February 6th was the 4 year anniversary of my tumor being found during a colonoscopy. I was having some symptoms that my primary Dr.(pcp) and gastro Dr. both thought were irritable bowel or colitis. Thankfully, before my pcp looked further into my symptoms, she wanted me to have a colonoscopy, and then we'd know more what we were dealing with. We were ALL surprised when the tumor was found. The gastro doc doing the procedure saw it right away (I was given some good drugs, but was fully awake) and said "See that? That shouldn't be there". After the exam the doc came in and told us he was sure it was cancer, although we needed to wait for the pathology report for the 'official' word. I am so grateful Rich was with me! We just held each other when the Dr. left. Then he came back, and told me he had set up a CT scan for me that afternoon. Things moved really fast! I remember the nurse giving me a hug when she walked us out and telling me I was going to be ok. That was so sweet, and yet scared me because I didn't really realize the gravity of the situation yet. Thanks to my 'happy drugs', I wasn't too upset yet--I told Rich in the truck after to stop looking so gloomy! Poor guy, he just found out his wife had cancer! I'm sure he was overwhelmed! (I don't think I'll ever know how hard all of this was on him, as he did a good job of keeping it from me. He was an EXCELLENT caregiver, and I'll always be grateful for that!)
Like I said, things moved quickly. My CT scan didn't show any other areas of cancer (except a possible lymph node). My gastro doc also contacted a surgeon, and an appt. to see him was scheduled, then my pre-op, then the surgery on Feb. 20th, just 2 weeks later. During surgery, 18" of my colon was removed and I was able to be reconnected. I came close to needing a colostomy, but am thankful I didn't! It was a tough surgery, and I was in the hospital 8 days. 2 of 20 lymph nodes had cancer, and I was stage 3b.
My wonderful oncologist told me this type of cancer could be CURED. Because of my young age (44), I was given everything they could possibly throw at me! None of my chemos were reduced, even with bad side effects. Once he even let me get chemo when my counts were really low--the nurse had to go ask him if the orders were correct! But he knew my counts always bounced back quickly when I had a neupogen shot, so he wasn't worried! I think it made a difference that my onc knew me well enough to know that I really wanted to complete all the treatments. If I had said it was too hard and I wanted to back off a bit he probably would have, as I think he would have respected my wishes. Same thing with radiation. That was even more difficult, and I was told I didn't need to finish, but it was important to me to finish those last 3, and I did! Although, I have to say, I never realized all the side effects I would have to live with!
Sometimes I have a hard time remembering how awful it all was, and other times I remember too well! I get frustrated dealing with painful side effects, but mostly, I am just so glad to be living life, cancer free. I am enjoying my children and grandchildren. My girls are such a blessing to me! They really stepped up and did everything they could to help me get through those tough days of cancer treatment. I'm sure it was hard to watch their mom get cancer TWICE. They are amazing young women!
Enough reminiscing...my 6 month CT scans are coming up next Monday, Feb. 18th. I'll also get my labs done that day too. Then the following week I see my oncologist and have a mammogram. This coming Thurs. (the 14th) I'll see my colorectal surgeon about the fistula, and I'm thinking I'll have to have surgery on that soon. That is a side effect from surgery and radiation. :(
1 more year and I'll hit that 5 year mark! I'm going to ask Dr. J about being 'cured'; if that still fits my case or not. I don't remember if the breast cancer will ever be considered cured--maybe because I was only stage 2b, I can be cured of that too. I'm not sure--I hope I remember to ask! April 1st will be 3 years from the breast cancer diagnosis.
Life goes on, and God is good! :)
Love,
Tina
Showing posts with label tumor. Show all posts
Showing posts with label tumor. Show all posts
Monday, February 11, 2013
Wednesday, January 13, 2010
Low Platelets!
Yep, my platelets are low, just as the doc and I thought they would be. They were 96 last time, and that was almost too low, and this time they were 85. My wbc were high due to the shots. We will wait a week and try again! In the meantime, I will be enjoying feeling good! :)
I asked the doc today about my tumor. I reminded him that it was "moderately differentiated" (sp?), and asked him how long he thought it took to grow. He said it probably took about 5 years to grow and was moderately aggressive--sort of middle of the road. It started as a polyp, and that is why I will have a colonoscopy every 1-3 years, so if another polyp starts they will find it and remove it before it gets cancerous. As for the cancer spreading, the fact that it only made it to 2 lymph nodes is a good thing, and the doc said all the treatment I had should have gotten any remaining cancer cells. My prognosis looks pretty good. Just off the top of his head, he thinks I have at least a 75% chance of it NOT returning. He doesn't expect it to spread. So that was all good to hear!
We also talked about my neuropathy. Its there, but doesn't hurt, just tingles. Dr. J said it would be alot worse if I didn't have that break from Oxaliplatin over the summer during radiation. He checked to make sure I still had feeling in my fingers, and told me I should call him if it gets "bothersome". There are trials going on now to find something that works better. Apparently there is a hand cream they are trying out.
I'll have a colonoscopy the end of Feb., then I'll see the doc and have labs done in about 4 months. After that I'll have a ct scan. I asked about pet scans and he said its harder to see details on the pet scan and the ct works better for the colon. I'll continue to see the doc every 3 months after that, and ct scans every 6 months. Not sure how long that will go on. It was an interesting office visit!
I couldn't help thinking how weird it will be after my last chemo--when I start feeling good, I'll KEEP feeling good. It won't only be a few days of feeling good. And then I'll be able to put ice in all my drinks again, and eat sherbet...ahhh that'll be soooo good!
My plan is to start using the treadmill and eat healthier so I can regain my strength (I can hardly make it up a short flight of steps these days. My legs are really weak!), AND keep the weight off (and hopefully lose more!!) I should start this week!
I've also got to make a better plan for Bible reading. I've always struggled with having a set time, but I really should be reading it daily. So I've got some ideas to make that work.
So much to think about--no wonder I can't sleep some nights!
Oh--I took an Ativan before my appt. this morning, and didn't have any trouble with feeling nauseous after having my port wiped with alcohol, or getting the saline flush. I'll have to remember that before every port draw!
Speaking of ports, I will leave mine in at least until I have my ct scan. I don't know if I'll want to leave it in longer than that--we'll see.
That's all for now!
Thanks for all the well wishes and prayers!
Love,
Tina
I asked the doc today about my tumor. I reminded him that it was "moderately differentiated" (sp?), and asked him how long he thought it took to grow. He said it probably took about 5 years to grow and was moderately aggressive--sort of middle of the road. It started as a polyp, and that is why I will have a colonoscopy every 1-3 years, so if another polyp starts they will find it and remove it before it gets cancerous. As for the cancer spreading, the fact that it only made it to 2 lymph nodes is a good thing, and the doc said all the treatment I had should have gotten any remaining cancer cells. My prognosis looks pretty good. Just off the top of his head, he thinks I have at least a 75% chance of it NOT returning. He doesn't expect it to spread. So that was all good to hear!
We also talked about my neuropathy. Its there, but doesn't hurt, just tingles. Dr. J said it would be alot worse if I didn't have that break from Oxaliplatin over the summer during radiation. He checked to make sure I still had feeling in my fingers, and told me I should call him if it gets "bothersome". There are trials going on now to find something that works better. Apparently there is a hand cream they are trying out.
I'll have a colonoscopy the end of Feb., then I'll see the doc and have labs done in about 4 months. After that I'll have a ct scan. I asked about pet scans and he said its harder to see details on the pet scan and the ct works better for the colon. I'll continue to see the doc every 3 months after that, and ct scans every 6 months. Not sure how long that will go on. It was an interesting office visit!
I couldn't help thinking how weird it will be after my last chemo--when I start feeling good, I'll KEEP feeling good. It won't only be a few days of feeling good. And then I'll be able to put ice in all my drinks again, and eat sherbet...ahhh that'll be soooo good!
My plan is to start using the treadmill and eat healthier so I can regain my strength (I can hardly make it up a short flight of steps these days. My legs are really weak!), AND keep the weight off (and hopefully lose more!!) I should start this week!
I've also got to make a better plan for Bible reading. I've always struggled with having a set time, but I really should be reading it daily. So I've got some ideas to make that work.
So much to think about--no wonder I can't sleep some nights!
Oh--I took an Ativan before my appt. this morning, and didn't have any trouble with feeling nauseous after having my port wiped with alcohol, or getting the saline flush. I'll have to remember that before every port draw!
Speaking of ports, I will leave mine in at least until I have my ct scan. I don't know if I'll want to leave it in longer than that--we'll see.
That's all for now!
Thanks for all the well wishes and prayers!
Love,
Tina
Friday, February 27, 2009
Pathology update
Hey everyone! Its actually Tina writing this time!
I wanted to let everyone know the results of the pathology tests, at least as much as I know. The surgeon took 21 lymph nodes total, and of those, only 2 had cancer cells. I consider that to be good news. As far as anyone knows, we may have gotten all the cancer. The problem, of course, is that there is no way to know for sure. Therefore, I'll probably have to have chemo. The only other thing I found out was that my tumor was "moderately differentiated", which apparently means it was not an aggressive tumor.
My surgeon said he will set up an appt. with an oncologist after my post-op appt., which should be 1-2 weeks after I'm released from the hospital. So, I won't actually know what the plan of attack is for a few weeks yet. I just need time to heal and thats all my surgeon wants me to think about for now. I was even told not to diet or place any restrictions on what I eat. Just listen to my body and eat whatever I think it needs. The only thing I need to make sure I get enough of is protein, because it will help my body heal faster. Too bad chips don't help the body heal faster!
I can eat anything I want, as of today, but am still sticking to soft-solids. I still have some nausea after eating because my "plumbing" is not all working quite as it should be, but its getting there. I'm getting 3 small meals and 3 snacks today.
I might be able to come home tomorrow, if my nausea goes away. They took me off the big drugs today and changed me to Percoset. I was very nervous to be disconnected from my pain killer, but the percoset works fine! I definitely can tell when its time for my next dose tho!
I have no more IVs at all now. I didn't know what to do with my hands when I went for my first walk without my "Sammy" pole. (I had to name it--we had a pretty intimate relationship!) Now on to a more "delicate" subject: Wed. they took my catheter (Foley) out, but had to put it back in. I was SOOOO disappointed!! It was depressing. But a urologist stopped by and explained that it is common to have this problem with the type of surgery I had. I'll have to bring it home with me, and then go to the clinic sometime next week to have it removed again. I write about this personal stuff in case there is someone else out there going thru the same thing I am, and maybe they'll feel little better knowing they are not alone. If any of you have had experiences with caths at home, be sure to let me know!
I have enjoyed reading everyone's comments, emails and cards. Thanks so much!!!
Love and blessings!
Tina
I wanted to let everyone know the results of the pathology tests, at least as much as I know. The surgeon took 21 lymph nodes total, and of those, only 2 had cancer cells. I consider that to be good news. As far as anyone knows, we may have gotten all the cancer. The problem, of course, is that there is no way to know for sure. Therefore, I'll probably have to have chemo. The only other thing I found out was that my tumor was "moderately differentiated", which apparently means it was not an aggressive tumor.
My surgeon said he will set up an appt. with an oncologist after my post-op appt., which should be 1-2 weeks after I'm released from the hospital. So, I won't actually know what the plan of attack is for a few weeks yet. I just need time to heal and thats all my surgeon wants me to think about for now. I was even told not to diet or place any restrictions on what I eat. Just listen to my body and eat whatever I think it needs. The only thing I need to make sure I get enough of is protein, because it will help my body heal faster. Too bad chips don't help the body heal faster!
I can eat anything I want, as of today, but am still sticking to soft-solids. I still have some nausea after eating because my "plumbing" is not all working quite as it should be, but its getting there. I'm getting 3 small meals and 3 snacks today.
I might be able to come home tomorrow, if my nausea goes away. They took me off the big drugs today and changed me to Percoset. I was very nervous to be disconnected from my pain killer, but the percoset works fine! I definitely can tell when its time for my next dose tho!
I have no more IVs at all now. I didn't know what to do with my hands when I went for my first walk without my "Sammy" pole. (I had to name it--we had a pretty intimate relationship!) Now on to a more "delicate" subject: Wed. they took my catheter (Foley) out, but had to put it back in. I was SOOOO disappointed!! It was depressing. But a urologist stopped by and explained that it is common to have this problem with the type of surgery I had. I'll have to bring it home with me, and then go to the clinic sometime next week to have it removed again. I write about this personal stuff in case there is someone else out there going thru the same thing I am, and maybe they'll feel little better knowing they are not alone. If any of you have had experiences with caths at home, be sure to let me know!
I have enjoyed reading everyone's comments, emails and cards. Thanks so much!!!
Love and blessings!
Tina
Thursday, February 12, 2009
What a week!
I'll start at the beginning...
Last Friday, the 6th of Feb., I had a colonoscopy done due to some problems I was having. Since everyone asks, I'll tell you the main problems I was having--blood and mucus in the stool. Sorry if you didn't want to know that, but so many people have asked. And if you have these problems you'll know not to wait and get it checked out ASAP!! Anyways, the doc found a tumor in my colon. He set me up for a CT scan that afternoon, and made an appt. with a surgeon for the following Thurs. (which was today).
On Tues. the doc called me and said the tumor is cancerous, but there were no other tumors on the scan.
Today I met the surgeon. He's a nice enough guy. The nurse said I'll be in good hands. She, Michelle, was REALLY nice, and spent alot of time with us, answering all our questions and going over everything with us. Rich went with me, of course. (He's been by my side through this all, and I know its hard on him too.) After spending alot of time with Michelle, I had to have some blood drawn (pre-op stuff), and got a chest x-ray.
The surgery will be done next Friday, the 2oth of February. Apparently there were a couple other "nodules" on the scan that I didn't know about. Well, one I did, and the doc thinks it might just be a fatty deposit, but the other one is near the tumor and the surgeon thinks it could be a lymph node. He'll find them both during the surgery and remove if necessary. The location of the tumor is in an "ok" place. Not the best, and not the worst. The surgeon (His name is Dr. Wolpert) thinks he'll be able to reconstruct everything, but there are no guarantees. He expects to remove about 12 inches of my colon.
I'll be in the hospital (Regions)5-7 days, and unable to work about 6 weeks(!). I'll have the results of the tests from the removed tissue and lymph nodes 2-3 days after surgery. That is when they'll have all the info they need to stage the cancer. From there we'll decide whether I need an oncologist, and whether I'll need chemo. Dr Wolpert said chemo is quite common for colon cancer. Some people even need radiation too.
I'm holding up ok. This has all happened so fast! Today was really tough. Surgery scares me. For you prayer warriors, I'm praying that the cancer hasn't spread, that the "nodule" is just some blip--or gone by the time he gets in there! And I really just need peace. My biggest fear, of course, is the colostomy. I don't want to live with one for the rest of my life!!
God is with me, and no matter what happens, remember He is good! ALL THE TIME!!
AMEN
Love ya all,
Tina
Last Friday, the 6th of Feb., I had a colonoscopy done due to some problems I was having. Since everyone asks, I'll tell you the main problems I was having--blood and mucus in the stool. Sorry if you didn't want to know that, but so many people have asked. And if you have these problems you'll know not to wait and get it checked out ASAP!! Anyways, the doc found a tumor in my colon. He set me up for a CT scan that afternoon, and made an appt. with a surgeon for the following Thurs. (which was today).
On Tues. the doc called me and said the tumor is cancerous, but there were no other tumors on the scan.
Today I met the surgeon. He's a nice enough guy. The nurse said I'll be in good hands. She, Michelle, was REALLY nice, and spent alot of time with us, answering all our questions and going over everything with us. Rich went with me, of course. (He's been by my side through this all, and I know its hard on him too.) After spending alot of time with Michelle, I had to have some blood drawn (pre-op stuff), and got a chest x-ray.
The surgery will be done next Friday, the 2oth of February. Apparently there were a couple other "nodules" on the scan that I didn't know about. Well, one I did, and the doc thinks it might just be a fatty deposit, but the other one is near the tumor and the surgeon thinks it could be a lymph node. He'll find them both during the surgery and remove if necessary. The location of the tumor is in an "ok" place. Not the best, and not the worst. The surgeon (His name is Dr. Wolpert) thinks he'll be able to reconstruct everything, but there are no guarantees. He expects to remove about 12 inches of my colon.
I'll be in the hospital (Regions)5-7 days, and unable to work about 6 weeks(!). I'll have the results of the tests from the removed tissue and lymph nodes 2-3 days after surgery. That is when they'll have all the info they need to stage the cancer. From there we'll decide whether I need an oncologist, and whether I'll need chemo. Dr Wolpert said chemo is quite common for colon cancer. Some people even need radiation too.
I'm holding up ok. This has all happened so fast! Today was really tough. Surgery scares me. For you prayer warriors, I'm praying that the cancer hasn't spread, that the "nodule" is just some blip--or gone by the time he gets in there! And I really just need peace. My biggest fear, of course, is the colostomy. I don't want to live with one for the rest of my life!!
God is with me, and no matter what happens, remember He is good! ALL THE TIME!!
AMEN
Love ya all,
Tina
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