walking soon, I think. She is soooo adorable! We get to watch her often, and she is a smiley, happy little girl!
Our youngest, Shonna, is starting her 2nd year at the U, and she is majoring in journalism. She has a lot of talent as a writer. She is a junior now, and has 3 semesters left. She may get a minor also (but I forgot in what! Oops!). She moved out of my sister's house into an apartment closer to school. I don't always see her as often as I would like, but we did get to spend some time shopping and antiquing recently, and I enjoyed that!
Our youngest, Shonna, is starting her 2nd year at the U, and she is majoring in journalism. She has a lot of talent as a writer. She is a junior now, and has 3 semesters left. She may get a minor also (but I forgot in what! Oops!). She moved out of my sister's house into an apartment closer to school. I don't always see her as often as I would like, but we did get to spend some time shopping and antiquing recently, and I enjoyed that!
We all managed to get to Duluth for a few days this summer. Alyssa, hubby, baby, and Shonna were with us at the beginning, then Shonna's boyfriend joined us, then Alyssa and fam had to leave, and Rachel and her 4 kids joined us the last day! So we got to spend time with everyone (except Rachel's husband), just not at the same time! Next year I'm thinking about staying at a resort/lodge/cabin type of place a little farther up, right on Lake Superior. I think it would be better for the kids if we can find a place that has a nice play area and beach. I'm still thinking about getting away with just my hubby for a night or two up north this fall. We'll see~we might be too busy building a deck!
When I stop to think about where I was this time 4 years ago, I am amazed that I am here, cancer-free, and so blessed. 4 years ago I had just finished radiation, was weak and tired, was being treated for C-diff and giving myself shots for a blood clot, and had endured a very painful summer. I was healing and gaining my strength back to do 8 more rounds of FOLFOX. Little did I know the next summer I would be doing another difficult chemo regimen for breast cancer! That is all behind me now. These last scans I didn't even have any "scanxiety", except for that brief moment when I saw my oncologist's phone number on my cell phone. His nurse was calling me to tell me all my tests were good!
I make a point of remembering what I've been through every now and then, because it helps me to be grateful for every moment I am blessed with. It reminds me of the wonderful ways God showed up for me and helped me through those difficult times.
My future? It looks fabulous. Retirement someday with the man I love, doing the things we love and enjoy, being a grandma, and spending time with my children, grandchildren, and foster "grandchildren". Yep, looks pretty good from here!
Love and blessings!
Love and blessings!
Tina
PS Rich and I also went on our first 'real' vacation together in June--we went to Las Vegas! But that is another story for another day... ;)
Monday, March 25, 2013
March 2013 Update
Hello there!
It's almost the end of March and we still have LOTS of snow! Our temps are running about 10 degrees below normal, but at least the sun has been out the last few days, and the snow is slowly melting. Easter is this coming Sunday already! We will be having everyone over to our house for a buffet lunch. My house will be FULL. May have to come up with a different plan next year, as there just isn't enough room in my house for our growing families!
I have been spending a lot of my online time on some private Facebook groups for those affected by colon cancer. If you know anyone with ANY type of colon/rectal/anal issue (including crohn's, IBS, colitis, cancer), tell them to search FB for COLONTOWN. This is the main group, and from there you can join the different 'neighborhoods' that are more specific to your particular issue, including a group for caretakers. It's all private, so talk about colons, rectums, and bodily functions are the norm there! It's a blessing for me to FINALLY connect with others who understand what I'm going through. We all help each other and share ideas on what works and what doesn't. I've gotten some good advice there for my on-going issues, and things have improved for me. I'm still hoping to improve things more, but at least my problems are better than they were.
Being in this community makes me aware, once again, of the many, many people with colorectal cancer. There are those on there that are newly diagnosed, and they will finish chemo and have a good prognosis, like me. Then there are those that are stage 4, and will be on chemo, off and on, for the rest of their lives. And, lately, there seems to be many (WAY TOO MANY) who are dying from this horrible disease. Almost daily there are posts that someone passed away. Sometimes this gets into my head a bit, and I start to worry more about a recurrence. I start to think in terms of when, not if. Thankfully, God knows those troubling thoughts I am having, and He reminds me to put my focus on HIM. I don't need to fear ANYTHING. That is such a freeing thought! Whether I am sick, healthy, rich, poor, dying--none of it matters. God has given me eternal life, and He is with me every moment of every day. Nothing is too big for Him. What a relief to know He has my back! Whew!
Soon I'll get a break from Dr. appointments and tests (I hope!). I had to have another minor surgery on my bum, and the worst part was the 9 pokes it took to get my IV started! Over 2 weeks later I can still see the bruise on the back of my hand! The surgery went well though, and I had very little pain after. I had a DEXA bone density scan last week, and hope to get the results of that soon. That is an easy scan--no IVs or anything! Chemo can damage/weaken the bones, and so can menopause (which started early for me because of chemo/radiation), so we are just checking to see if my bones are still strong. I have a post-op appt. this week, then a port flush appt. next week. Then I really should make an eye dr. appt. and dentist appt. Sheesh! It's always something~I've already met my deductible for the year, and it's only March!
Well, that's my March update. All the kids and grandkids are doing well! My oldest and her husband will soon be licensed to do foster care, so we are all excited about that. I hope I have enough energy to help her out! Thankfully summer is only a few months away and I'll be off work for a bit. :)
God bless each one of you!
Tina
It's almost the end of March and we still have LOTS of snow! Our temps are running about 10 degrees below normal, but at least the sun has been out the last few days, and the snow is slowly melting. Easter is this coming Sunday already! We will be having everyone over to our house for a buffet lunch. My house will be FULL. May have to come up with a different plan next year, as there just isn't enough room in my house for our growing families!
I have been spending a lot of my online time on some private Facebook groups for those affected by colon cancer. If you know anyone with ANY type of colon/rectal/anal issue (including crohn's, IBS, colitis, cancer), tell them to search FB for COLONTOWN. This is the main group, and from there you can join the different 'neighborhoods' that are more specific to your particular issue, including a group for caretakers. It's all private, so talk about colons, rectums, and bodily functions are the norm there! It's a blessing for me to FINALLY connect with others who understand what I'm going through. We all help each other and share ideas on what works and what doesn't. I've gotten some good advice there for my on-going issues, and things have improved for me. I'm still hoping to improve things more, but at least my problems are better than they were.
Being in this community makes me aware, once again, of the many, many people with colorectal cancer. There are those on there that are newly diagnosed, and they will finish chemo and have a good prognosis, like me. Then there are those that are stage 4, and will be on chemo, off and on, for the rest of their lives. And, lately, there seems to be many (WAY TOO MANY) who are dying from this horrible disease. Almost daily there are posts that someone passed away. Sometimes this gets into my head a bit, and I start to worry more about a recurrence. I start to think in terms of when, not if. Thankfully, God knows those troubling thoughts I am having, and He reminds me to put my focus on HIM. I don't need to fear ANYTHING. That is such a freeing thought! Whether I am sick, healthy, rich, poor, dying--none of it matters. God has given me eternal life, and He is with me every moment of every day. Nothing is too big for Him. What a relief to know He has my back! Whew!
Soon I'll get a break from Dr. appointments and tests (I hope!). I had to have another minor surgery on my bum, and the worst part was the 9 pokes it took to get my IV started! Over 2 weeks later I can still see the bruise on the back of my hand! The surgery went well though, and I had very little pain after. I had a DEXA bone density scan last week, and hope to get the results of that soon. That is an easy scan--no IVs or anything! Chemo can damage/weaken the bones, and so can menopause (which started early for me because of chemo/radiation), so we are just checking to see if my bones are still strong. I have a post-op appt. this week, then a port flush appt. next week. Then I really should make an eye dr. appt. and dentist appt. Sheesh! It's always something~I've already met my deductible for the year, and it's only March!
Well, that's my March update. All the kids and grandkids are doing well! My oldest and her husband will soon be licensed to do foster care, so we are all excited about that. I hope I have enough energy to help her out! Thankfully summer is only a few months away and I'll be off work for a bit. :)
God bless each one of you!
Tina
Monday, February 11, 2013
Four Years!
February 6th was the 4 year anniversary of my tumor being found during a colonoscopy. I was having some symptoms that my primary Dr.(pcp) and gastro Dr. both thought were irritable bowel or colitis. Thankfully, before my pcp looked further into my symptoms, she wanted me to have a colonoscopy, and then we'd know more what we were dealing with. We were ALL surprised when the tumor was found. The gastro doc doing the procedure saw it right away (I was given some good drugs, but was fully awake) and said "See that? That shouldn't be there". After the exam the doc came in and told us he was sure it was cancer, although we needed to wait for the pathology report for the 'official' word. I am so grateful Rich was with me! We just held each other when the Dr. left. Then he came back, and told me he had set up a CT scan for me that afternoon. Things moved really fast! I remember the nurse giving me a hug when she walked us out and telling me I was going to be ok. That was so sweet, and yet scared me because I didn't really realize the gravity of the situation yet. Thanks to my 'happy drugs', I wasn't too upset yet--I told Rich in the truck after to stop looking so gloomy! Poor guy, he just found out his wife had cancer! I'm sure he was overwhelmed! (I don't think I'll ever know how hard all of this was on him, as he did a good job of keeping it from me. He was an EXCELLENT caregiver, and I'll always be grateful for that!)
Like I said, things moved quickly. My CT scan didn't show any other areas of cancer (except a possible lymph node). My gastro doc also contacted a surgeon, and an appt. to see him was scheduled, then my pre-op, then the surgery on Feb. 20th, just 2 weeks later. During surgery, 18" of my colon was removed and I was able to be reconnected. I came close to needing a colostomy, but am thankful I didn't! It was a tough surgery, and I was in the hospital 8 days. 2 of 20 lymph nodes had cancer, and I was stage 3b.
My wonderful oncologist told me this type of cancer could be CURED. Because of my young age (44), I was given everything they could possibly throw at me! None of my chemos were reduced, even with bad side effects. Once he even let me get chemo when my counts were really low--the nurse had to go ask him if the orders were correct! But he knew my counts always bounced back quickly when I had a neupogen shot, so he wasn't worried! I think it made a difference that my onc knew me well enough to know that I really wanted to complete all the treatments. If I had said it was too hard and I wanted to back off a bit he probably would have, as I think he would have respected my wishes. Same thing with radiation. That was even more difficult, and I was told I didn't need to finish, but it was important to me to finish those last 3, and I did! Although, I have to say, I never realized all the side effects I would have to live with!
Sometimes I have a hard time remembering how awful it all was, and other times I remember too well! I get frustrated dealing with painful side effects, but mostly, I am just so glad to be living life, cancer free. I am enjoying my children and grandchildren. My girls are such a blessing to me! They really stepped up and did everything they could to help me get through those tough days of cancer treatment. I'm sure it was hard to watch their mom get cancer TWICE. They are amazing young women!
Enough reminiscing...my 6 month CT scans are coming up next Monday, Feb. 18th. I'll also get my labs done that day too. Then the following week I see my oncologist and have a mammogram. This coming Thurs. (the 14th) I'll see my colorectal surgeon about the fistula, and I'm thinking I'll have to have surgery on that soon. That is a side effect from surgery and radiation. :(
1 more year and I'll hit that 5 year mark! I'm going to ask Dr. J about being 'cured'; if that still fits my case or not. I don't remember if the breast cancer will ever be considered cured--maybe because I was only stage 2b, I can be cured of that too. I'm not sure--I hope I remember to ask! April 1st will be 3 years from the breast cancer diagnosis.
Life goes on, and God is good! :)
Love,
Tina
Like I said, things moved quickly. My CT scan didn't show any other areas of cancer (except a possible lymph node). My gastro doc also contacted a surgeon, and an appt. to see him was scheduled, then my pre-op, then the surgery on Feb. 20th, just 2 weeks later. During surgery, 18" of my colon was removed and I was able to be reconnected. I came close to needing a colostomy, but am thankful I didn't! It was a tough surgery, and I was in the hospital 8 days. 2 of 20 lymph nodes had cancer, and I was stage 3b.
My wonderful oncologist told me this type of cancer could be CURED. Because of my young age (44), I was given everything they could possibly throw at me! None of my chemos were reduced, even with bad side effects. Once he even let me get chemo when my counts were really low--the nurse had to go ask him if the orders were correct! But he knew my counts always bounced back quickly when I had a neupogen shot, so he wasn't worried! I think it made a difference that my onc knew me well enough to know that I really wanted to complete all the treatments. If I had said it was too hard and I wanted to back off a bit he probably would have, as I think he would have respected my wishes. Same thing with radiation. That was even more difficult, and I was told I didn't need to finish, but it was important to me to finish those last 3, and I did! Although, I have to say, I never realized all the side effects I would have to live with!
Sometimes I have a hard time remembering how awful it all was, and other times I remember too well! I get frustrated dealing with painful side effects, but mostly, I am just so glad to be living life, cancer free. I am enjoying my children and grandchildren. My girls are such a blessing to me! They really stepped up and did everything they could to help me get through those tough days of cancer treatment. I'm sure it was hard to watch their mom get cancer TWICE. They are amazing young women!
Enough reminiscing...my 6 month CT scans are coming up next Monday, Feb. 18th. I'll also get my labs done that day too. Then the following week I see my oncologist and have a mammogram. This coming Thurs. (the 14th) I'll see my colorectal surgeon about the fistula, and I'm thinking I'll have to have surgery on that soon. That is a side effect from surgery and radiation. :(
1 more year and I'll hit that 5 year mark! I'm going to ask Dr. J about being 'cured'; if that still fits my case or not. I don't remember if the breast cancer will ever be considered cured--maybe because I was only stage 2b, I can be cured of that too. I'm not sure--I hope I remember to ask! April 1st will be 3 years from the breast cancer diagnosis.
Life goes on, and God is good! :)
Love,
Tina
Tuesday, November 27, 2012
Another Update
Well, don't know if anyone is out there reading this any more, but thought it was time for an update. I've written blog posts in my head many times, but for some reason I just haven't taken the time to actually write it here!
As always, I'll start with a health update. I saw both my colorectal surgeon (Dr.T) and my oncologist (Dr. J) a few weeks ago. The fistula has been bleeding more, and apparently something came loose, and Dr.T fixed it. I found out she does colonoscopies (I had been going to a gastro doc for my previous scopes) and told her I'd like to see her for my next one, which is due in March. Because there has been some bleeding, Dr. T. said insurance wouldn't have a problem with doing it sooner, and she figured my deductible has probably been met for the year, so we may as well get it done. She assured me, a couple of times, that she doesn't think the bleeding means there is anything wrong, and I agree. Because of the radiation damage and fistula, there will always be some bleeding. So, I am scheduled to have my colonoscopy next Monday, Dec. 3rd (yikes!).
My 3 month check up with Dr. J went well. My blood tests are all ok, although my hemoglobin and red blood cell count both dropped a little. Dr. J wasn't too concerned, and I told him I started taking a daily iron pill. He checked my reflexes this time, and my wrists and knees were fine, but my ankles still don't respond. This is from the neuropathy in my feet. I've been noticing that my balance seems slightly worse. Just small things, nothing major. This is probably from the neuropathy also. I told him next time I see him (in 3 months) I'll be 4 years out from my diagnosis of colon cancer (and 3 years from breast cancer). He said that if the cancer does return, it wouldn't be as aggressive as a cancer that came back sooner. He still wants to do scans every 6 months, so if anything does turn up we would be able to fight it aggressively, because I am still young and healthy (I love hearing that I am young!). Dr. J also asked if I have been exercising, which the answer is an obvious no. I think that was his gentle way of telling me he noticed I've been gaining weight. This weight thing is so frustrating! My metabolism is almost non-existent! Oh well...I'll just have to try harder!
Up until about 2 weeks ago I had been in a lot of pain (backside issues). Sometimes it gets me a bit down. You'd think after nearly 4 years I would have figured out what causes the 'bad' days. All I know is I have more bad days than good. Although, whenever I have a stretch of good (like now), I hope that this will become the norm, and not the bad days!
I find there are still a lot of things that bring me back to my chemo days. Thankfully, the nausea doesn't come back though. For instance, today I heated up a bowl of leftover mashed potatoes, and it reminded me of how I ate them a lot during chemo. I could almost feel that fog I was in for so many days each round of chemo. There are reminders almost daily.
I always try to make sure people know (both those that are recently dx'd with cancer, and those that don't have it) that when the treatment stops, things don't go back to "normal". This is where the term "new normal" really fits. Because side effects, pain, psychological effects, are all a part of my life now. I don't mean that to sound so bad, because I truly am grateful to be here and be cancer free. But I think people need to know, so they can understand what they might go through, or what someone else might be dealing with.
God has answered so many prayers recently for my family and me. I'm going to press in and pray for healing for my pain issues. I've been praying for help with my fatigue, and I am feeling a bit better. I just get busy and unfortunately don't have much energy left to spend time in God's Word as much as I should. I really need to do that more...there is nothing like the feeling I get when I spend time with God!
Family update: it's been so long since I blogged, I forgot I never wrote about my new granddaughter! Alyssa and Jaren had their baby on 10/15, 3 weeks early, but she was considered full term. They named her Selah ("say-la") Marie. Selah is a musical term in Psalms that means to pause, or pause and reflect. She is a beautiful little girl, and the new family is doing great. They have plenty of babysitters to help them out! Here is a picture of Selah, and one of my grandsons:
Aren't they cute? Charlie is doing so well! He is standing by himself in this picture! He can walk with a walker. It's hard to believe he is the same tiny 3 and a half year old that came to us from Ukraine. What a gift he is! Brennan is as smart as ever, and at the age of 3 he is reading a few words! Love my babies!
Shonna is doing great at college--she just registered for spring sem. I LOVE having her back in MN!
Thanks for reading! Let me know if there is anything I can do for any of you readers--be sure to contact me if you have questions about cancer (chemo, radiation, breast, colon, etc., etc.) OR if you want info about adopting a beautiful child from an orphanage. Or maybe you want to know how you can help a child other ways besides adopting. Please ask! You can e-mail me at nuttyoaks@gmaildotcom. You can also send me prayer requests, and I'll be happy to pray for you or send you some helpful Bible verses. :)
God bless!
Tina
As always, I'll start with a health update. I saw both my colorectal surgeon (Dr.T) and my oncologist (Dr. J) a few weeks ago. The fistula has been bleeding more, and apparently something came loose, and Dr.T fixed it. I found out she does colonoscopies (I had been going to a gastro doc for my previous scopes) and told her I'd like to see her for my next one, which is due in March. Because there has been some bleeding, Dr. T. said insurance wouldn't have a problem with doing it sooner, and she figured my deductible has probably been met for the year, so we may as well get it done. She assured me, a couple of times, that she doesn't think the bleeding means there is anything wrong, and I agree. Because of the radiation damage and fistula, there will always be some bleeding. So, I am scheduled to have my colonoscopy next Monday, Dec. 3rd (yikes!).
My 3 month check up with Dr. J went well. My blood tests are all ok, although my hemoglobin and red blood cell count both dropped a little. Dr. J wasn't too concerned, and I told him I started taking a daily iron pill. He checked my reflexes this time, and my wrists and knees were fine, but my ankles still don't respond. This is from the neuropathy in my feet. I've been noticing that my balance seems slightly worse. Just small things, nothing major. This is probably from the neuropathy also. I told him next time I see him (in 3 months) I'll be 4 years out from my diagnosis of colon cancer (and 3 years from breast cancer). He said that if the cancer does return, it wouldn't be as aggressive as a cancer that came back sooner. He still wants to do scans every 6 months, so if anything does turn up we would be able to fight it aggressively, because I am still young and healthy (I love hearing that I am young!). Dr. J also asked if I have been exercising, which the answer is an obvious no. I think that was his gentle way of telling me he noticed I've been gaining weight. This weight thing is so frustrating! My metabolism is almost non-existent! Oh well...I'll just have to try harder!
Up until about 2 weeks ago I had been in a lot of pain (backside issues). Sometimes it gets me a bit down. You'd think after nearly 4 years I would have figured out what causes the 'bad' days. All I know is I have more bad days than good. Although, whenever I have a stretch of good (like now), I hope that this will become the norm, and not the bad days!
I find there are still a lot of things that bring me back to my chemo days. Thankfully, the nausea doesn't come back though. For instance, today I heated up a bowl of leftover mashed potatoes, and it reminded me of how I ate them a lot during chemo. I could almost feel that fog I was in for so many days each round of chemo. There are reminders almost daily.
I always try to make sure people know (both those that are recently dx'd with cancer, and those that don't have it) that when the treatment stops, things don't go back to "normal". This is where the term "new normal" really fits. Because side effects, pain, psychological effects, are all a part of my life now. I don't mean that to sound so bad, because I truly am grateful to be here and be cancer free. But I think people need to know, so they can understand what they might go through, or what someone else might be dealing with.
God has answered so many prayers recently for my family and me. I'm going to press in and pray for healing for my pain issues. I've been praying for help with my fatigue, and I am feeling a bit better. I just get busy and unfortunately don't have much energy left to spend time in God's Word as much as I should. I really need to do that more...there is nothing like the feeling I get when I spend time with God!
Family update: it's been so long since I blogged, I forgot I never wrote about my new granddaughter! Alyssa and Jaren had their baby on 10/15, 3 weeks early, but she was considered full term. They named her Selah ("say-la") Marie. Selah is a musical term in Psalms that means to pause, or pause and reflect. She is a beautiful little girl, and the new family is doing great. They have plenty of babysitters to help them out! Here is a picture of Selah, and one of my grandsons:
Shonna is doing great at college--she just registered for spring sem. I LOVE having her back in MN!
Thanks for reading! Let me know if there is anything I can do for any of you readers--be sure to contact me if you have questions about cancer (chemo, radiation, breast, colon, etc., etc.) OR if you want info about adopting a beautiful child from an orphanage. Or maybe you want to know how you can help a child other ways besides adopting. Please ask! You can e-mail me at nuttyoaks@gmaildotcom. You can also send me prayer requests, and I'll be happy to pray for you or send you some helpful Bible verses. :)
God bless!
Tina
Tuesday, January 24, 2012
February is looking Busy!
Seems I'm doing about 1 blog a month now. I guess that's good--means nothing too bad is happening health-wise! :) Life is busy though, and that's good too.
Work is going well. Every time I complain about it I remember 1. it's only 3 hours, and 2. I get lots of days off! The 3 hours part can be deceiving though. It's a very busy 3 hours, and 1 hour of it is outside. It gets hard on my neuropathy, not to mention my poor aging skin! I have other problems that are aggravated by so much walking around too.
There is another job, though, that I've been thinking about, and may see if I can do it temporarily over the summer. It involves lots of paper work, and sounds like heaven! My sister was describing it to me and everything she said just made it sound better and better. Most people wouldn't like to be searching through stacks of papers and working on the computer, but to me, that is the PERFECT job. The pay is less, but I would be working year round and therefore would be making more money annually than I do now. Just something I'm thinking about at this point.
Another job I would like to do would be helping out the elderly--especially with their computers. Many want to get e-mail and be on Facebook to see what everyone is doing, and look at pictures, but don't know how. Think anyone would hire me to come over once or twice a week and help them get online? It's just one of those thoughts that tumble around in my head!
Excuse me if I ramble on a bit today. I had to take a pain pill, and that makes me a little loopy! I will fill you in a bit on some issues I have been having, but don't want to get in to too much detail because of the "delicate" nature of these issues. (If you have read my blog from the beginning, you know that I used to just tell it like it is, since it's hard not to when talking about colon and breast cancer. But it's been awhile since I've had to talk much about these things). Last Thursday I saw the colon-rectal surgeon again that I saw back in Oct. or Nov. I definitely have a fistula this time. My backside has been very painful; some days worse than others (like today). There are also tender skin issues from radiation and today is a day when both things are painful at the same time! A fistula is a tunnel that develops under the skin, between two organs, or from the inside to the skin surface. Normally the surgeon would cut the top off of it and then it would fill in and close up with scar tissue. I can't have surgery back there because my radiated skin might not heal. Also my surgeon told me the procedure could leave me incontinent (because of radiation or my colon resection, or maybe both)--no thanks!! In Feb. I will be having a procedure where my surgeon can "explore" the area and hopefully put in a tiny tube to help it drain (not sure if this will help it close up?). This will be done under anesthesia. Sounds fun doesn't it? Another side effect of that wonderful radiation. (A side note--someone asked me how to word a blurb about the radiation her daughter would be having--I told her the right way to word it, then told her there are many other words I could put with the word radiation--and none of them very nice!! It's the only time I swear, or think of swearing, these days!)
Also coming up in Feb. will be my labs, ct scans (for colon cancer), and 3 month visit with my oncologist; also a visit with my primary for a pre-op check up. I plan on talking to her about my neuropathy at that time, to see if there is anything more I should be doing to keep it from getting worse. So, it will be a busy month! Feb. 6th will be 3 years since my tumor was found during a colonoscopy, and on the 20th it will be 3 years since 18" of my colon was removed.
March is my "breast cancer" month. I'll have a mammogram and MRI.
It's crazy what I've been through in the last 3 years! Sometimes it seems so far away, and other times it seems like it was just yesterday I was lying in bed in a chemo fog, unable to even shower! I am so grateful to still be here, 3 years later. Even with all the side effects, life is still wonderful. The blog community has lost several lovely people to cancer the last few months (from young children, to mom's with young children, to the elderly), and others have had their cancer get worse. I know how blessed each day is that I am cancer-free. My prayer list grows long...
Well, I think that's enough for today. Maybe in a few days I'll post more about non-cancer related parts of my life (like my awesome little grandsons!). Stay tuned!
Love and blessings!
Tina
Work is going well. Every time I complain about it I remember 1. it's only 3 hours, and 2. I get lots of days off! The 3 hours part can be deceiving though. It's a very busy 3 hours, and 1 hour of it is outside. It gets hard on my neuropathy, not to mention my poor aging skin! I have other problems that are aggravated by so much walking around too.
There is another job, though, that I've been thinking about, and may see if I can do it temporarily over the summer. It involves lots of paper work, and sounds like heaven! My sister was describing it to me and everything she said just made it sound better and better. Most people wouldn't like to be searching through stacks of papers and working on the computer, but to me, that is the PERFECT job. The pay is less, but I would be working year round and therefore would be making more money annually than I do now. Just something I'm thinking about at this point.
Another job I would like to do would be helping out the elderly--especially with their computers. Many want to get e-mail and be on Facebook to see what everyone is doing, and look at pictures, but don't know how. Think anyone would hire me to come over once or twice a week and help them get online? It's just one of those thoughts that tumble around in my head!
Excuse me if I ramble on a bit today. I had to take a pain pill, and that makes me a little loopy! I will fill you in a bit on some issues I have been having, but don't want to get in to too much detail because of the "delicate" nature of these issues. (If you have read my blog from the beginning, you know that I used to just tell it like it is, since it's hard not to when talking about colon and breast cancer. But it's been awhile since I've had to talk much about these things). Last Thursday I saw the colon-rectal surgeon again that I saw back in Oct. or Nov. I definitely have a fistula this time. My backside has been very painful; some days worse than others (like today). There are also tender skin issues from radiation and today is a day when both things are painful at the same time! A fistula is a tunnel that develops under the skin, between two organs, or from the inside to the skin surface. Normally the surgeon would cut the top off of it and then it would fill in and close up with scar tissue. I can't have surgery back there because my radiated skin might not heal. Also my surgeon told me the procedure could leave me incontinent (because of radiation or my colon resection, or maybe both)--no thanks!! In Feb. I will be having a procedure where my surgeon can "explore" the area and hopefully put in a tiny tube to help it drain (not sure if this will help it close up?). This will be done under anesthesia. Sounds fun doesn't it? Another side effect of that wonderful radiation. (A side note--someone asked me how to word a blurb about the radiation her daughter would be having--I told her the right way to word it, then told her there are many other words I could put with the word radiation--and none of them very nice!! It's the only time I swear, or think of swearing, these days!)
Also coming up in Feb. will be my labs, ct scans (for colon cancer), and 3 month visit with my oncologist; also a visit with my primary for a pre-op check up. I plan on talking to her about my neuropathy at that time, to see if there is anything more I should be doing to keep it from getting worse. So, it will be a busy month! Feb. 6th will be 3 years since my tumor was found during a colonoscopy, and on the 20th it will be 3 years since 18" of my colon was removed.
March is my "breast cancer" month. I'll have a mammogram and MRI.
It's crazy what I've been through in the last 3 years! Sometimes it seems so far away, and other times it seems like it was just yesterday I was lying in bed in a chemo fog, unable to even shower! I am so grateful to still be here, 3 years later. Even with all the side effects, life is still wonderful. The blog community has lost several lovely people to cancer the last few months (from young children, to mom's with young children, to the elderly), and others have had their cancer get worse. I know how blessed each day is that I am cancer-free. My prayer list grows long...
Well, I think that's enough for today. Maybe in a few days I'll post more about non-cancer related parts of my life (like my awesome little grandsons!). Stay tuned!
Love and blessings!
Tina
Monday, October 24, 2011
There's a Name For It!
Since this blog is still primarily about my health and cancer issues, I'm going to share some personal things with you. I won't get into too much detail though...
I saw my doctor about a week and a half ago, after having a lot of pain and missing a day of work so I could rest and take some Percocet. She and I both thought I had a fistula (not going to describe that here, other than to say it's a major pain in the bum!). I was supposed to see my surgeon, but he referred me to a colon-rectal surgeon. I was able to get in this past Thurs., due to a cancellation. I'm so glad I was able to get in to see an expert in my issues! Good news was, there is no fistula. There are some other minor problems that could be fixed with surgery, but since I had radiation there is a risk that the area wouldn't heal. Surgery of a radiated area is always risky due to the damage done to the skin. So no surgery! I'm so glad!
I started telling her (the surgeon) of some of my problems and pain, and she said my surgeon must've mentioned these things to me, and I said, no, he didn't! She told me my problems are very common for my type of colon resection (low anterior resection), so common in fact, that there is a syndrome named for them--Low Anterior Resection Syndrome! We talked about how my colon now functions, and she gave me some tips and ideas on how to improve things. It's mostly trial and error, as each person is different. I can't tell you how nice it was to talk to someone openly and have them understand exactly what I was saying! I hope some of the things we talked about will work. Problem is that it takes time to figure out what works and what doesn't.
I had a pretty good week and a half or so, but the pain came back full force today. I couldn't wait to get home from work today and take a pain pill! I feel much better now, and hopefully tomorrow won't be so bad.
Other news-- This past week I had Wed., Thurs. and Friday off of work. Wed. I stayed home and did some MUCH needed cleaning. Thurs. I ran some errands, saw the surgeon, and packed for the weekend. Friday morning Rich and I left for Kansas City, MO. We went to visit Shonna. I haven't seen her since early Aug. and that's way too long!
Friday night we had a late dinner with her, then we spent all of Saturday together. We visited a couple of Jesse James historical sites. We love that stuff! Shonna has loved museums and history stuff since she was about 3 or 4. After supper on Sat. she came to our hotel and we sat in the hot tub and then hung out in our room for a bit--a lovely evening! Sunday we took her and one of her roomies to brunch, then Rich and I headed home. We could have spent more time there, but Shonna has very little time during the week to visit. Rich and I both had to get back to work today (Monday).
Rachel and Alyssa were also gone this weekend. Rachel and her 2 boys went to Alabama with another mom and her 3 kids to visit some other families that adopted from the same orphanage. Sort of a little reunion! But what a long drive! All survived though, and they had a good time!
Alyssa flew to AZ to visit her best friend that recently moved there. Alyssa HATES flying, but she did it by herself---tells you how much her friend means to her! She flew once before by herself to see Jaren before he went to Iraq. I think she's very brave!! I got to see her today and got to here all about her trip. Tomorrow Rachel is coming over with the boys and I'll hear all about their trip. It'll be so nice to see them all!
Life has been busy, and good (mostly!). I really wish I could take a break from cancer though. I think it's really starting to sink in that this is my life now, and cancer will always be a part of it. I sort of knew that before, but now I'm living that reality! I can't complain too much though--I'm still here and there is no sign of any cancer in my body! There are too many people I know that have had their cancer spread, or return. They are always in my prayers!
Well, that's my update for now. I'll try and update soon with some pictures of the boys--I know they are the real reason you are here! ;D
Love and blessings!!
Tina
I saw my doctor about a week and a half ago, after having a lot of pain and missing a day of work so I could rest and take some Percocet. She and I both thought I had a fistula (not going to describe that here, other than to say it's a major pain in the bum!). I was supposed to see my surgeon, but he referred me to a colon-rectal surgeon. I was able to get in this past Thurs., due to a cancellation. I'm so glad I was able to get in to see an expert in my issues! Good news was, there is no fistula. There are some other minor problems that could be fixed with surgery, but since I had radiation there is a risk that the area wouldn't heal. Surgery of a radiated area is always risky due to the damage done to the skin. So no surgery! I'm so glad!
I started telling her (the surgeon) of some of my problems and pain, and she said my surgeon must've mentioned these things to me, and I said, no, he didn't! She told me my problems are very common for my type of colon resection (low anterior resection), so common in fact, that there is a syndrome named for them--Low Anterior Resection Syndrome! We talked about how my colon now functions, and she gave me some tips and ideas on how to improve things. It's mostly trial and error, as each person is different. I can't tell you how nice it was to talk to someone openly and have them understand exactly what I was saying! I hope some of the things we talked about will work. Problem is that it takes time to figure out what works and what doesn't.
I had a pretty good week and a half or so, but the pain came back full force today. I couldn't wait to get home from work today and take a pain pill! I feel much better now, and hopefully tomorrow won't be so bad.
Other news-- This past week I had Wed., Thurs. and Friday off of work. Wed. I stayed home and did some MUCH needed cleaning. Thurs. I ran some errands, saw the surgeon, and packed for the weekend. Friday morning Rich and I left for Kansas City, MO. We went to visit Shonna. I haven't seen her since early Aug. and that's way too long!
Friday night we had a late dinner with her, then we spent all of Saturday together. We visited a couple of Jesse James historical sites. We love that stuff! Shonna has loved museums and history stuff since she was about 3 or 4. After supper on Sat. she came to our hotel and we sat in the hot tub and then hung out in our room for a bit--a lovely evening! Sunday we took her and one of her roomies to brunch, then Rich and I headed home. We could have spent more time there, but Shonna has very little time during the week to visit. Rich and I both had to get back to work today (Monday).
Rachel and Alyssa were also gone this weekend. Rachel and her 2 boys went to Alabama with another mom and her 3 kids to visit some other families that adopted from the same orphanage. Sort of a little reunion! But what a long drive! All survived though, and they had a good time!
Alyssa flew to AZ to visit her best friend that recently moved there. Alyssa HATES flying, but she did it by herself---tells you how much her friend means to her! She flew once before by herself to see Jaren before he went to Iraq. I think she's very brave!! I got to see her today and got to here all about her trip. Tomorrow Rachel is coming over with the boys and I'll hear all about their trip. It'll be so nice to see them all!
Life has been busy, and good (mostly!). I really wish I could take a break from cancer though. I think it's really starting to sink in that this is my life now, and cancer will always be a part of it. I sort of knew that before, but now I'm living that reality! I can't complain too much though--I'm still here and there is no sign of any cancer in my body! There are too many people I know that have had their cancer spread, or return. They are always in my prayers!
Well, that's my update for now. I'll try and update soon with some pictures of the boys--I know they are the real reason you are here! ;D
Love and blessings!!
Tina
Wednesday, June 15, 2011
Life Lately
I often think of things I should blog about, and even "write" posts in my head, but sometimes I have a hard time putting it all down for others to read. My chemo brain definitely makes coming up with words more difficult!
There has been a lot of "cancer" thoughts lately. Not because of anything going on with me, but because of people around me. There is a lady at church that just found out she has uterine cancer. She won't know the details until after she has surgery next week. It may be a rare, aggressive form of cancer. I knew her face, and had heard the name, but finally met her on Sunday and put the two together. I hope I can be of some help to her. Then there is a young (19!) friend of our family who may have melanoma. It's almost impossible to think of her with cancer! The latest test showed it may be precancerous, but it is being sent for more testing. I'm thankful that both of these people are strong Christians; I know their faith will help them get through whatever life throws at them.
Then there are the people I know through blogs. One lady, Ann, finds out today if her bc has spread to her liver. (Sadly, it did. Stupid cancer! Hugs and prayers being sent!!)) Another's husband is still fighting colon cancer after 6 years! There have been recent deaths of people who's blogs I have read. (This is especially hard for me). It seems cancer is never very far from my thoughts! I have a long list of people I pray for. I know many of you also know people with cancer--it seems to affect us all in one way or another. Keep praying for a cure!!
Speaking of "slogans", there is much discussion about breast cancer slogans and such. And even among those that have had breast cancer, there is a variety of opinions. I, personally, do not like such campaigns as "I Heart Boobies", and "Save the Tatas". I think my LIFE is more important than my BREASTS. I think these campaigns are demeaning, and, really, quite ridiculous. We all know teenage boys are wearing "I heart Boobies" bracelets because they like the word, more than they want to save anyone's life. I'm sure there are a few out there that know someone personally with cancer, and they wear the bracelets to show support--but that is not the majority. Of course, there are bc survivors that like to get attention of any kind on bc, and I respect their opinions. We all feel differently. Having had colon cancer also, I sure would like to see more attention/awareness brought to that. Colons are not sexy, but having yours checked may save your life! To me, saying "Get Your Butt Checked" is not demeaning to anyone. It might raise awareness, which colon cancer needs more than breast cancer (BOTH need cures!!). I think I'll stop there...that's just my 2 cents. I always appreciate and respect other's opinions.
While all these thoughts and discussions make me sad, I am thankful I don't worry about cancer returning. That is a fear that God has taken away from me. I rarely think about it, and if I do think about it, it is without any fear. Wow, God has brought me through so much. I am blessed by His refining of me!
Aside from the sadness I sometimes feel, I am very happy overall. I am babysitting less, so I have more time to do the things I have been wanting to. Like organizing, getting out to lunch with friends, doing things with the girls, volunteering at church. And then there are some days, like today, I just really don't know what to do with myself! Do I start a project? Watch a movie? Read? Exercise (yeah, right!)? So many of my projects need my husband's help--and that might never happen! Maybe I should just start digging in by myself and see what happens! :0) Oh-- and about the babysitting less--I still get to watch the boys about once a week, but Charlie hasn't had too many appointments lately, so Rachel hasn't needed me for Brennan very often. I love watching them, but am glad for some "me" time. I have waited a long time to feel well and have some time to myself! That sounds so selfish, but hopefully you all understand. And I am trying to use some of my "me" time to help others too! Soon, Charlie will start physical therapy 2 days a week, and I will have Brennan those afternoons, and I look forward to that time with him!
I plan on going back to work in the fall, when school starts. Some days I'm excited about going back, and other days I dread it. But I cut my hours to only 3 a day, so that shouldn't be too bad. Then I will still be available to help Rachel in the afternoons, if she needs me. I'm so blessed to be able to cut my hours. Sometimes I feel guilty because my husband works so hard for our family. But his working also helps his daughter and grandsons, because then I can work less and help them out! I figure I'll eventually have to work more--maybe if I do we can retire earlier. I want Rich to be able to enjoy life too--and not just work all the time!
Take care everyone! And may God bless each and everyone of you! Prayers are being sent up for whatever your needs are--I may not know, but God does :)
Love,
Tina
There has been a lot of "cancer" thoughts lately. Not because of anything going on with me, but because of people around me. There is a lady at church that just found out she has uterine cancer. She won't know the details until after she has surgery next week. It may be a rare, aggressive form of cancer. I knew her face, and had heard the name, but finally met her on Sunday and put the two together. I hope I can be of some help to her. Then there is a young (19!) friend of our family who may have melanoma. It's almost impossible to think of her with cancer! The latest test showed it may be precancerous, but it is being sent for more testing. I'm thankful that both of these people are strong Christians; I know their faith will help them get through whatever life throws at them.
Then there are the people I know through blogs. One lady, Ann, finds out today if her bc has spread to her liver. (Sadly, it did. Stupid cancer! Hugs and prayers being sent!!)) Another's husband is still fighting colon cancer after 6 years! There have been recent deaths of people who's blogs I have read. (This is especially hard for me). It seems cancer is never very far from my thoughts! I have a long list of people I pray for. I know many of you also know people with cancer--it seems to affect us all in one way or another. Keep praying for a cure!!
Speaking of "slogans", there is much discussion about breast cancer slogans and such. And even among those that have had breast cancer, there is a variety of opinions. I, personally, do not like such campaigns as "I Heart Boobies", and "Save the Tatas". I think my LIFE is more important than my BREASTS. I think these campaigns are demeaning, and, really, quite ridiculous. We all know teenage boys are wearing "I heart Boobies" bracelets because they like the word, more than they want to save anyone's life. I'm sure there are a few out there that know someone personally with cancer, and they wear the bracelets to show support--but that is not the majority. Of course, there are bc survivors that like to get attention of any kind on bc, and I respect their opinions. We all feel differently. Having had colon cancer also, I sure would like to see more attention/awareness brought to that. Colons are not sexy, but having yours checked may save your life! To me, saying "Get Your Butt Checked" is not demeaning to anyone. It might raise awareness, which colon cancer needs more than breast cancer (BOTH need cures!!). I think I'll stop there...that's just my 2 cents. I always appreciate and respect other's opinions.
While all these thoughts and discussions make me sad, I am thankful I don't worry about cancer returning. That is a fear that God has taken away from me. I rarely think about it, and if I do think about it, it is without any fear. Wow, God has brought me through so much. I am blessed by His refining of me!
Aside from the sadness I sometimes feel, I am very happy overall. I am babysitting less, so I have more time to do the things I have been wanting to. Like organizing, getting out to lunch with friends, doing things with the girls, volunteering at church. And then there are some days, like today, I just really don't know what to do with myself! Do I start a project? Watch a movie? Read? Exercise (yeah, right!)? So many of my projects need my husband's help--and that might never happen! Maybe I should just start digging in by myself and see what happens! :0) Oh-- and about the babysitting less--I still get to watch the boys about once a week, but Charlie hasn't had too many appointments lately, so Rachel hasn't needed me for Brennan very often. I love watching them, but am glad for some "me" time. I have waited a long time to feel well and have some time to myself! That sounds so selfish, but hopefully you all understand. And I am trying to use some of my "me" time to help others too! Soon, Charlie will start physical therapy 2 days a week, and I will have Brennan those afternoons, and I look forward to that time with him!
I plan on going back to work in the fall, when school starts. Some days I'm excited about going back, and other days I dread it. But I cut my hours to only 3 a day, so that shouldn't be too bad. Then I will still be available to help Rachel in the afternoons, if she needs me. I'm so blessed to be able to cut my hours. Sometimes I feel guilty because my husband works so hard for our family. But his working also helps his daughter and grandsons, because then I can work less and help them out! I figure I'll eventually have to work more--maybe if I do we can retire earlier. I want Rich to be able to enjoy life too--and not just work all the time!
Take care everyone! And may God bless each and everyone of you! Prayers are being sent up for whatever your needs are--I may not know, but God does :)
Love,
Tina
Monday, January 24, 2011
January 24th Update
Hey everyone! I haven't been posting much because there just isn't much to say! I am enjoying life, and giving myself time to heal.
I want to mention my sadness over the loss of a sister blogger. She passed away a few days ago after a long battle with stage 4 breast cancer. I knew she was getting worse, but there still seemed to be hope, so this was sort of sudden. She occasionally read my blog, and it is sad writing this one knowing she won't be reading it. We will miss you Daria! Please pray for her husband and family.
Last Thursday, the 20th, was one year since I finished the FOLFOX chemo for colon cancer. Coming up soon will be my 2 year "cancerversary". In about a month I'll have my CT scan to check for more cancer. The thought doesn't make me nervous yet, but we'll see what happens when the date gets closer! Even though I know God is with me, I still wouldn't like to hear there is more cancer!
As far as the breast cancer goes, I will have my next Herceptin infusion next Wed., Feb. 2nd. The infusions are every 3 weeks. I might have to have some labs done because of the bp med I'm taking, but I won't be seeing my onc at this appt. I'll see him next time to go over my CT and MUGA results.
I'm still thinking about whether or not I want to do reconstruction. I've been reading others' experiences, and there is a private website where you can look at pictures of reconstruction. I'm am so grateful to the women who have put their pictures and their stories there to help others. I would probably have to have some sort of "flap" surgery, because radiation affects the skin too much for implants. One of the flap procedures uses the muscle from your back and brings it around to the front. This sounds painful to me! I'm not sure I want to go through a major surgery and 6 week recovery again. We'll see... Any pros and cons from any readers that have gone through this(recon or not) please e-mail me!
I am LOVING my time off! I feel so guilty sometimes, then I remember all I've been through the past 2 years, and I don't feel so guilty anymore! Also, because of my neuropathy I can't work anyways, at least not until it warms up outside! I usually watch Brennan once or twice a week, I have time to IRON (something I always hated to do but mostly because I didn't have time! Rich was happy to have some of his shirts back!), I am helping out at church again ( I do copying and stuff for the Children's Pastor), AND I joined a women's Bible study that is on Thurs. mornings. It's a Beth Moore study called "Breaking Free". It's pretty intense, and helps you overcome anything that might be holding you captive. I have no idea what that might be right now, but I'm pretty sure I'm going to find out! God wanted me at this study for a reason. The study says that "A Christian is held captive by anything that hinders the abundant and effective Spirit-filled life God planned for her". I want that "abundant and effective Spirit-filled life" that God has planned for me! Rachel and Alyssa are doing the study too. Alyssa has also done other Beth Moore studies.
Speaking of Alyssa, she and Jaren are down in Cabo San Lucas on their mission trip right now. They will be building a classroom for the youth in the area and putting on a marriage seminar. She sent me an e-mail after their 1st day. It is warm and beautiful there and she saw some whales in the bay! They asked for prayer for sleep (apparently the bed and pillow are hard as rocks!), and for them not to have any stomach troubles or illness. Also, please pray for the lives they will be touching down there. This is a very poor area where the kids are often left alone during the day. There is lots of drug use also. Pray for the team to be strong in the Lord and the presence of the Holy Spirit to be with them.
Rachel is spending a lot of time trying to get all their paperwork done for the adoption. Many forms have had to be redone more than once. If everything is not PERFECT it has to be redone! They are hoping to be one of the first families called to go over there to adopt their son. Hopefully this will be in March or April!
Shonna is back at school and busy as ever. She works a few hours a week at a nearby library. She will be learning how to play the keyboard and has some sort of singing lessons too, I think. Also choir, theology, and required time in the prayer room. Here is a link to the prayer room. It's great to listen to during your own prayer time or Bible study time.
Well, that's all for today!
Love and blessings!
Tina
I want to mention my sadness over the loss of a sister blogger. She passed away a few days ago after a long battle with stage 4 breast cancer. I knew she was getting worse, but there still seemed to be hope, so this was sort of sudden. She occasionally read my blog, and it is sad writing this one knowing she won't be reading it. We will miss you Daria! Please pray for her husband and family.
Last Thursday, the 20th, was one year since I finished the FOLFOX chemo for colon cancer. Coming up soon will be my 2 year "cancerversary". In about a month I'll have my CT scan to check for more cancer. The thought doesn't make me nervous yet, but we'll see what happens when the date gets closer! Even though I know God is with me, I still wouldn't like to hear there is more cancer!
As far as the breast cancer goes, I will have my next Herceptin infusion next Wed., Feb. 2nd. The infusions are every 3 weeks. I might have to have some labs done because of the bp med I'm taking, but I won't be seeing my onc at this appt. I'll see him next time to go over my CT and MUGA results.
I'm still thinking about whether or not I want to do reconstruction. I've been reading others' experiences, and there is a private website where you can look at pictures of reconstruction. I'm am so grateful to the women who have put their pictures and their stories there to help others. I would probably have to have some sort of "flap" surgery, because radiation affects the skin too much for implants. One of the flap procedures uses the muscle from your back and brings it around to the front. This sounds painful to me! I'm not sure I want to go through a major surgery and 6 week recovery again. We'll see... Any pros and cons from any readers that have gone through this(recon or not) please e-mail me!
I am LOVING my time off! I feel so guilty sometimes, then I remember all I've been through the past 2 years, and I don't feel so guilty anymore! Also, because of my neuropathy I can't work anyways, at least not until it warms up outside! I usually watch Brennan once or twice a week, I have time to IRON (something I always hated to do but mostly because I didn't have time! Rich was happy to have some of his shirts back!), I am helping out at church again ( I do copying and stuff for the Children's Pastor), AND I joined a women's Bible study that is on Thurs. mornings. It's a Beth Moore study called "Breaking Free". It's pretty intense, and helps you overcome anything that might be holding you captive. I have no idea what that might be right now, but I'm pretty sure I'm going to find out! God wanted me at this study for a reason. The study says that "A Christian is held captive by anything that hinders the abundant and effective Spirit-filled life God planned for her". I want that "abundant and effective Spirit-filled life" that God has planned for me! Rachel and Alyssa are doing the study too. Alyssa has also done other Beth Moore studies.
Speaking of Alyssa, she and Jaren are down in Cabo San Lucas on their mission trip right now. They will be building a classroom for the youth in the area and putting on a marriage seminar. She sent me an e-mail after their 1st day. It is warm and beautiful there and she saw some whales in the bay! They asked for prayer for sleep (apparently the bed and pillow are hard as rocks!), and for them not to have any stomach troubles or illness. Also, please pray for the lives they will be touching down there. This is a very poor area where the kids are often left alone during the day. There is lots of drug use also. Pray for the team to be strong in the Lord and the presence of the Holy Spirit to be with them.
Rachel is spending a lot of time trying to get all their paperwork done for the adoption. Many forms have had to be redone more than once. If everything is not PERFECT it has to be redone! They are hoping to be one of the first families called to go over there to adopt their son. Hopefully this will be in March or April!
Shonna is back at school and busy as ever. She works a few hours a week at a nearby library. She will be learning how to play the keyboard and has some sort of singing lessons too, I think. Also choir, theology, and required time in the prayer room. Here is a link to the prayer room. It's great to listen to during your own prayer time or Bible study time.
Well, that's all for today!
Love and blessings!
Tina
Wednesday, January 12, 2011
Herceptin #13 Update
Wow, it's been 2 weeks since I posted last! I think about it a lot, I just don't like taking the time to do it!
Last week I had another MUGA scan (for heart function). My heart function was 65% before I started treatment (which is very good), and after starting Herceptin it went down to 51. Then my onc. put me on Enalapril (a blood pressure med), and my heart function has increased to 56! And I haven't had any side effects from the med. I was worried about my bp dropping too low, but I am on a very low dose and am tolerating it well.
Other good news--my hemoglobin finally made it up to 12, which is the bottom of the normal range. It hasn't been normal since last April.
We scheduled some upcoming tests--a CT scan and another MUGA on Feb. 21st (6 weeks), and an MRI and mammogram sometime in April. The CT scan is for the colon cancer--to watch for a recurrence. My onc. wants me to have them every 6 months for awhile. He said because I'm so young, he wants to make sure if anything does show up again we catch it early. He did say, though, that he thinks we did a pretty good job of fighting it so it shouldn't come back!
I do not need another colonoscopy for 2 years (3 years from my last one), and after this mammo and mri I won't need another one for a year.
Some side effects I still have are neuropathy (numbness) in my fingers and feet, and just tired and out of shape! I am starting to work on building my strength and stamina. I have a lot of damage from the colon cancer radiation, and also issues that have to do with missing 18" of my colon! These are annoyances that I will have to live with, although they may get better with time. I am also praying that God will take these problems away and restore to me what cancer has taken. I can be very persistent! I also need to continue to stretch my left arm and shoulder, or it quickly stiffens up. When I had my MUGA last week I had to have my left arm above my head for 10 minutes and that really hurt! Stretching helps a lot, I guess I just have to keep doing it!
I am very pleased with how well my skin did with radiation. I was expecting much worse! The scar area peeled, but it didn't hurt. The whole area, including by the clavicle, is tan looking, and will probably always be that way. I will need to protect it with sunscreen anytime it's exposed (like with tank tops and scoop neck tops) for the rest of my life.
Family update: Shonna is still here on break. She goes back to KC this weekend. Alyssa and Jaren will be leaving on a mission trip next weekend (the 22nd). Rachel and Ken are almost ready to submit all their paperwork to the country they are adopting from. Hopefully they will get to go over sometime in March or April. They have to wait for the country to contact them with the date.
Life is good! God is better!!
Love and blessings!
Tina
Last week I had another MUGA scan (for heart function). My heart function was 65% before I started treatment (which is very good), and after starting Herceptin it went down to 51. Then my onc. put me on Enalapril (a blood pressure med), and my heart function has increased to 56! And I haven't had any side effects from the med. I was worried about my bp dropping too low, but I am on a very low dose and am tolerating it well.
Other good news--my hemoglobin finally made it up to 12, which is the bottom of the normal range. It hasn't been normal since last April.
We scheduled some upcoming tests--a CT scan and another MUGA on Feb. 21st (6 weeks), and an MRI and mammogram sometime in April. The CT scan is for the colon cancer--to watch for a recurrence. My onc. wants me to have them every 6 months for awhile. He said because I'm so young, he wants to make sure if anything does show up again we catch it early. He did say, though, that he thinks we did a pretty good job of fighting it so it shouldn't come back!
I do not need another colonoscopy for 2 years (3 years from my last one), and after this mammo and mri I won't need another one for a year.
Some side effects I still have are neuropathy (numbness) in my fingers and feet, and just tired and out of shape! I am starting to work on building my strength and stamina. I have a lot of damage from the colon cancer radiation, and also issues that have to do with missing 18" of my colon! These are annoyances that I will have to live with, although they may get better with time. I am also praying that God will take these problems away and restore to me what cancer has taken. I can be very persistent! I also need to continue to stretch my left arm and shoulder, or it quickly stiffens up. When I had my MUGA last week I had to have my left arm above my head for 10 minutes and that really hurt! Stretching helps a lot, I guess I just have to keep doing it!
I am very pleased with how well my skin did with radiation. I was expecting much worse! The scar area peeled, but it didn't hurt. The whole area, including by the clavicle, is tan looking, and will probably always be that way. I will need to protect it with sunscreen anytime it's exposed (like with tank tops and scoop neck tops) for the rest of my life.
Family update: Shonna is still here on break. She goes back to KC this weekend. Alyssa and Jaren will be leaving on a mission trip next weekend (the 22nd). Rachel and Ken are almost ready to submit all their paperwork to the country they are adopting from. Hopefully they will get to go over sometime in March or April. They have to wait for the country to contact them with the date.
Life is good! God is better!!
Love and blessings!
Tina
Sunday, November 28, 2010
I Hate Cancer
Just in case you were wondering how I really felt about it!
This morning, as I checked my e-mail, I found 2 e-mails from colon cancer survivors that now think they may have breast cancer. One woman I've "known" for a while through her blog, and the support she gave me while I was going through treatment for colon cancer, and the other I just "met" today, when she contacted me through my blog. What a bummer!
I will be praying for them both, and doing what I can to help them and answer their questions. I've mentioned the website, breastcancer.org, to both of them. There are women on that site that are going or have gone through just about everything. It can be a little overwhelming at first, because, of course, people on there share their bad experiences, but when you get connected with some others (like I am part of the "June Chemo" thread) it can be incredibly supportive. I wish there was something similar for colon cancer. None of the colon cancer sites I've found compare to the bc site.
I've found there are differences between the 2 cancers. At first, the bc didn't scare me as much as the cc. And, it still doesn't, but the it's the treatment that scares me. I hope to NEVER go through chemo again! The cc (colon cancer) was less disfiguring, and when I was done with chemo, I was DONE. With bc, the treatment seems to go on forever. Everyone is different, but many of us will have more than one surgery, chemo, radiation, and then possibly Herceptin(1 year) or an estrogen inhibitor(5 years!). I had no idea there were so many different types of bc. Then, of course, there is the loss of hair and eyelashes, which makes you look like a cancer patient--something I didn't have with cc. For me, though, the loss of my breast was the most difficult. It's not such a big deal to me now, but it sure was difficult at the time. It's something that I had to work through with God.
Then there are so many other cancers out there! We lost one of our bloggers this past week. I think it may have even been on Thanksgiving. A young woman, early 30's, who has been battling lung cancer for the past 2 years. She was such a vibrant, adventurous woman. So sad.
Well, that should give you some reason for the title of my blog!
On a better note...
I had a very nice Thanksgiving with my family. Our group was Rich, me, Rachel, Ken, Brennan, Alyssa, Jaren (he was in Iraq last year!), Shonna, and my sister, Dee. I've come down with some sinus crap, so everyone really chipped in and helped me out. Rachel and Jaren both had to work, so we had an early dinner--about 1:30. I have soooo much to be thankful to God for!! He is so good!!!
I'm starting to feel a little better today. I slept in and stayed home from church. Shonna just left to head back to Kansas City. I haven't done any shopping yet--just some looking online and gathering ideas. Hope my head clears soon, so I can get things done and not get too far behind. I'm going to have Rich get the Christmas stuff out from under the steps, and I'll work on that this week.
I've had 20 (I think) out of 33 radiation treatments so far. I've had a 4 day break, and my skin is still pretty red. My hair is coming in, but it's so light and fine that I still look bald; it'll be awhile before I can go without a hat or scarf! My eyelashes are growing, but still too sparse and short for mascara--hopefully soon!
I had my MUGA (heart function) scan on Friday, and I will get the results of that on Wed. when I see my onc. After rads on Wed. I will go to the cancer center (all at Regions Hospital), and get labs done, see my onc., and then get another Herceptin infusion. I'm hoping I will find that my hemoglobin is back up near normal, and my other counts are all ok. My Rad Onc said this radiation should not affect my white blood counts, because it's not hitting much of my bone marrow. This will be the last time I see my onc. for a while (I think), so I will ask him what the plan is for future scans and tests, for both cancers. I'll also talk to him about going back to work.
Rachel and Ken's fundraiser for their adoption is coming up on Friday. I will post more about this tomorrow, but if you click on Joshua's button on the side of my blog, you will find info there and a link to Rachel's blog. On her blog, there is a tab at the top with fundraiser info. There will be a concert, silent auction, door prizes, free cookies, and other items for sale. Hope to see many of you there!!
Blessings!!
Tina
This morning, as I checked my e-mail, I found 2 e-mails from colon cancer survivors that now think they may have breast cancer. One woman I've "known" for a while through her blog, and the support she gave me while I was going through treatment for colon cancer, and the other I just "met" today, when she contacted me through my blog. What a bummer!
I will be praying for them both, and doing what I can to help them and answer their questions. I've mentioned the website, breastcancer.org, to both of them. There are women on that site that are going or have gone through just about everything. It can be a little overwhelming at first, because, of course, people on there share their bad experiences, but when you get connected with some others (like I am part of the "June Chemo" thread) it can be incredibly supportive. I wish there was something similar for colon cancer. None of the colon cancer sites I've found compare to the bc site.
I've found there are differences between the 2 cancers. At first, the bc didn't scare me as much as the cc. And, it still doesn't, but the it's the treatment that scares me. I hope to NEVER go through chemo again! The cc (colon cancer) was less disfiguring, and when I was done with chemo, I was DONE. With bc, the treatment seems to go on forever. Everyone is different, but many of us will have more than one surgery, chemo, radiation, and then possibly Herceptin(1 year) or an estrogen inhibitor(5 years!). I had no idea there were so many different types of bc. Then, of course, there is the loss of hair and eyelashes, which makes you look like a cancer patient--something I didn't have with cc. For me, though, the loss of my breast was the most difficult. It's not such a big deal to me now, but it sure was difficult at the time. It's something that I had to work through with God.
Then there are so many other cancers out there! We lost one of our bloggers this past week. I think it may have even been on Thanksgiving. A young woman, early 30's, who has been battling lung cancer for the past 2 years. She was such a vibrant, adventurous woman. So sad.
Well, that should give you some reason for the title of my blog!
On a better note...
I had a very nice Thanksgiving with my family. Our group was Rich, me, Rachel, Ken, Brennan, Alyssa, Jaren (he was in Iraq last year!), Shonna, and my sister, Dee. I've come down with some sinus crap, so everyone really chipped in and helped me out. Rachel and Jaren both had to work, so we had an early dinner--about 1:30. I have soooo much to be thankful to God for!! He is so good!!!
I'm starting to feel a little better today. I slept in and stayed home from church. Shonna just left to head back to Kansas City. I haven't done any shopping yet--just some looking online and gathering ideas. Hope my head clears soon, so I can get things done and not get too far behind. I'm going to have Rich get the Christmas stuff out from under the steps, and I'll work on that this week.
I've had 20 (I think) out of 33 radiation treatments so far. I've had a 4 day break, and my skin is still pretty red. My hair is coming in, but it's so light and fine that I still look bald; it'll be awhile before I can go without a hat or scarf! My eyelashes are growing, but still too sparse and short for mascara--hopefully soon!
I had my MUGA (heart function) scan on Friday, and I will get the results of that on Wed. when I see my onc. After rads on Wed. I will go to the cancer center (all at Regions Hospital), and get labs done, see my onc., and then get another Herceptin infusion. I'm hoping I will find that my hemoglobin is back up near normal, and my other counts are all ok. My Rad Onc said this radiation should not affect my white blood counts, because it's not hitting much of my bone marrow. This will be the last time I see my onc. for a while (I think), so I will ask him what the plan is for future scans and tests, for both cancers. I'll also talk to him about going back to work.
Rachel and Ken's fundraiser for their adoption is coming up on Friday. I will post more about this tomorrow, but if you click on Joshua's button on the side of my blog, you will find info there and a link to Rachel's blog. On her blog, there is a tab at the top with fundraiser info. There will be a concert, silent auction, door prizes, free cookies, and other items for sale. Hope to see many of you there!!
Blessings!!
Tina
Friday, April 23, 2010
Pink and Blue
Some pictures of things that have going on lately. Top is of Alyssa at one of her bridal showers; next one is Rachel, Ken and Brennan on Brennan's dedication day, then Shonna's Prom, and a happy Brennan!
TGIF! I'm so glad its Friday! My feet need a break, and so does my bum! Ok, I don't usually talk about that because a lot of family, friends and co-workers read this, but if I'm going to talk about how I'm doing, then I need to talk about unpleasant things. This is a fact of life if you have colon cancer! Let me just say just that the toilet paper at school is the worst I've come across, and it contributes to my pain and tenderness. I'm hoping a week of being at home and being able to keep clean will help heal things up. Yup, its not real fun; actually I'd call it a pain in the a**!! This is why it's a cancer people don't like to talk about. But we shouldn't be afraid to talk about normal body functions and body parts. (ok, if you know me you KNOW I still don't talk about that stuff much--oh well!) Now go get your butt checked!
Now on to the "pleasant" cancer. First I have to say I'm SICK OF PINK!! Its EVERYWHERE! We know breasts are great, but seriously? Can't we just raise money and awareness for ALL cancers? More people die from lung and colon cancer than breast cancer. Thanks for letting me vent. :)
As most of you know, I'm having my lumpectomy on Monday. Yesterday I had my pre-op and had a cbc done. I've been wondering how my blood counts were doing since I've been done with chemo. During chemo you get them checked every 2 weeks, and then all of a sudden you go months without any tests. I guess I got used to knowing what was going on in my body. My hemoglobin is up to 11.7, which is almost normal (normal is 12-14). It hasn't been above 12 since last Feb. ('09). My platelets are ok, but not as high as they used to be, and the white blood cells are good. I'm good to go for my surgery!
I asked the nurse practitioner if swelling of the feet was normal with neuropathy and she said yes. I also asked if being on my feet so much would cause any damage and she said no. That's good to know. Most websites that talk about neuropathy just talk about what it feels like, and don't really say anything about what you should or shouldn't do. I still think the neuropathy is getting slightly worse. I had hoped that by now it would be getting better. I don't know if I mentioned this before, but I burnt my fingers on Easter by picking up a hot glass lid (it had been in the oven) . I think because of my numb fingers I didn't feel how hot it was right away. The burn wasn't real bad, but was painful for awhile!
I talked to the nurse navigator at the breast health center about my surgery, and she said most people take 4 or 5 days off work, so I took the whole week. I should be ready to go back to work the following Monday. Then the Friday after that (May 7th) I have my CT scan of my chest, abdomen, and pelvic area. This is to check for colon cancer that may have spread. The Wed. after that (May 12th), I meet with my oncologist. My meeting with Dr. J was supposed to be just for the colon cancer, but now we will also be talking about the next steps for the breast cancer. By then we should know if I need hormone therapy, and he'll probably tell me when I should start radiation. I hope the radiation can wait until school is out. I feel bad about missing so much work. Well, a little bad. Last year I was in tears about having to call in sick all the time from the chemo. I've decided the stress isn't healthy for me and I need to let it go.
Gosh, that seems like such a long time ago, when I started chemo. I was a different person then. I've been through so much...
The people I work with have been great, and I know many of them will be thinking about me Monday, and some will be praying for me. The surgery shouldn't be too bad. I know what pain pills work best for me! I won't even spend a night in the hospital. Sleeping might be difficult; maybe I'll plan on sleeping in the recliner the first night. I'm not worried about radiation either. It should be MUCH easier than the radiation I've already been through. And God will be with me through it all!
My husband is a wonderful man, and is by my side through everything. He goes with me to every appointment. Its sooooo comforting to have him there. I always tell him I can go by myself (and I can if I need to!) but I'm always happy when he can go with me.
My beautiful grandson is getting big and is so much fun to spend time with! Brennan is almost 7 months old! He's smiley, and I'm so impressed with how well he goes down for a nap! The only problem is he doesn't like to fall asleep while being held anymore, so getting him to take a nap when we are out and about is difficult!
Life is good for all 3 of my girls. I am so blessed to have such wonderful daughters! And their husbands aren't too bad either! :)
Please pray that I have a quick and easy surgery, and that I'm not too uncomfortable, or nervous! It may not be major surgery, but its not going to be fun!
I'll try to update you Monday night or Tuesday. I hope everyone has a great weekend! I plan on enjoying every minute!
Blessings,
Tina
Thursday, March 4, 2010
Hungry!
Today I am home from work prepping for my colonoscopy tomorrow. I have been eating Jell-o, and drinking water, juice, tea, coffee. None of which has taken the edge off my hunger! My stomach is protesting--loudly! I have no energy, (even typing this is a chore!), and am getting a headache--which, of course, I can't take anything for, because I have an empty tummy! Thank goodness its only one day!
Ok, enough of my whining. The procedure itself isn't bad (esp. after they give you some "happy" drugs!), and should be interesting to see what the old colon looks like now that it is 18" shorter! I wonder if I'll be able to see where the surgeon reconnected it?
March is Colon Cancer Awareness month, and tomorrow (Friday, March 5th) is Dress in Blue Day, to raise awareness of this killer disease. Colon Cancer is the 2nd leading cancer killer in America! But its "Preventable, Treatable, Beatable" especially if caught early. Which is why you need to get your colonoscopy at 50 years old, and earlier if you have any unusual symptoms. I don't care how young you are, if you have changes in your bowels (blood and/or mucus in the stool, frequency, etc.) demand to get a colonoscopy done. I've heard stories of docs not recommending a colonoscopy because of a person's age--only to have that person find out much later (too late, in some cases) that they have colon cancer. Be an advocate for yourself--insist that you get one!
Well, I went back to work this week. I work 5 hours a day at the elementary school nearby. I work in first grade and kindergarten, and also do lunch and recess supervision. Thankfully, its been near or above 40 degrees each day this week, so being outside hasn't been too bad. Bright, sunny, and refreshing!
On my first day back my feet, legs, and hips hurt really bad by the end of the day. But it has gotten better each day. Learning all the kindergartner's names is definitely a challenge with my "chemo brain"! It was great seeing all my co-workers, and I got many hugs from the kids! I was a little nervous about starting back again, but once I got there, it felt as if I never left!
I have my stereotactic biopsy scheduled for Monday, March 29th. That is the first day of my Spring Break. The radiologist will be taking a sample of the calcifications in my left breast to see if its cancerous. Not too worried about the results, like I said before--I'm more annoyed than worried!
Why couldn't I have gotten cancer in my pinkie, or some other place that I could keep my clothes on for the tests? Sheesh! Oh well, I won't actually die from embarrassment, but I could die from undetected cancer! So better to suffer through the tests, than the alternative!
Wear blue tomorrow everyone!!
Love,
Tina
Ok, enough of my whining. The procedure itself isn't bad (esp. after they give you some "happy" drugs!), and should be interesting to see what the old colon looks like now that it is 18" shorter! I wonder if I'll be able to see where the surgeon reconnected it?
March is Colon Cancer Awareness month, and tomorrow (Friday, March 5th) is Dress in Blue Day, to raise awareness of this killer disease. Colon Cancer is the 2nd leading cancer killer in America! But its "Preventable, Treatable, Beatable" especially if caught early. Which is why you need to get your colonoscopy at 50 years old, and earlier if you have any unusual symptoms. I don't care how young you are, if you have changes in your bowels (blood and/or mucus in the stool, frequency, etc.) demand to get a colonoscopy done. I've heard stories of docs not recommending a colonoscopy because of a person's age--only to have that person find out much later (too late, in some cases) that they have colon cancer. Be an advocate for yourself--insist that you get one!
Well, I went back to work this week. I work 5 hours a day at the elementary school nearby. I work in first grade and kindergarten, and also do lunch and recess supervision. Thankfully, its been near or above 40 degrees each day this week, so being outside hasn't been too bad. Bright, sunny, and refreshing!
On my first day back my feet, legs, and hips hurt really bad by the end of the day. But it has gotten better each day. Learning all the kindergartner's names is definitely a challenge with my "chemo brain"! It was great seeing all my co-workers, and I got many hugs from the kids! I was a little nervous about starting back again, but once I got there, it felt as if I never left!
I have my stereotactic biopsy scheduled for Monday, March 29th. That is the first day of my Spring Break. The radiologist will be taking a sample of the calcifications in my left breast to see if its cancerous. Not too worried about the results, like I said before--I'm more annoyed than worried!
Why couldn't I have gotten cancer in my pinkie, or some other place that I could keep my clothes on for the tests? Sheesh! Oh well, I won't actually die from embarrassment, but I could die from undetected cancer! So better to suffer through the tests, than the alternative!
Wear blue tomorrow everyone!!
Love,
Tina
Friday, February 5, 2010
My First "Cancerversary" Tomorrow
Yep, tomorrow is the day. One year ago my gastro doc found a large tumor in my colon. I was given some "happy" drugs to relax me, but I was awake during the whole procedure, and watching on the screen. When you have a colonoscopy (at least mine was this way) the doc puts the scope all the way in, then looks closely at the colon as he slowly pulls it back out. He zipped past the tumor, stopped, backtracked a little and said "See that? That's not supposed to be there". Then he went on with the scope and did a biopsy of the tumor when he got back to it on the way out. I didn't question anything at that point. I knew he'd talk to me after, and I wanted all the info at once. Thankfully, when he told us (Rich and me) it was most likely cancer, I was still under the affects of the drugs, so it didn't upset me too much. As we were leaving to go get some food, I told Rich to stop being so mopey about it! Poor guy, of course he was upset! We went out to eat, went home for a bit, then went to get a ct scan. Thankfully the scan didn't show anymore cancer--just a lymph node near the tumor.
I doesn't feel like its been a year, its feels like it was just a few months ago. I've been through so much this past year--My first ever surgery, chemo, radiation that put me in the hospital 2 more times, and more chemo. Some of the highest highs, and lowest lows I've ever had in my life. The highs are from all the people that cared about me, prayed for me, and sent us meals, gifts, and cards. Also feeling God's presence and the love of my family were definitely highs!
Earlier this week I experienced some anxiety over the thought of going back to work in 2 weeks. I just didn't feel that I would be ready. Everytime I thought about it my stomach would tighten up. I was mostly worried about my neuropathy and being out in the cold doing recess for an hour each day. I finally called my doc to see what he thought. His nurse talked to him, then got back to me. He said he thinks taking 2 extra weeks off would be a good idea, and he doesn't want me going back until I feel ready. I was so thankful I called. So, I'm going back on March 1st, instead of Feb. 16th. I think I'll be ready by then--I'm just hoping for an early Spring!
Another weird anxiety I had was thinking about the upcoming Wed. It was 2 weeks after my last treatment, and if I had more treatments to do, Wed. would have been the day I had to go get my labs done, see the doc, and possibly get treatment. It just felt so weird to think that I didn't need to go in this time. Everytime I thought about it I would get that yucky feeling in my stomach that the alcohol and saline flush cause. I got the same feeling now just writing about it! I think there are going to be lots of little reminders and anxieties in the days and weeks to come!
On a good note, I bought a Wii Fit last weekend and am happy to say I have some sore muscles already! I've been trying to build up strength in my legs, and today I am taking a break because my legs are still tired from yesterday's workout!
I keep finding things around the house that I needed this past year, and then I realize I don't need them anymore. A few days ago I put away all my drugs that have been in a little wood box on my bathroom counter. I don't need all those pills anymore!! Yay! I only kept out my iron pills, because my hemoglobin has been low since my surgery. I'm sure I'll find more things in the days to come.
Overall, I think I am doing very well. My fingers and toes still tingle, and I still have a little cold senstivity. I can get things out of the freezer, but not hold them for long. I'm REALLY hating this winter. Can't wait for it to be over!
Well, that's all for today!
Blessings to all!
Tina
I doesn't feel like its been a year, its feels like it was just a few months ago. I've been through so much this past year--My first ever surgery, chemo, radiation that put me in the hospital 2 more times, and more chemo. Some of the highest highs, and lowest lows I've ever had in my life. The highs are from all the people that cared about me, prayed for me, and sent us meals, gifts, and cards. Also feeling God's presence and the love of my family were definitely highs!
Earlier this week I experienced some anxiety over the thought of going back to work in 2 weeks. I just didn't feel that I would be ready. Everytime I thought about it my stomach would tighten up. I was mostly worried about my neuropathy and being out in the cold doing recess for an hour each day. I finally called my doc to see what he thought. His nurse talked to him, then got back to me. He said he thinks taking 2 extra weeks off would be a good idea, and he doesn't want me going back until I feel ready. I was so thankful I called. So, I'm going back on March 1st, instead of Feb. 16th. I think I'll be ready by then--I'm just hoping for an early Spring!
Another weird anxiety I had was thinking about the upcoming Wed. It was 2 weeks after my last treatment, and if I had more treatments to do, Wed. would have been the day I had to go get my labs done, see the doc, and possibly get treatment. It just felt so weird to think that I didn't need to go in this time. Everytime I thought about it I would get that yucky feeling in my stomach that the alcohol and saline flush cause. I got the same feeling now just writing about it! I think there are going to be lots of little reminders and anxieties in the days and weeks to come!
On a good note, I bought a Wii Fit last weekend and am happy to say I have some sore muscles already! I've been trying to build up strength in my legs, and today I am taking a break because my legs are still tired from yesterday's workout!
I keep finding things around the house that I needed this past year, and then I realize I don't need them anymore. A few days ago I put away all my drugs that have been in a little wood box on my bathroom counter. I don't need all those pills anymore!! Yay! I only kept out my iron pills, because my hemoglobin has been low since my surgery. I'm sure I'll find more things in the days to come.
Overall, I think I am doing very well. My fingers and toes still tingle, and I still have a little cold senstivity. I can get things out of the freezer, but not hold them for long. I'm REALLY hating this winter. Can't wait for it to be over!
Well, that's all for today!
Blessings to all!
Tina
Wednesday, January 13, 2010
Low Platelets!
Yep, my platelets are low, just as the doc and I thought they would be. They were 96 last time, and that was almost too low, and this time they were 85. My wbc were high due to the shots. We will wait a week and try again! In the meantime, I will be enjoying feeling good! :)
I asked the doc today about my tumor. I reminded him that it was "moderately differentiated" (sp?), and asked him how long he thought it took to grow. He said it probably took about 5 years to grow and was moderately aggressive--sort of middle of the road. It started as a polyp, and that is why I will have a colonoscopy every 1-3 years, so if another polyp starts they will find it and remove it before it gets cancerous. As for the cancer spreading, the fact that it only made it to 2 lymph nodes is a good thing, and the doc said all the treatment I had should have gotten any remaining cancer cells. My prognosis looks pretty good. Just off the top of his head, he thinks I have at least a 75% chance of it NOT returning. He doesn't expect it to spread. So that was all good to hear!
We also talked about my neuropathy. Its there, but doesn't hurt, just tingles. Dr. J said it would be alot worse if I didn't have that break from Oxaliplatin over the summer during radiation. He checked to make sure I still had feeling in my fingers, and told me I should call him if it gets "bothersome". There are trials going on now to find something that works better. Apparently there is a hand cream they are trying out.
I'll have a colonoscopy the end of Feb., then I'll see the doc and have labs done in about 4 months. After that I'll have a ct scan. I asked about pet scans and he said its harder to see details on the pet scan and the ct works better for the colon. I'll continue to see the doc every 3 months after that, and ct scans every 6 months. Not sure how long that will go on. It was an interesting office visit!
I couldn't help thinking how weird it will be after my last chemo--when I start feeling good, I'll KEEP feeling good. It won't only be a few days of feeling good. And then I'll be able to put ice in all my drinks again, and eat sherbet...ahhh that'll be soooo good!
My plan is to start using the treadmill and eat healthier so I can regain my strength (I can hardly make it up a short flight of steps these days. My legs are really weak!), AND keep the weight off (and hopefully lose more!!) I should start this week!
I've also got to make a better plan for Bible reading. I've always struggled with having a set time, but I really should be reading it daily. So I've got some ideas to make that work.
So much to think about--no wonder I can't sleep some nights!
Oh--I took an Ativan before my appt. this morning, and didn't have any trouble with feeling nauseous after having my port wiped with alcohol, or getting the saline flush. I'll have to remember that before every port draw!
Speaking of ports, I will leave mine in at least until I have my ct scan. I don't know if I'll want to leave it in longer than that--we'll see.
That's all for now!
Thanks for all the well wishes and prayers!
Love,
Tina
I asked the doc today about my tumor. I reminded him that it was "moderately differentiated" (sp?), and asked him how long he thought it took to grow. He said it probably took about 5 years to grow and was moderately aggressive--sort of middle of the road. It started as a polyp, and that is why I will have a colonoscopy every 1-3 years, so if another polyp starts they will find it and remove it before it gets cancerous. As for the cancer spreading, the fact that it only made it to 2 lymph nodes is a good thing, and the doc said all the treatment I had should have gotten any remaining cancer cells. My prognosis looks pretty good. Just off the top of his head, he thinks I have at least a 75% chance of it NOT returning. He doesn't expect it to spread. So that was all good to hear!
We also talked about my neuropathy. Its there, but doesn't hurt, just tingles. Dr. J said it would be alot worse if I didn't have that break from Oxaliplatin over the summer during radiation. He checked to make sure I still had feeling in my fingers, and told me I should call him if it gets "bothersome". There are trials going on now to find something that works better. Apparently there is a hand cream they are trying out.
I'll have a colonoscopy the end of Feb., then I'll see the doc and have labs done in about 4 months. After that I'll have a ct scan. I asked about pet scans and he said its harder to see details on the pet scan and the ct works better for the colon. I'll continue to see the doc every 3 months after that, and ct scans every 6 months. Not sure how long that will go on. It was an interesting office visit!
I couldn't help thinking how weird it will be after my last chemo--when I start feeling good, I'll KEEP feeling good. It won't only be a few days of feeling good. And then I'll be able to put ice in all my drinks again, and eat sherbet...ahhh that'll be soooo good!
My plan is to start using the treadmill and eat healthier so I can regain my strength (I can hardly make it up a short flight of steps these days. My legs are really weak!), AND keep the weight off (and hopefully lose more!!) I should start this week!
I've also got to make a better plan for Bible reading. I've always struggled with having a set time, but I really should be reading it daily. So I've got some ideas to make that work.
So much to think about--no wonder I can't sleep some nights!
Oh--I took an Ativan before my appt. this morning, and didn't have any trouble with feeling nauseous after having my port wiped with alcohol, or getting the saline flush. I'll have to remember that before every port draw!
Speaking of ports, I will leave mine in at least until I have my ct scan. I don't know if I'll want to leave it in longer than that--we'll see.
That's all for now!
Thanks for all the well wishes and prayers!
Love,
Tina
Saturday, May 16, 2009
Round 3 Update
Hi!
Just a little update to let you all know how its going.
The "blahs" have kicked in. Had a hard time getting out of bed, and have been moving slow ever since! A bit more nausea today, have taken several different pills, and its better now (altho never completely gone!). Rich and I went out for lunch--unfortunately nothing tasted very good, but it was nice to be out of the house! Took a nap when we got back (with a little help from the Ativan pill!), and then watched an old Elvis movie. Rich has been putzing around the yard all day. Usually I'd keep him company, but I just don't have the energy, and its very chilly(only 53 now!) and super windy--so I'd have to wear the scarf and mittens! Hopefully this will be the last time its will be this chilly!? Tomorrow should be mid 60's and then 70's after that--yay!
I'm anticipating tomorrow to be worse, and maybe even Monday worse yet, because that's how it was last time. But I do know that each time can be different, so maybe it won't be so bad. I'll be praying about it too. God always gives me His peace when I take the time to talk with Him. Here is a passage from a friend's calendar that she sent me in an e-mail:
Trusting God completely means
having faith that He knows what is best for your life.
You expect Him to keep His promises, help you with problems,
and do THE IMPOSSIBLE when necessary.
The Lord your God is the faithful God
who for a thousand generations keep His promises.
Deuteronomy 7:9 tlb
I do trust God completely! And am so thankful for His love and mercy. It amazes me everyday!
I have been praying for some others I have found thru blogs that have colon cancer also. Some really have it rough. Their faith and strength are an inspiration to me to continue to be strong and fight. I'm young to have colon cancer (44), but one young gal is only only 19, and a few others are in their 20's and 30's and have young children. I pray for them often! So many stories start with a doc telling them they are too young for a colonoscopy, and then they waste time searching for other problems, and sometimes even being treated for other things, like colitis. By the time the doc (or a different, wiser doc) does the test, the cancer has spread! So, I BEG you--if you have bowel problems (any bleeding at all, or changes in bowel habits) DON'T WAIT! Insist on getting a colonoscopy. Its an easy procedure-- not bad at all!
Take care everyone!
Love and blessings to you!
Tina
Just a little update to let you all know how its going.
The "blahs" have kicked in. Had a hard time getting out of bed, and have been moving slow ever since! A bit more nausea today, have taken several different pills, and its better now (altho never completely gone!). Rich and I went out for lunch--unfortunately nothing tasted very good, but it was nice to be out of the house! Took a nap when we got back (with a little help from the Ativan pill!), and then watched an old Elvis movie. Rich has been putzing around the yard all day. Usually I'd keep him company, but I just don't have the energy, and its very chilly(only 53 now!) and super windy--so I'd have to wear the scarf and mittens! Hopefully this will be the last time its will be this chilly!? Tomorrow should be mid 60's and then 70's after that--yay!
I'm anticipating tomorrow to be worse, and maybe even Monday worse yet, because that's how it was last time. But I do know that each time can be different, so maybe it won't be so bad. I'll be praying about it too. God always gives me His peace when I take the time to talk with Him. Here is a passage from a friend's calendar that she sent me in an e-mail:
Trusting God completely means
having faith that He knows what is best for your life.
You expect Him to keep His promises, help you with problems,
and do THE IMPOSSIBLE when necessary.
The Lord your God is the faithful God
who for a thousand generations keep His promises.
Deuteronomy 7:9 tlb
I do trust God completely! And am so thankful for His love and mercy. It amazes me everyday!
I have been praying for some others I have found thru blogs that have colon cancer also. Some really have it rough. Their faith and strength are an inspiration to me to continue to be strong and fight. I'm young to have colon cancer (44), but one young gal is only only 19, and a few others are in their 20's and 30's and have young children. I pray for them often! So many stories start with a doc telling them they are too young for a colonoscopy, and then they waste time searching for other problems, and sometimes even being treated for other things, like colitis. By the time the doc (or a different, wiser doc) does the test, the cancer has spread! So, I BEG you--if you have bowel problems (any bleeding at all, or changes in bowel habits) DON'T WAIT! Insist on getting a colonoscopy. Its an easy procedure-- not bad at all!
Take care everyone!
Love and blessings to you!
Tina
Thursday, March 12, 2009
A Dr. Appt and an Old Friend
Today I had my post-op appt. I think it will be my last appt. with Dr. Wolpert, my surgeon. We mostly talked about bowel and bladder issues. :P He said it could take 6 months or longer for my digestive system to get back to "normal" (or my new normal). But, of course, chemo could mess up everything as well. Dr. Wolpert thinks the oncologist might want to radiate the area where the tumor was. He also said that sometimes radiation in that area can mess up the bladder. GREAT! Just what I need, more bladder trouble. Mine still isn't back to normal. I will see the urologist the day after the oncologist, so I'll be sure to ask him about it, if radiation is something the oncologist even thinks is necessary. Dr. Wolpert also said, again, that there is alot they can do for colon cancer (unlike some other cancers), and we don't know if it spread beyond those 2 lymph nodes. He also said something about have a clear margin around the tumor, meaning, I think, that he got any cancerous tissue that may have been around it.
After we left I realized I didn't ask Dr. Wolpert about when I can go back to work, and if its ok if I drive. I called the clinic when I got home and Jean, a nurse, called me back. I can go back to work 6 weeks after my sugery, which is Friday April 3rd. I was thinking I can go back on the 2nd so I would work 2 days, then have the weekend. The following week is just 4 days. That way I can sort of ease back into it. (Of course this all depends on chemo). As for driving, I can drive as soon as I stop taking narcotics (Percocet), and am sure I feel up to it. If I were to get pulled over, while still taking pain meds, I could get a DUI! So as much as I'd like to be able to drive myself places, I'm not ready to give up my morning Percocet. I always start the day sore and achy, and it really helps me get moving!
This afternoon Rich and I went to Famous Dave's in Forest Lake to meet my friend Diane (the one who gave me the super-soft robe!). I haven't seen her in a couple of years. It was so nice to visit with her and meet her new hubby--who I liked very much! I hope I don't have to wait another couple of years to see her! They might eventually move to Florida--so I guess I'll just have to take some trips down there! She made me a big stained glass suncatcher--its beautiful! If anyone would like a suncatcher, or even stepping stones, she does beautiful work! I'll post a pic here eventually.
So, that was my busy day. My incision is healing well, except for 2 little spots that got infected, but the surgeon didn't seem concerned at all about them. He just said to cover them with gauze to keep them clean and dry. Yesterday I did some dusting, which involved a lot of reaching and some bending. After a while I noticed my tummy was hurting and I knew it was time to sit for awhile. I think as long as I listen to my body, I'll be fine. Hopefully the weather will get warmer, and I can get out more for walks.
Rich went back to work this week, except for the 2 days I had appts. Alyssa has been around alot, and keeps an eye on me (even tho I don't need that anymore!). I started reading "The Shack", (from Sandy) and can only read it if I have Kleenex nearby! After that I'll read the book that Bonnie and Karen gave me (the 1st of the Mitford series--I think Alyssa stole it from me!).
Alyssa has been wanting Godfather's Pizza for awhile, maybe we'll try that tomorrow for lunch!
That's all for this update! I hope to hear from some of you! I enjoy reading your e-mails!
Love and blessings to you all!
Tina
In this you greatly rejoice, though now for a little while you may have had to suffer grief in all kinds of trials. 7These have come so that your faith—of greater worth than gold, which perishes even though refined by fire—may be proved genuine and may result in praise, glory and honor when Jesus Christ is revealed. 1Peter1:6-7
After we left I realized I didn't ask Dr. Wolpert about when I can go back to work, and if its ok if I drive. I called the clinic when I got home and Jean, a nurse, called me back. I can go back to work 6 weeks after my sugery, which is Friday April 3rd. I was thinking I can go back on the 2nd so I would work 2 days, then have the weekend. The following week is just 4 days. That way I can sort of ease back into it. (Of course this all depends on chemo). As for driving, I can drive as soon as I stop taking narcotics (Percocet), and am sure I feel up to it. If I were to get pulled over, while still taking pain meds, I could get a DUI! So as much as I'd like to be able to drive myself places, I'm not ready to give up my morning Percocet. I always start the day sore and achy, and it really helps me get moving!
This afternoon Rich and I went to Famous Dave's in Forest Lake to meet my friend Diane (the one who gave me the super-soft robe!). I haven't seen her in a couple of years. It was so nice to visit with her and meet her new hubby--who I liked very much! I hope I don't have to wait another couple of years to see her! They might eventually move to Florida--so I guess I'll just have to take some trips down there! She made me a big stained glass suncatcher--its beautiful! If anyone would like a suncatcher, or even stepping stones, she does beautiful work! I'll post a pic here eventually.
So, that was my busy day. My incision is healing well, except for 2 little spots that got infected, but the surgeon didn't seem concerned at all about them. He just said to cover them with gauze to keep them clean and dry. Yesterday I did some dusting, which involved a lot of reaching and some bending. After a while I noticed my tummy was hurting and I knew it was time to sit for awhile. I think as long as I listen to my body, I'll be fine. Hopefully the weather will get warmer, and I can get out more for walks.
Rich went back to work this week, except for the 2 days I had appts. Alyssa has been around alot, and keeps an eye on me (even tho I don't need that anymore!). I started reading "The Shack", (from Sandy) and can only read it if I have Kleenex nearby! After that I'll read the book that Bonnie and Karen gave me (the 1st of the Mitford series--I think Alyssa stole it from me!).
Alyssa has been wanting Godfather's Pizza for awhile, maybe we'll try that tomorrow for lunch!
That's all for this update! I hope to hear from some of you! I enjoy reading your e-mails!
Love and blessings to you all!
Tina
In this you greatly rejoice, though now for a little while you may have had to suffer grief in all kinds of trials. 7These have come so that your faith—of greater worth than gold, which perishes even though refined by fire—may be proved genuine and may result in praise, glory and honor when Jesus Christ is revealed. 1Peter1:6-7
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