Apparently, when Rachel was over here using my computer the other day, she decided to make a blog post for me! It took me a few days to figure it out! Some things never change :)
Well, yes, I am still alive! It's been awhile since I've posted! I have been busy with my grandsons, Shonna, my messy house, etc.
Shonna is home for the summer, well, at least until the beg. of Aug. Then she will go back to KC for another year of school at the International House of Prayer (IHOPU). Today she sang on the worship team at church. It's been awhile since she's been able to do that; it was good to see her back up on the stage.
The boys are doing great! Charlie is gaining weight and is learning things fast! Brennan is still a good little brother, but sometimes he gets a little tired of Charlie! I still watch B often because C has had a lot of dr. appointments. It'll be awhile before Charlie has any surgery though, there are other things they need to work on first. You can check out Rachel's blog (Love is Sugar Free) for more info on the boys. (Link is over there
---->)
I don't think about cancer much anymore. I do still get annoyed at the side effects I'm left with though. I went over all the side effects in one of my last blogs. I think I forgot to add my sore shoulder though. It has been stiff and sore since my mastectomy last May. It got worse for awhile, but now it's slightly better. It didn't hurt as bad when I had to lay it above my head for my last MUGA scan. I was always going to get physical therapy for it, but I just haven't. I think I'm just tired of medical appointments! I still need to see the dentist too! It's been over a year. I see my primary doc on Thurs. to go over some things and get some blood tests. Just routine stuff. I haven't seen her in a long time.
I saw my oncologist the last time I was in for my Herceptin infusion. My MUGA showed my heart is still doing good on the blood pressure med I am on. I take the med not for high blood pressure, but because my heart function was decreasing from the Herceptin. My onc was pleased with how well I was doing. I will see him again when I have my last Herceptin in Aug. I'll have another MUGA , ct scan, and bloodwork a few days before I see him. Oh--speaking of bloodwork--my hemoglobin is finally back in the normal range! The fist time since last April! Everything else looked pretty good too--a few things out of whack yet, but nothing serious.
It's been a year since my mastectomy--May 24th, 2010. What a traumatic time that was! I wish I could say that I'm used to it and it doesn't bother me anymore, but that's not entirely true. It's, like my side effects, an annoyance. I'm trying to find a good swimsuit now. Insurance pays for bras and prosthetics, but not swimsuits, so it'll be expensive. I just want one so I can go in the hot tub when we go to Duluth. I did find some online, just haven't ordered yet.
I have been seriously considering reconstruction, but that is a major surgery and I'm not sure I want to put myself through that. I will lose use of muscle, and the recovery is long. I've put off any thought of that until next year. If I decide I want recon, I can do it anytime I want, and insurance will pay for it.
When I went to see my onc I wanted him to say that I am "NED" (No Evidence of Disease). I told the nurse that and I started choking up a bit. She left the room and I started crying a bit--I had no idea I would be emotional about it! Thankfully the doc took a while to come in and see me and I got myself under control, but I didn't want to bring it up and start crying! So I didn't hear him say it, but since all my tests and scans have come back clear I am going to say I'm NED!!!
Time for bed!
May God bless each of you this week!
Tina
Showing posts with label herceptin. Show all posts
Showing posts with label herceptin. Show all posts
Sunday, May 29, 2011
Friday, March 18, 2011
Daughter Meets Her Son
The top picture is of Rachel earlier today when she went to the orphanage and got to hold her son for the first time. It is such a beautiful picture, I just had to share it. The other 2 pictures are of Brennan this past week--wearing Grandpa's sunglasses, and sitting in his little chair after his bath this morning.
We have been able to skype with Rachel almost everyday. The first 2 times were a little confusing for Brennan and made him sad, but now he smiles, waves "hi" and goes off and plays. Brennan is at his other grandparents' house now for the weekend. He loves them too, and loves to be over there. At first he was a little shy around his other grandpa, and clung to me, but then he got a better look at him (he was busy putting in the carseat) and was happy to go with him. I was so relieved! I worry about Brennan so much, being away from his mommy and daddy, so I was very glad to see him laughing in the carseat, ready to go! He has been keeping me busy this week! I will miss him, but enjoy a little R & R.
Rachel and Ken got to sight-see in the capitol city for a few days, and then they took an overnight train to the town where the orphanage is. They spent some time with Charlie (they have pretty much settled on that name), holding him and playing with him. He is 3.5 years old, but only about as tall as Brennan, and much thinner. Rachel said he and Ken started playing a little game that Charlie picked up on very quickly. I think in the right environment he will learn very quickly. They will be over there another week or so, then come home for about 10 days and go back. When they go back they will finally be able to bring Charlie home!
Tonight Rich and I are going out to dinner and we have a little shopping to do this weekend. Like I said, I'll be resting a lot and taking it easy too. I had my Herceptin infusion on Wed., and that always makes me a little more tired. I really just want to sleep in--I've been setting my alarm to get up before Brennan--no alarm tomorrow!
I've been sort of frustrated with how tired I've been lately, even before Brennan got here. I want to get into a routine of exercising and see if that helps, but with Brennan here I don't have the time. I'm not getting up any earlier, and by the time he goes to sleep I am way too tired! If it ever really warms up (and stays warm for more than a day!), I can take Brennan out in the stroller. Alyssa and Jaren took him out a few days ago; he likes getting outside.
Well, I really don't have much else to say!
Please pray for Rachel and Ken's safety, and keep Charlie in your prayers too. I'm praying this whole adoption process goes really smoothly and quickly!
Blessings!
Tina
Saturday, February 19, 2011
Orphans
As most of you know, my daughter Rachel is in the process of adopting a 3 (almost 4!) year old boy from an Eastern Europe country. She is adopting through an organization called Reece's Rainbow. Most of the kids on their website have Down Syndrome, as does the little boy she is adopting. Rachel's papers (dossier) have been submitted in the country, so now she waits to find out that they were approved and what date she needs to be over there. Hopefully she and hubby will be traveling in 5-7 weeks! Well, my point in all of this is to tell you about the blog Rachel has started to advocate for orphans. She tells about many of them that desperately need families (and lets us know when they get their family!), and she lists many ways people can help. Many of us feel we aren't called to adopt, but there are so many other ways to help. Sharing her blog, giving financially to the kids (You can pick which one you want to help and donate directly to that child's fund!), and buying supplies for the orphanage are just a few ways you can help. These children are the "least of these" that Jesus talks about. They need our help. Ignoring them isn't an option. Please visit her blog, and if nothing else, pray for the children. Click HERE. Thank you!!
Now for a little update about me. I've had some tests lately, and so far, so good! I had an ultrasound to see what my ovaries are doing (I've had cysts in the past and we also wanted to see if things look menopausal), and some blood tests. The u/s showed that I still have a cyst, which seems to always be there, and we are going to check it again in 6 weeks. I heard the words "with your history" several times from my obgyn, and that is why we are watching things more carefully. I also had the ca-125 test, which is for ovarian cancer. It's only reliable if the number is high--then something is wrong. But if the # is normal, is doesn't mean you don't have cancer. We are pretty sure, though, that I don't have ovarian cancer...but with my history....sigh. We also did the FSH blood test which gives an idea if I am producing any estrogen. At the moment I am not, but that could be from radiation and chemo, so my menopause may not be permanent. There is no way to tell. In 6 weeks we might discuss having the ovaries removed--my obgyn seems to want that, but technically there is no reason other than something less to worry about. I'll have to take that up with God--I'm not sure removing body parts "just in case" (when it's not even a high risk) is something He would think is a good idea. We'll see. I'll discuss it with my onc this week too.
Monday I have a ct scan (I think chest, abdomen and pelvic area again), and a MUGA scan. The CT is for the colon cancer (to look for mets) and the MUGA is to check on my heart to make sure it's still functioning well. You may recall that my heart function decreased from the Herceptin, but the bp med (Enalapril) increased it. I see my onc on Wed., when I will have labs done and get my next Herceptin infusion. We'll discuss everything then.
I don't have my mammo and MRI scheduled yet, but they should be in April--then I will be declared cancer free! Can't wait!!
I complain about being poked, prodded, and nuked, but these tests do give me a sense of security. My onc wants me to have a ct scan every 6 months for awhile, and that's ok with me. Most of us that have had cancer worry about what might be going on in our body when we are not being tested!
I am still enjoying my time off, but not getting nearly as much done as I wanted! I seem to be pretty busy running here and there. Doc and test appointments take up a lot of time. I get frustrated sometimes with how tired I still feel. I'm still working on making exercise a routine. I do it only if I "have time", or "feel like it". It needs to happen more often!! Yeah, the dieting is not going so well either...
Oh--big news!! I went "topless" (with out a scarf) for the first time today! I went to the women's breakfast at church this morning and of course everyone noticed. Everyone was real nice and said I looked great! I knew the first time was going to be the hardest, because everyone would notice, so I just had to do it and get it over with! I felt really awkward at first. Too bad it's so darn cold! I hate the cold on my neck and ears!
Well, that's all for now! I'll update later this week, after seeing my oncologist on Wed.
Love and blessings!
Tina
Now for a little update about me. I've had some tests lately, and so far, so good! I had an ultrasound to see what my ovaries are doing (I've had cysts in the past and we also wanted to see if things look menopausal), and some blood tests. The u/s showed that I still have a cyst, which seems to always be there, and we are going to check it again in 6 weeks. I heard the words "with your history" several times from my obgyn, and that is why we are watching things more carefully. I also had the ca-125 test, which is for ovarian cancer. It's only reliable if the number is high--then something is wrong. But if the # is normal, is doesn't mean you don't have cancer. We are pretty sure, though, that I don't have ovarian cancer...but with my history....sigh. We also did the FSH blood test which gives an idea if I am producing any estrogen. At the moment I am not, but that could be from radiation and chemo, so my menopause may not be permanent. There is no way to tell. In 6 weeks we might discuss having the ovaries removed--my obgyn seems to want that, but technically there is no reason other than something less to worry about. I'll have to take that up with God--I'm not sure removing body parts "just in case" (when it's not even a high risk) is something He would think is a good idea. We'll see. I'll discuss it with my onc this week too.
Monday I have a ct scan (I think chest, abdomen and pelvic area again), and a MUGA scan. The CT is for the colon cancer (to look for mets) and the MUGA is to check on my heart to make sure it's still functioning well. You may recall that my heart function decreased from the Herceptin, but the bp med (Enalapril) increased it. I see my onc on Wed., when I will have labs done and get my next Herceptin infusion. We'll discuss everything then.
I don't have my mammo and MRI scheduled yet, but they should be in April--then I will be declared cancer free! Can't wait!!
I complain about being poked, prodded, and nuked, but these tests do give me a sense of security. My onc wants me to have a ct scan every 6 months for awhile, and that's ok with me. Most of us that have had cancer worry about what might be going on in our body when we are not being tested!
I am still enjoying my time off, but not getting nearly as much done as I wanted! I seem to be pretty busy running here and there. Doc and test appointments take up a lot of time. I get frustrated sometimes with how tired I still feel. I'm still working on making exercise a routine. I do it only if I "have time", or "feel like it". It needs to happen more often!! Yeah, the dieting is not going so well either...
Oh--big news!! I went "topless" (with out a scarf) for the first time today! I went to the women's breakfast at church this morning and of course everyone noticed. Everyone was real nice and said I looked great! I knew the first time was going to be the hardest, because everyone would notice, so I just had to do it and get it over with! I felt really awkward at first. Too bad it's so darn cold! I hate the cold on my neck and ears!
Well, that's all for now! I'll update later this week, after seeing my oncologist on Wed.
Love and blessings!
Tina
Tuesday, February 8, 2011
2 Year Cancerversary
Sunday, February 6th, was 2 years since I first found out I had cancer. That was the day I had the colonoscopy and the tumor was found. Boy, how life changes when you hear "you have cancer"!! You can read about what I've been through by clicking on the tab "My Journey" above.
I had my 14th Herceptin infusion last Wed. (the 2nd). This one made me more tired than usual. I'm not sure why. I watched Brennan that afternoon, and thankfully Rich came home a little early from work to help out! The next day I made it to Bible Study at 9:30, but I was still really tired. And Friday I took mom to get groceries (she came home from Craig's on Wed. eve), still very tired! It even lasted into the weekend. Also, my stomach was a little upset, sort of gurgly, and moments of nausea. So, in 3 weeks, when I get my next one, I won't plan ANYTHING for the 2 or 3 days after. Except Bible study.
This Friday I have an ultrasound (for female troubles--some of which were caused by radiation--the gift that keeps on giving!), and the Mon. before my next Herceptin I have a CT scan (to make sure the colon cancer didn't spread anywhere) and a MUGA scan (for the heart to make sure the Herceptin isn't doing anymore damage). Sometime in April I will have a mammo and mri, and hopefully after all those tests I will be declared NED (No Evidence of Disease)!! That will be a happy day!!
Enough about me--Alyssa and Jaren are back from their mission trip. It was a good trip and they both enjoyed it. Alyssa took care of kids all week while the moms were in a Bible study (they used Beth Moore's Esther study), and Jaren helped pour concrete for the foundation of a new room. There were a few nights that they had a Marriage conference also. Both of them gave their testimony about their relationship, and Alyssa shared a bit of her testimony at the women's study. I am so very proud of them both!
Jaren is currently going to school to be a cop, while working for 2 of our nearby police departments as a Community Service Officer (CSO). He is still a member of the Nat'l Guard, and spends 1 weekend a month and 2 weeks in the summer with them. Hopefully no more trips to Iraq or Afghanistan! He is a busy boy!
Alyssa is still a cheerleading coach, and decided to continue doing it next year too. She loves the job and the girls she coaches! She finished her Assoc. degree in Bus. Management and is looking for a part time job (anyone need a great receptionist or office worker? She has great customer service skills!)
Rachel submitted all her paperwork to the country of her little boy. We are hoping it will be submitted to the judge (or whoever) on Thurs. Then about 2 weeks after that, if it is approved, she will be contacted with the date to go over there! We are getting closer! Rich and I will have Brennan here while Rachel and Ken are overseas. We need to get his room ready!
Sat. Rachel and Ken had the flu, and I had to take Rachel to the ER around 11 pm. She was getting very dehydrated. Also, being diabetic, that can be dangerous. So we went in and she got a couple of bags of fluids, they ran a few blood tests, and we got to go home. I got home a little after 3am. Needless to say, I didn't get up for church Sunday!(I did listen to the sermon online today--very good!) That really threw me off! I think I was either still feeling the effects of the Herceptin, or fighting off the flu myself. We went to Alyssa's for the Superbowl, but left before it was done because I wasn't feeling well. Still tired yesterday, but today I feel pretty good. Sadly, the Steelers lost.
We are trying to plan little trip to see Shonna in KC. We might go this weekend. We want to go see all the Harry Truman stuff in Independence, Mo. Rich and I toured his home about 20 years ago. Shonna is a history buff, like us, and would like to see it too. Her schedule is so busy that Sundays are about the only day she can do anything.
Mom and Dee are going to Mexico soon, for a vacation. I could go, but it's not something I want to spend money on. I'm saving my pennies for a Duluth vacation this summer on my birthday--remember I'm going to be cancer free for this birthday and I want to celebrate because the last 2 I was too sick!
Well, another long and rambling blog entry for you all. HI to my relatives! Hope everyone is healthy and staying warm!
Love and blessings!
Tina
ps I put some new links on the side of my blog. One of them is "This Little Light" (on the blog list) and it's Rachel's blog for orphan advocacy--check it out! Also, her other blog is there too-"Love is sugar free".
I had my 14th Herceptin infusion last Wed. (the 2nd). This one made me more tired than usual. I'm not sure why. I watched Brennan that afternoon, and thankfully Rich came home a little early from work to help out! The next day I made it to Bible Study at 9:30, but I was still really tired. And Friday I took mom to get groceries (she came home from Craig's on Wed. eve), still very tired! It even lasted into the weekend. Also, my stomach was a little upset, sort of gurgly, and moments of nausea. So, in 3 weeks, when I get my next one, I won't plan ANYTHING for the 2 or 3 days after. Except Bible study.
This Friday I have an ultrasound (for female troubles--some of which were caused by radiation--the gift that keeps on giving!), and the Mon. before my next Herceptin I have a CT scan (to make sure the colon cancer didn't spread anywhere) and a MUGA scan (for the heart to make sure the Herceptin isn't doing anymore damage). Sometime in April I will have a mammo and mri, and hopefully after all those tests I will be declared NED (No Evidence of Disease)!! That will be a happy day!!
Enough about me--Alyssa and Jaren are back from their mission trip. It was a good trip and they both enjoyed it. Alyssa took care of kids all week while the moms were in a Bible study (they used Beth Moore's Esther study), and Jaren helped pour concrete for the foundation of a new room. There were a few nights that they had a Marriage conference also. Both of them gave their testimony about their relationship, and Alyssa shared a bit of her testimony at the women's study. I am so very proud of them both!
Jaren is currently going to school to be a cop, while working for 2 of our nearby police departments as a Community Service Officer (CSO). He is still a member of the Nat'l Guard, and spends 1 weekend a month and 2 weeks in the summer with them. Hopefully no more trips to Iraq or Afghanistan! He is a busy boy!
Alyssa is still a cheerleading coach, and decided to continue doing it next year too. She loves the job and the girls she coaches! She finished her Assoc. degree in Bus. Management and is looking for a part time job (anyone need a great receptionist or office worker? She has great customer service skills!)
Rachel submitted all her paperwork to the country of her little boy. We are hoping it will be submitted to the judge (or whoever) on Thurs. Then about 2 weeks after that, if it is approved, she will be contacted with the date to go over there! We are getting closer! Rich and I will have Brennan here while Rachel and Ken are overseas. We need to get his room ready!
Sat. Rachel and Ken had the flu, and I had to take Rachel to the ER around 11 pm. She was getting very dehydrated. Also, being diabetic, that can be dangerous. So we went in and she got a couple of bags of fluids, they ran a few blood tests, and we got to go home. I got home a little after 3am. Needless to say, I didn't get up for church Sunday!(I did listen to the sermon online today--very good!) That really threw me off! I think I was either still feeling the effects of the Herceptin, or fighting off the flu myself. We went to Alyssa's for the Superbowl, but left before it was done because I wasn't feeling well. Still tired yesterday, but today I feel pretty good. Sadly, the Steelers lost.
We are trying to plan little trip to see Shonna in KC. We might go this weekend. We want to go see all the Harry Truman stuff in Independence, Mo. Rich and I toured his home about 20 years ago. Shonna is a history buff, like us, and would like to see it too. Her schedule is so busy that Sundays are about the only day she can do anything.
Mom and Dee are going to Mexico soon, for a vacation. I could go, but it's not something I want to spend money on. I'm saving my pennies for a Duluth vacation this summer on my birthday--remember I'm going to be cancer free for this birthday and I want to celebrate because the last 2 I was too sick!
Well, another long and rambling blog entry for you all. HI to my relatives! Hope everyone is healthy and staying warm!
Love and blessings!
Tina
ps I put some new links on the side of my blog. One of them is "This Little Light" (on the blog list) and it's Rachel's blog for orphan advocacy--check it out! Also, her other blog is there too-"Love is sugar free".
Monday, January 24, 2011
January 24th Update
Hey everyone! I haven't been posting much because there just isn't much to say! I am enjoying life, and giving myself time to heal.
I want to mention my sadness over the loss of a sister blogger. She passed away a few days ago after a long battle with stage 4 breast cancer. I knew she was getting worse, but there still seemed to be hope, so this was sort of sudden. She occasionally read my blog, and it is sad writing this one knowing she won't be reading it. We will miss you Daria! Please pray for her husband and family.
Last Thursday, the 20th, was one year since I finished the FOLFOX chemo for colon cancer. Coming up soon will be my 2 year "cancerversary". In about a month I'll have my CT scan to check for more cancer. The thought doesn't make me nervous yet, but we'll see what happens when the date gets closer! Even though I know God is with me, I still wouldn't like to hear there is more cancer!
As far as the breast cancer goes, I will have my next Herceptin infusion next Wed., Feb. 2nd. The infusions are every 3 weeks. I might have to have some labs done because of the bp med I'm taking, but I won't be seeing my onc at this appt. I'll see him next time to go over my CT and MUGA results.
I'm still thinking about whether or not I want to do reconstruction. I've been reading others' experiences, and there is a private website where you can look at pictures of reconstruction. I'm am so grateful to the women who have put their pictures and their stories there to help others. I would probably have to have some sort of "flap" surgery, because radiation affects the skin too much for implants. One of the flap procedures uses the muscle from your back and brings it around to the front. This sounds painful to me! I'm not sure I want to go through a major surgery and 6 week recovery again. We'll see... Any pros and cons from any readers that have gone through this(recon or not) please e-mail me!
I am LOVING my time off! I feel so guilty sometimes, then I remember all I've been through the past 2 years, and I don't feel so guilty anymore! Also, because of my neuropathy I can't work anyways, at least not until it warms up outside! I usually watch Brennan once or twice a week, I have time to IRON (something I always hated to do but mostly because I didn't have time! Rich was happy to have some of his shirts back!), I am helping out at church again ( I do copying and stuff for the Children's Pastor), AND I joined a women's Bible study that is on Thurs. mornings. It's a Beth Moore study called "Breaking Free". It's pretty intense, and helps you overcome anything that might be holding you captive. I have no idea what that might be right now, but I'm pretty sure I'm going to find out! God wanted me at this study for a reason. The study says that "A Christian is held captive by anything that hinders the abundant and effective Spirit-filled life God planned for her". I want that "abundant and effective Spirit-filled life" that God has planned for me! Rachel and Alyssa are doing the study too. Alyssa has also done other Beth Moore studies.
Speaking of Alyssa, she and Jaren are down in Cabo San Lucas on their mission trip right now. They will be building a classroom for the youth in the area and putting on a marriage seminar. She sent me an e-mail after their 1st day. It is warm and beautiful there and she saw some whales in the bay! They asked for prayer for sleep (apparently the bed and pillow are hard as rocks!), and for them not to have any stomach troubles or illness. Also, please pray for the lives they will be touching down there. This is a very poor area where the kids are often left alone during the day. There is lots of drug use also. Pray for the team to be strong in the Lord and the presence of the Holy Spirit to be with them.
Rachel is spending a lot of time trying to get all their paperwork done for the adoption. Many forms have had to be redone more than once. If everything is not PERFECT it has to be redone! They are hoping to be one of the first families called to go over there to adopt their son. Hopefully this will be in March or April!
Shonna is back at school and busy as ever. She works a few hours a week at a nearby library. She will be learning how to play the keyboard and has some sort of singing lessons too, I think. Also choir, theology, and required time in the prayer room. Here is a link to the prayer room. It's great to listen to during your own prayer time or Bible study time.
Well, that's all for today!
Love and blessings!
Tina
I want to mention my sadness over the loss of a sister blogger. She passed away a few days ago after a long battle with stage 4 breast cancer. I knew she was getting worse, but there still seemed to be hope, so this was sort of sudden. She occasionally read my blog, and it is sad writing this one knowing she won't be reading it. We will miss you Daria! Please pray for her husband and family.
Last Thursday, the 20th, was one year since I finished the FOLFOX chemo for colon cancer. Coming up soon will be my 2 year "cancerversary". In about a month I'll have my CT scan to check for more cancer. The thought doesn't make me nervous yet, but we'll see what happens when the date gets closer! Even though I know God is with me, I still wouldn't like to hear there is more cancer!
As far as the breast cancer goes, I will have my next Herceptin infusion next Wed., Feb. 2nd. The infusions are every 3 weeks. I might have to have some labs done because of the bp med I'm taking, but I won't be seeing my onc at this appt. I'll see him next time to go over my CT and MUGA results.
I'm still thinking about whether or not I want to do reconstruction. I've been reading others' experiences, and there is a private website where you can look at pictures of reconstruction. I'm am so grateful to the women who have put their pictures and their stories there to help others. I would probably have to have some sort of "flap" surgery, because radiation affects the skin too much for implants. One of the flap procedures uses the muscle from your back and brings it around to the front. This sounds painful to me! I'm not sure I want to go through a major surgery and 6 week recovery again. We'll see... Any pros and cons from any readers that have gone through this(recon or not) please e-mail me!
I am LOVING my time off! I feel so guilty sometimes, then I remember all I've been through the past 2 years, and I don't feel so guilty anymore! Also, because of my neuropathy I can't work anyways, at least not until it warms up outside! I usually watch Brennan once or twice a week, I have time to IRON (something I always hated to do but mostly because I didn't have time! Rich was happy to have some of his shirts back!), I am helping out at church again ( I do copying and stuff for the Children's Pastor), AND I joined a women's Bible study that is on Thurs. mornings. It's a Beth Moore study called "Breaking Free". It's pretty intense, and helps you overcome anything that might be holding you captive. I have no idea what that might be right now, but I'm pretty sure I'm going to find out! God wanted me at this study for a reason. The study says that "A Christian is held captive by anything that hinders the abundant and effective Spirit-filled life God planned for her". I want that "abundant and effective Spirit-filled life" that God has planned for me! Rachel and Alyssa are doing the study too. Alyssa has also done other Beth Moore studies.
Speaking of Alyssa, she and Jaren are down in Cabo San Lucas on their mission trip right now. They will be building a classroom for the youth in the area and putting on a marriage seminar. She sent me an e-mail after their 1st day. It is warm and beautiful there and she saw some whales in the bay! They asked for prayer for sleep (apparently the bed and pillow are hard as rocks!), and for them not to have any stomach troubles or illness. Also, please pray for the lives they will be touching down there. This is a very poor area where the kids are often left alone during the day. There is lots of drug use also. Pray for the team to be strong in the Lord and the presence of the Holy Spirit to be with them.
Rachel is spending a lot of time trying to get all their paperwork done for the adoption. Many forms have had to be redone more than once. If everything is not PERFECT it has to be redone! They are hoping to be one of the first families called to go over there to adopt their son. Hopefully this will be in March or April!
Shonna is back at school and busy as ever. She works a few hours a week at a nearby library. She will be learning how to play the keyboard and has some sort of singing lessons too, I think. Also choir, theology, and required time in the prayer room. Here is a link to the prayer room. It's great to listen to during your own prayer time or Bible study time.
Well, that's all for today!
Love and blessings!
Tina
Wednesday, January 12, 2011
Herceptin #13 Update
Wow, it's been 2 weeks since I posted last! I think about it a lot, I just don't like taking the time to do it!
Last week I had another MUGA scan (for heart function). My heart function was 65% before I started treatment (which is very good), and after starting Herceptin it went down to 51. Then my onc. put me on Enalapril (a blood pressure med), and my heart function has increased to 56! And I haven't had any side effects from the med. I was worried about my bp dropping too low, but I am on a very low dose and am tolerating it well.
Other good news--my hemoglobin finally made it up to 12, which is the bottom of the normal range. It hasn't been normal since last April.
We scheduled some upcoming tests--a CT scan and another MUGA on Feb. 21st (6 weeks), and an MRI and mammogram sometime in April. The CT scan is for the colon cancer--to watch for a recurrence. My onc. wants me to have them every 6 months for awhile. He said because I'm so young, he wants to make sure if anything does show up again we catch it early. He did say, though, that he thinks we did a pretty good job of fighting it so it shouldn't come back!
I do not need another colonoscopy for 2 years (3 years from my last one), and after this mammo and mri I won't need another one for a year.
Some side effects I still have are neuropathy (numbness) in my fingers and feet, and just tired and out of shape! I am starting to work on building my strength and stamina. I have a lot of damage from the colon cancer radiation, and also issues that have to do with missing 18" of my colon! These are annoyances that I will have to live with, although they may get better with time. I am also praying that God will take these problems away and restore to me what cancer has taken. I can be very persistent! I also need to continue to stretch my left arm and shoulder, or it quickly stiffens up. When I had my MUGA last week I had to have my left arm above my head for 10 minutes and that really hurt! Stretching helps a lot, I guess I just have to keep doing it!
I am very pleased with how well my skin did with radiation. I was expecting much worse! The scar area peeled, but it didn't hurt. The whole area, including by the clavicle, is tan looking, and will probably always be that way. I will need to protect it with sunscreen anytime it's exposed (like with tank tops and scoop neck tops) for the rest of my life.
Family update: Shonna is still here on break. She goes back to KC this weekend. Alyssa and Jaren will be leaving on a mission trip next weekend (the 22nd). Rachel and Ken are almost ready to submit all their paperwork to the country they are adopting from. Hopefully they will get to go over sometime in March or April. They have to wait for the country to contact them with the date.
Life is good! God is better!!
Love and blessings!
Tina
Last week I had another MUGA scan (for heart function). My heart function was 65% before I started treatment (which is very good), and after starting Herceptin it went down to 51. Then my onc. put me on Enalapril (a blood pressure med), and my heart function has increased to 56! And I haven't had any side effects from the med. I was worried about my bp dropping too low, but I am on a very low dose and am tolerating it well.
Other good news--my hemoglobin finally made it up to 12, which is the bottom of the normal range. It hasn't been normal since last April.
We scheduled some upcoming tests--a CT scan and another MUGA on Feb. 21st (6 weeks), and an MRI and mammogram sometime in April. The CT scan is for the colon cancer--to watch for a recurrence. My onc. wants me to have them every 6 months for awhile. He said because I'm so young, he wants to make sure if anything does show up again we catch it early. He did say, though, that he thinks we did a pretty good job of fighting it so it shouldn't come back!
I do not need another colonoscopy for 2 years (3 years from my last one), and after this mammo and mri I won't need another one for a year.
Some side effects I still have are neuropathy (numbness) in my fingers and feet, and just tired and out of shape! I am starting to work on building my strength and stamina. I have a lot of damage from the colon cancer radiation, and also issues that have to do with missing 18" of my colon! These are annoyances that I will have to live with, although they may get better with time. I am also praying that God will take these problems away and restore to me what cancer has taken. I can be very persistent! I also need to continue to stretch my left arm and shoulder, or it quickly stiffens up. When I had my MUGA last week I had to have my left arm above my head for 10 minutes and that really hurt! Stretching helps a lot, I guess I just have to keep doing it!
I am very pleased with how well my skin did with radiation. I was expecting much worse! The scar area peeled, but it didn't hurt. The whole area, including by the clavicle, is tan looking, and will probably always be that way. I will need to protect it with sunscreen anytime it's exposed (like with tank tops and scoop neck tops) for the rest of my life.
Family update: Shonna is still here on break. She goes back to KC this weekend. Alyssa and Jaren will be leaving on a mission trip next weekend (the 22nd). Rachel and Ken are almost ready to submit all their paperwork to the country they are adopting from. Hopefully they will get to go over sometime in March or April. They have to wait for the country to contact them with the date.
Life is good! God is better!!
Love and blessings!
Tina
Wednesday, December 29, 2010
Enjoying Lazy Days
What a busy time last week was! Thursday all the kids (3 girls and 2 spouses, and Brennan!) were here making cookies. The girls get together here every year to make sugar cookies. We do it the easy way and buy the Pillsbury dough, then shape them, bake, and decorate. Decorating is the highlight. I make butter cream frosting, and we have lots of sprinkles and such. Alyssa, my mom, and I did a little shopping while Rachel was making the cookies. When we got home Rich and Jaren were on the roof clearing off snow. Alyssa was driving and when she saw her hubby up there she squealed and covered her eyes. She didn't like seeing him up there--I hate it when Rich goes up there! Next thing you know, Alyssa is up on the roof too! Lots of prayers were said by me! Jaren jumped off into the huge pile of snow on the ground, after helping Alyssa down the ladder, and Rich carefully slid/jumped off! After the cookies were done, we all ate pizza for dinner, then the kids headed home. At the end of the day I was very tired, but very happy! I am always amazed at how God has blessed me with such wonderful kids!
Friday (Christmas Eve), we all went to church together at 2pm. We didn't go to Bridgewood, as their times didn't fit our schedule. We went to our former church, North Heights, and got to see some of their Christmas production. It was nice visiting there as they have wonderful productions, music, decorations and such, but I don't miss it. Bridgewood is home now. After church we had dinner (I make a simple spaghetti dinner) then we opened some presents. Our tradition is the girls open their presents to each other, and Rich and I open our presents to each other. When the kids were really little, Rich and I would open our gifts to each other after the girls went to bed, by the lights of the tree.
Christmas day started off with the kids coming back about 10am, and then they opened their stockings, we had cinnamon rolls, and they we opened the rest of our gifts. My big gift this year was my new laptop, which I got about a week earlier. Love it!! I also got a Chronological Bible from Rich. I plan to read through the Old Testament again, and I thought this might make more sense to me. We'll see. All the gifts Rachel bought for us this year were items that supported orphans, or the families trying to adopt them. She gave me a pretty necklace. Brennan was the highlight of the day. He would help rip open a present now and then, but never really cared what the gift was! He was happy and silly, and fun to watch! The kids all dispersed about noon, then we met up again later at my brother's house for the family get-together. We finished the day around 7:30 or 8.
On Sunday church had only one service at 10, so no sleeping in then either. Rich had to be there a little early in case they needed him for ushering. Alyssa, Rachel and I went shopping after church for some after Christmas sales.
Rich has this whole week off, and we have been doing a lot of shopping. Using gift cards, and getting things we need at good sale prices. I'm finding that going to more than one store at a time is too much for me, unless we are traveling between stores and I get a bit of a break in the car. If I get too tired, Rich will drop me off at the door and pick me up again. Sometimes I just need to find a spot to sit for a bit, or wait in the car and let Rich run in by himself. After we get home (usually late afternoon) I'm pretty much done for the day!
The mornings have been especially nice. I've been sleeping in, and taking it slow, and enjoying the mornings. Rich has been taking it easy too--he needs that. I'm glad he's getting some downtime. We head out around lunch time, get a bite to eat, then hit a few stores.
I was thinking this morning how much I am enjoying this break. I've been doing chemo, then rads (every day for 33 days!), then when radiation was done I so busy with Christmas stuff! So Monday was the first day in a loooong time that I could really take it easy and just do fun stuff, or whatever I wanted! So free feeling! Finally!
I've been very happy lately (although sometimes I'm sure I just look tired!). Some people get depressed after they are all done. There is such a whirlwind of activity for so many months, then it just all stops. While going through treatment you don't always have time to really think about things. Then when it's all over, you have too much time...and think too much. It's hard to understand if you haven't been through it. If you know someone who is going through cancer treatment, don't expect them to bounce back to "normal" right away. They may never be back to the "normal" that you expect them to be. They will be different; changed. And it may take them awhile to move on. Be patient, and just be there for them. And never tell them to "get over it"!!! You might get punched!
Although I have a little different perspective on things, I totally understand what others go through. And I can not say I never feel down or will never get depressed. Right now I am just grateful for each day God gives me. My life is in His hands. None of us know how long we have. Why waste time wishing for this or that? Just count your blessings. Do you have a roof over your head? Heat? Clothes? Food? Family and/or friends? Then you are truly rich and blessed! Help those that don't have those things. And pray for them.
Speaking of those that don't have much, the country that Rachel and Ken are adopting from are NOT closing the adoptions! Our prayers were answered! Things can always change though, and we won't rest too easy until we have that little boy home with us.
Shonna and friends are down in KC at the Onething convention. She'll be back on Sat. Which is Alyssa's birthday. Tomorrow we are watching Brennan for a little while in the afternoon. It's been awhile since I actually babysat him. We have a lot of new toys for him to play with!
Next Monday Rich goes back to work and I will try to put together some sort of schedule for myself. I need to get back to reading God's word, exercise, and make a "to-do" list. There are so many things I want to do, I need to list and prioritize them, or they won't get done! There are things that have been put off for 2 YEARS! :)
On the medical front, I have my next MUGA (heart function) scan next Thursday. Hoping and praying my heart function has increased with the new med I'm on so I can continue getting Herceptin. I will see the doc the following Wed.(the 12th) to discuss the results and hopefully get my next Herceptin infusion.
Time for bed!
Good night and God bless!
Tina
Friday (Christmas Eve), we all went to church together at 2pm. We didn't go to Bridgewood, as their times didn't fit our schedule. We went to our former church, North Heights, and got to see some of their Christmas production. It was nice visiting there as they have wonderful productions, music, decorations and such, but I don't miss it. Bridgewood is home now. After church we had dinner (I make a simple spaghetti dinner) then we opened some presents. Our tradition is the girls open their presents to each other, and Rich and I open our presents to each other. When the kids were really little, Rich and I would open our gifts to each other after the girls went to bed, by the lights of the tree.
Christmas day started off with the kids coming back about 10am, and then they opened their stockings, we had cinnamon rolls, and they we opened the rest of our gifts. My big gift this year was my new laptop, which I got about a week earlier. Love it!! I also got a Chronological Bible from Rich. I plan to read through the Old Testament again, and I thought this might make more sense to me. We'll see. All the gifts Rachel bought for us this year were items that supported orphans, or the families trying to adopt them. She gave me a pretty necklace. Brennan was the highlight of the day. He would help rip open a present now and then, but never really cared what the gift was! He was happy and silly, and fun to watch! The kids all dispersed about noon, then we met up again later at my brother's house for the family get-together. We finished the day around 7:30 or 8.
On Sunday church had only one service at 10, so no sleeping in then either. Rich had to be there a little early in case they needed him for ushering. Alyssa, Rachel and I went shopping after church for some after Christmas sales.
Rich has this whole week off, and we have been doing a lot of shopping. Using gift cards, and getting things we need at good sale prices. I'm finding that going to more than one store at a time is too much for me, unless we are traveling between stores and I get a bit of a break in the car. If I get too tired, Rich will drop me off at the door and pick me up again. Sometimes I just need to find a spot to sit for a bit, or wait in the car and let Rich run in by himself. After we get home (usually late afternoon) I'm pretty much done for the day!
The mornings have been especially nice. I've been sleeping in, and taking it slow, and enjoying the mornings. Rich has been taking it easy too--he needs that. I'm glad he's getting some downtime. We head out around lunch time, get a bite to eat, then hit a few stores.
I was thinking this morning how much I am enjoying this break. I've been doing chemo, then rads (every day for 33 days!), then when radiation was done I so busy with Christmas stuff! So Monday was the first day in a loooong time that I could really take it easy and just do fun stuff, or whatever I wanted! So free feeling! Finally!
I've been very happy lately (although sometimes I'm sure I just look tired!). Some people get depressed after they are all done. There is such a whirlwind of activity for so many months, then it just all stops. While going through treatment you don't always have time to really think about things. Then when it's all over, you have too much time...and think too much. It's hard to understand if you haven't been through it. If you know someone who is going through cancer treatment, don't expect them to bounce back to "normal" right away. They may never be back to the "normal" that you expect them to be. They will be different; changed. And it may take them awhile to move on. Be patient, and just be there for them. And never tell them to "get over it"!!! You might get punched!
Although I have a little different perspective on things, I totally understand what others go through. And I can not say I never feel down or will never get depressed. Right now I am just grateful for each day God gives me. My life is in His hands. None of us know how long we have. Why waste time wishing for this or that? Just count your blessings. Do you have a roof over your head? Heat? Clothes? Food? Family and/or friends? Then you are truly rich and blessed! Help those that don't have those things. And pray for them.
Speaking of those that don't have much, the country that Rachel and Ken are adopting from are NOT closing the adoptions! Our prayers were answered! Things can always change though, and we won't rest too easy until we have that little boy home with us.
Shonna and friends are down in KC at the Onething convention. She'll be back on Sat. Which is Alyssa's birthday. Tomorrow we are watching Brennan for a little while in the afternoon. It's been awhile since I actually babysat him. We have a lot of new toys for him to play with!
Next Monday Rich goes back to work and I will try to put together some sort of schedule for myself. I need to get back to reading God's word, exercise, and make a "to-do" list. There are so many things I want to do, I need to list and prioritize them, or they won't get done! There are things that have been put off for 2 YEARS! :)
On the medical front, I have my next MUGA (heart function) scan next Thursday. Hoping and praying my heart function has increased with the new med I'm on so I can continue getting Herceptin. I will see the doc the following Wed.(the 12th) to discuss the results and hopefully get my next Herceptin infusion.
Time for bed!
Good night and God bless!
Tina
Wednesday, December 15, 2010
Done With Radiation!!!
Yes!! Today I finished radiation! I AM SO HAPPY TO BE DONE!! I had 33 treatments, starting the end of Oct. There were 4 delays--3 because of the machine, and 1 to give the skin a break.
Overall, I am pleased with how well my skin held up. There are areas that are very red, and could get a little worse the next few days, but hardly any pain at all. Just some discomfort now and then, and some itchiness. My fatigue is the worst part. It's almost as bad as when I had chemo! The fatigue might last a few weeks.
I was told to keep moisturizing for a few weeks, and to keep that area covered with sun block anytime it is exposed (like my clavicle area if I wear tank tops, because the lymph nodes there were radiated). I will need to do this for the rest of my life. Also the area will have a tan look forever.
I have some"cording" on my inner arm on that side. It is deep inside from the armpit to the elbow, and hurts if I touch it or reach for anything. Cording has something to do with the tendons, where they feel like cords and are very painful. I don't think I'll need a physical therapist, I just have to do a lot of stretching.
I brought my "team" (techs, nurse, doc, and front desk staff) some treats--a bowl of fresh fruit, and some homemade treats. I got a few hugs, and was told they never wanted to see me again (unless it was to just stop in and say hi!). They are a great, caring bunch of people.
Nothing new with my heart. I seem to be tolerating the new med ok--no signs of low blood pressure. I have my next heart scan on Dec. 29th. Next Wed. I'll have another Herceptin infusion and more blood tests. I won't see my onc. until 3 weeks after that.
Did I mention I was tired? I have been doing a lot of shopping after rad. treatment, and including tomorrow (Thurs.) I will have had Brennan here 3 days this week. I love that kiddo, but I really don't have the energy for him right now! But he sure makes me laugh! Tomorrow won't be so bad because I can take it easy in the morning since I don't have to go to rads! Then B. will be here around 1:30. Then Friday will be my first day with NOTHING scheduled! I am staying home and getting some Christmas stuff done--like wrapping or cards and stuff. I've got most of my shopping done, and I'll do the last minute stuff next week.
Tomorrow is my mom's birthday, and Sat. is Rich's birthday. Then Christmas, and the week after that--Alyssa's birthday! She is a new years baby. :)
I hope everyone is staying warm! Even my friend in the Fort Myers, FL area is cold! I hope we get a little break from the cold soon. The cold affects my fingers and feet because of the neuropathy.
Love and Blessings!!
Tina
Overall, I am pleased with how well my skin held up. There are areas that are very red, and could get a little worse the next few days, but hardly any pain at all. Just some discomfort now and then, and some itchiness. My fatigue is the worst part. It's almost as bad as when I had chemo! The fatigue might last a few weeks.
I was told to keep moisturizing for a few weeks, and to keep that area covered with sun block anytime it is exposed (like my clavicle area if I wear tank tops, because the lymph nodes there were radiated). I will need to do this for the rest of my life. Also the area will have a tan look forever.
I have some"cording" on my inner arm on that side. It is deep inside from the armpit to the elbow, and hurts if I touch it or reach for anything. Cording has something to do with the tendons, where they feel like cords and are very painful. I don't think I'll need a physical therapist, I just have to do a lot of stretching.
I brought my "team" (techs, nurse, doc, and front desk staff) some treats--a bowl of fresh fruit, and some homemade treats. I got a few hugs, and was told they never wanted to see me again (unless it was to just stop in and say hi!). They are a great, caring bunch of people.
Nothing new with my heart. I seem to be tolerating the new med ok--no signs of low blood pressure. I have my next heart scan on Dec. 29th. Next Wed. I'll have another Herceptin infusion and more blood tests. I won't see my onc. until 3 weeks after that.
Did I mention I was tired? I have been doing a lot of shopping after rad. treatment, and including tomorrow (Thurs.) I will have had Brennan here 3 days this week. I love that kiddo, but I really don't have the energy for him right now! But he sure makes me laugh! Tomorrow won't be so bad because I can take it easy in the morning since I don't have to go to rads! Then B. will be here around 1:30. Then Friday will be my first day with NOTHING scheduled! I am staying home and getting some Christmas stuff done--like wrapping or cards and stuff. I've got most of my shopping done, and I'll do the last minute stuff next week.
Tomorrow is my mom's birthday, and Sat. is Rich's birthday. Then Christmas, and the week after that--Alyssa's birthday! She is a new years baby. :)
I hope everyone is staying warm! Even my friend in the Fort Myers, FL area is cold! I hope we get a little break from the cold soon. The cold affects my fingers and feet because of the neuropathy.
Love and Blessings!!
Tina
Sunday, November 28, 2010
I Hate Cancer
Just in case you were wondering how I really felt about it!
This morning, as I checked my e-mail, I found 2 e-mails from colon cancer survivors that now think they may have breast cancer. One woman I've "known" for a while through her blog, and the support she gave me while I was going through treatment for colon cancer, and the other I just "met" today, when she contacted me through my blog. What a bummer!
I will be praying for them both, and doing what I can to help them and answer their questions. I've mentioned the website, breastcancer.org, to both of them. There are women on that site that are going or have gone through just about everything. It can be a little overwhelming at first, because, of course, people on there share their bad experiences, but when you get connected with some others (like I am part of the "June Chemo" thread) it can be incredibly supportive. I wish there was something similar for colon cancer. None of the colon cancer sites I've found compare to the bc site.
I've found there are differences between the 2 cancers. At first, the bc didn't scare me as much as the cc. And, it still doesn't, but the it's the treatment that scares me. I hope to NEVER go through chemo again! The cc (colon cancer) was less disfiguring, and when I was done with chemo, I was DONE. With bc, the treatment seems to go on forever. Everyone is different, but many of us will have more than one surgery, chemo, radiation, and then possibly Herceptin(1 year) or an estrogen inhibitor(5 years!). I had no idea there were so many different types of bc. Then, of course, there is the loss of hair and eyelashes, which makes you look like a cancer patient--something I didn't have with cc. For me, though, the loss of my breast was the most difficult. It's not such a big deal to me now, but it sure was difficult at the time. It's something that I had to work through with God.
Then there are so many other cancers out there! We lost one of our bloggers this past week. I think it may have even been on Thanksgiving. A young woman, early 30's, who has been battling lung cancer for the past 2 years. She was such a vibrant, adventurous woman. So sad.
Well, that should give you some reason for the title of my blog!
On a better note...
I had a very nice Thanksgiving with my family. Our group was Rich, me, Rachel, Ken, Brennan, Alyssa, Jaren (he was in Iraq last year!), Shonna, and my sister, Dee. I've come down with some sinus crap, so everyone really chipped in and helped me out. Rachel and Jaren both had to work, so we had an early dinner--about 1:30. I have soooo much to be thankful to God for!! He is so good!!!
I'm starting to feel a little better today. I slept in and stayed home from church. Shonna just left to head back to Kansas City. I haven't done any shopping yet--just some looking online and gathering ideas. Hope my head clears soon, so I can get things done and not get too far behind. I'm going to have Rich get the Christmas stuff out from under the steps, and I'll work on that this week.
I've had 20 (I think) out of 33 radiation treatments so far. I've had a 4 day break, and my skin is still pretty red. My hair is coming in, but it's so light and fine that I still look bald; it'll be awhile before I can go without a hat or scarf! My eyelashes are growing, but still too sparse and short for mascara--hopefully soon!
I had my MUGA (heart function) scan on Friday, and I will get the results of that on Wed. when I see my onc. After rads on Wed. I will go to the cancer center (all at Regions Hospital), and get labs done, see my onc., and then get another Herceptin infusion. I'm hoping I will find that my hemoglobin is back up near normal, and my other counts are all ok. My Rad Onc said this radiation should not affect my white blood counts, because it's not hitting much of my bone marrow. This will be the last time I see my onc. for a while (I think), so I will ask him what the plan is for future scans and tests, for both cancers. I'll also talk to him about going back to work.
Rachel and Ken's fundraiser for their adoption is coming up on Friday. I will post more about this tomorrow, but if you click on Joshua's button on the side of my blog, you will find info there and a link to Rachel's blog. On her blog, there is a tab at the top with fundraiser info. There will be a concert, silent auction, door prizes, free cookies, and other items for sale. Hope to see many of you there!!
Blessings!!
Tina
This morning, as I checked my e-mail, I found 2 e-mails from colon cancer survivors that now think they may have breast cancer. One woman I've "known" for a while through her blog, and the support she gave me while I was going through treatment for colon cancer, and the other I just "met" today, when she contacted me through my blog. What a bummer!
I will be praying for them both, and doing what I can to help them and answer their questions. I've mentioned the website, breastcancer.org, to both of them. There are women on that site that are going or have gone through just about everything. It can be a little overwhelming at first, because, of course, people on there share their bad experiences, but when you get connected with some others (like I am part of the "June Chemo" thread) it can be incredibly supportive. I wish there was something similar for colon cancer. None of the colon cancer sites I've found compare to the bc site.
I've found there are differences between the 2 cancers. At first, the bc didn't scare me as much as the cc. And, it still doesn't, but the it's the treatment that scares me. I hope to NEVER go through chemo again! The cc (colon cancer) was less disfiguring, and when I was done with chemo, I was DONE. With bc, the treatment seems to go on forever. Everyone is different, but many of us will have more than one surgery, chemo, radiation, and then possibly Herceptin(1 year) or an estrogen inhibitor(5 years!). I had no idea there were so many different types of bc. Then, of course, there is the loss of hair and eyelashes, which makes you look like a cancer patient--something I didn't have with cc. For me, though, the loss of my breast was the most difficult. It's not such a big deal to me now, but it sure was difficult at the time. It's something that I had to work through with God.
Then there are so many other cancers out there! We lost one of our bloggers this past week. I think it may have even been on Thanksgiving. A young woman, early 30's, who has been battling lung cancer for the past 2 years. She was such a vibrant, adventurous woman. So sad.
Well, that should give you some reason for the title of my blog!
On a better note...
I had a very nice Thanksgiving with my family. Our group was Rich, me, Rachel, Ken, Brennan, Alyssa, Jaren (he was in Iraq last year!), Shonna, and my sister, Dee. I've come down with some sinus crap, so everyone really chipped in and helped me out. Rachel and Jaren both had to work, so we had an early dinner--about 1:30. I have soooo much to be thankful to God for!! He is so good!!!
I'm starting to feel a little better today. I slept in and stayed home from church. Shonna just left to head back to Kansas City. I haven't done any shopping yet--just some looking online and gathering ideas. Hope my head clears soon, so I can get things done and not get too far behind. I'm going to have Rich get the Christmas stuff out from under the steps, and I'll work on that this week.
I've had 20 (I think) out of 33 radiation treatments so far. I've had a 4 day break, and my skin is still pretty red. My hair is coming in, but it's so light and fine that I still look bald; it'll be awhile before I can go without a hat or scarf! My eyelashes are growing, but still too sparse and short for mascara--hopefully soon!
I had my MUGA (heart function) scan on Friday, and I will get the results of that on Wed. when I see my onc. After rads on Wed. I will go to the cancer center (all at Regions Hospital), and get labs done, see my onc., and then get another Herceptin infusion. I'm hoping I will find that my hemoglobin is back up near normal, and my other counts are all ok. My Rad Onc said this radiation should not affect my white blood counts, because it's not hitting much of my bone marrow. This will be the last time I see my onc. for a while (I think), so I will ask him what the plan is for future scans and tests, for both cancers. I'll also talk to him about going back to work.
Rachel and Ken's fundraiser for their adoption is coming up on Friday. I will post more about this tomorrow, but if you click on Joshua's button on the side of my blog, you will find info there and a link to Rachel's blog. On her blog, there is a tab at the top with fundraiser info. There will be a concert, silent auction, door prizes, free cookies, and other items for sale. Hope to see many of you there!!
Blessings!!
Tina
Wednesday, May 12, 2010
The Decision Has Been Made...
After talking with my surgeon and oncologist, I've decided to have a mastectomy. Just the left side, where the cancer is. Both recommended I delay any reconstruction until after chemo. Then I can decide what I want to do. That sounded good to me, because right now I just want to focus on getting rid of this cancer. Having to make reconstruction decisions would have been just too overwhelming right now.
The cancer at the margins of the tissue removed during the lumpectomy is DCIS. The surgeon feels we got all the invasive cancer. But apparently there is more DCIS (non-invasive cancer) than we knew about, and that can eventually become invasive.
I might still have to do radiation. I will have to meet with my radiation doc to discuss that. Studies have shown that if the cancer has spread to 1 lymph node there is no added benefit from radiation. If its in 4 lymph nodes, radiation is necessary. 2-3 lymph nodes is a gray area. But the cancer broke through one of my lymph nodes, which might make radiation more desirable.
The plan is: (I think I went through this all a few days ago, so skip this part if you want) Surgery on Monday, May 24th. 1 or 2 nights in the hospital. And yes I have to have another drain! My surgeon told me just because the first one hurt so bad, doesn't mean the next one will. His nurse said the armpit drains usually hurt the most. I'm just going to try not to think about it!
About 2 -3 weeks after surgery I will see my oncologist and start chemo. Andriamycin and cytoxan every 2 weeks for 4 cycles, so 2 months total. The day after chemo I will get a Neulasta shot. These are like the Neupogen shots I had to do last time, but Neulasta lasts longer. This chemo cocktail is even harder on the bone marrow than my last regimen (FOLFOX), so they don't wait until the white blood cell counts drop, they do the shots right away. One of these drugs is the one will make me lose my hair, and it happens pretty fast.
After 2 months of that I will start another chemo drug, Taxol, and Herceptin. I will first have another MUGA (heart) scan. I will get these 2 drugs weekly for 12 weeks (3months), then stop the Taxol and continue on the Herceptin every 3 weeks for 9 more months, so I will be on Herceptin for a year total. All the drugs I will get through infusion. The Taxol sometimes causes neuropathy, so we'll have to see if my neuropathy that I have from my last treatment starts to go away before that. There is a way the onc. can modify how I get the Taxol that lessens the side effects. This chemo cocktail is called AC+T (I think!).
When I'm finished with Taxol, and while still on Herceptin, I will start the radiation, if needed. That would be daily, Mon-Fri, for 5 to 7 weeks.
K, have I lost you yet? I just wanted to lay it all out there, the way the docs have explained it to me the last 2 days.
The reason I have to have the heart scans is because both the Andriamycin and Herceptin can cause heart problems. The problem usually goes away after stopping the medicine. A bit scary, especially given my family history of heart trouble, but I'll just have to trust God that He will be watching over me!
Oh! I almost forgot...I DO NOT have the breast cancer gene. That is good news. I can beat this and it may NEVER return!
I've been hearing "Do not be afraid" and "Trust Me" a lot lately. Also, I wrote in my notebook the other day "THERE IS A REASON", and I feel that was from God too.
I'm a little, um, freaked out maybe? that I have made the decision to have the mastectomy and put it on the calendar. Other than that, I'm really doing well. Really, I am! Just because I know God is with me, and His will is being done in my life, doesn't mean I'm going to enjoy surgery, or losing my hair. But He is giving me peace, and I know this is what I have to do. So its all good. :)
Blessings!
Tina
The cancer at the margins of the tissue removed during the lumpectomy is DCIS. The surgeon feels we got all the invasive cancer. But apparently there is more DCIS (non-invasive cancer) than we knew about, and that can eventually become invasive.
I might still have to do radiation. I will have to meet with my radiation doc to discuss that. Studies have shown that if the cancer has spread to 1 lymph node there is no added benefit from radiation. If its in 4 lymph nodes, radiation is necessary. 2-3 lymph nodes is a gray area. But the cancer broke through one of my lymph nodes, which might make radiation more desirable.
The plan is: (I think I went through this all a few days ago, so skip this part if you want) Surgery on Monday, May 24th. 1 or 2 nights in the hospital. And yes I have to have another drain! My surgeon told me just because the first one hurt so bad, doesn't mean the next one will. His nurse said the armpit drains usually hurt the most. I'm just going to try not to think about it!
About 2 -3 weeks after surgery I will see my oncologist and start chemo. Andriamycin and cytoxan every 2 weeks for 4 cycles, so 2 months total. The day after chemo I will get a Neulasta shot. These are like the Neupogen shots I had to do last time, but Neulasta lasts longer. This chemo cocktail is even harder on the bone marrow than my last regimen (FOLFOX), so they don't wait until the white blood cell counts drop, they do the shots right away. One of these drugs is the one will make me lose my hair, and it happens pretty fast.
After 2 months of that I will start another chemo drug, Taxol, and Herceptin. I will first have another MUGA (heart) scan. I will get these 2 drugs weekly for 12 weeks (3months), then stop the Taxol and continue on the Herceptin every 3 weeks for 9 more months, so I will be on Herceptin for a year total. All the drugs I will get through infusion. The Taxol sometimes causes neuropathy, so we'll have to see if my neuropathy that I have from my last treatment starts to go away before that. There is a way the onc. can modify how I get the Taxol that lessens the side effects. This chemo cocktail is called AC+T (I think!).
When I'm finished with Taxol, and while still on Herceptin, I will start the radiation, if needed. That would be daily, Mon-Fri, for 5 to 7 weeks.
K, have I lost you yet? I just wanted to lay it all out there, the way the docs have explained it to me the last 2 days.
The reason I have to have the heart scans is because both the Andriamycin and Herceptin can cause heart problems. The problem usually goes away after stopping the medicine. A bit scary, especially given my family history of heart trouble, but I'll just have to trust God that He will be watching over me!
Oh! I almost forgot...I DO NOT have the breast cancer gene. That is good news. I can beat this and it may NEVER return!
I've been hearing "Do not be afraid" and "Trust Me" a lot lately. Also, I wrote in my notebook the other day "THERE IS A REASON", and I feel that was from God too.
I'm a little, um, freaked out maybe? that I have made the decision to have the mastectomy and put it on the calendar. Other than that, I'm really doing well. Really, I am! Just because I know God is with me, and His will is being done in my life, doesn't mean I'm going to enjoy surgery, or losing my hair. But He is giving me peace, and I know this is what I have to do. So its all good. :)
Blessings!
Tina
Thursday, April 29, 2010
I'm Sure There's a Silver Lining Somewhere...
My oncologist, Dr. Jahagirdar, called me tonight (about 7 pm) to give me the results of my path report. Not much good news there, unfortunately. So, here goes:
The area of cancer (not necessarily a tumor) is 3.5cm (1 1/4"?); 3 of 9 lymph nodes have cancer; stage 2B; estrogen and progesterone negative; Her 2 positive. Her 2 is a hormone that, in my case, causes the tumor to grow, so I will have to get herceptin infusions to block the hormone.
The plan will probably look something like this: Adriamycin and Cytoxin (not sure about spelling yet!) chemo cocktail every 2 weeks x 4 (2months), then another chemo drug, Taxol, once per week for 12 weeks. I will start the Herceptin at the same time as the Taxol, and the Herceptin will continue on for 7 (?) months.
Also, the margins of the lumpectomy were not clear, so I will need another surgery(re-excision) to remove more tissue. Dr. J. thinks I should consider a mastectomy, because then I wouldn't have to have radiation, and I wouldn't have to worry about the margins coming back clear. It is possible that if I have a re-excision that the margins still may not be clear and I'd have to go back in again. Now, I do have a lot of tissue, but removing even more tissue could leave me quite lopsided and disfigured. I want to wait until we have the genetic test results and talk to my surgeon about all my options before I make any decision.
Next Friday I have my ct scans scheduled, and Dr. J wants to try to get some other tests done too. He wants me to have a bone scan (breast cancer sometimes travels to the bones), and an EKG and Muga test for my heart. Some chemo drugs are hard on the heart so they do the tests first. Someone should be calling me tomorrow to schedule everything for next week. I took next week off too because my surgeon didn't want me going back to work yet.
We are all a bit bummed right now. I'm leaning heavily on God. I'm scared of what the scans might find, because I'm not sure how much more of this I can take.
Rest assured though, God is with me.
Love
Tina
The area of cancer (not necessarily a tumor) is 3.5cm (1 1/4"?); 3 of 9 lymph nodes have cancer; stage 2B; estrogen and progesterone negative; Her 2 positive. Her 2 is a hormone that, in my case, causes the tumor to grow, so I will have to get herceptin infusions to block the hormone.
The plan will probably look something like this: Adriamycin and Cytoxin (not sure about spelling yet!) chemo cocktail every 2 weeks x 4 (2months), then another chemo drug, Taxol, once per week for 12 weeks. I will start the Herceptin at the same time as the Taxol, and the Herceptin will continue on for 7 (?) months.
Also, the margins of the lumpectomy were not clear, so I will need another surgery(re-excision) to remove more tissue. Dr. J. thinks I should consider a mastectomy, because then I wouldn't have to have radiation, and I wouldn't have to worry about the margins coming back clear. It is possible that if I have a re-excision that the margins still may not be clear and I'd have to go back in again. Now, I do have a lot of tissue, but removing even more tissue could leave me quite lopsided and disfigured. I want to wait until we have the genetic test results and talk to my surgeon about all my options before I make any decision.
Next Friday I have my ct scans scheduled, and Dr. J wants to try to get some other tests done too. He wants me to have a bone scan (breast cancer sometimes travels to the bones), and an EKG and Muga test for my heart. Some chemo drugs are hard on the heart so they do the tests first. Someone should be calling me tomorrow to schedule everything for next week. I took next week off too because my surgeon didn't want me going back to work yet.
We are all a bit bummed right now. I'm leaning heavily on God. I'm scared of what the scans might find, because I'm not sure how much more of this I can take.
Rest assured though, God is with me.
Love
Tina
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