February 6th was the 4 year anniversary of my tumor being found during a colonoscopy. I was having some symptoms that my primary Dr.(pcp) and gastro Dr. both thought were irritable bowel or colitis. Thankfully, before my pcp looked further into my symptoms, she wanted me to have a colonoscopy, and then we'd know more what we were dealing with. We were ALL surprised when the tumor was found. The gastro doc doing the procedure saw it right away (I was given some good drugs, but was fully awake) and said "See that? That shouldn't be there". After the exam the doc came in and told us he was sure it was cancer, although we needed to wait for the pathology report for the 'official' word. I am so grateful Rich was with me! We just held each other when the Dr. left. Then he came back, and told me he had set up a CT scan for me that afternoon. Things moved really fast! I remember the nurse giving me a hug when she walked us out and telling me I was going to be ok. That was so sweet, and yet scared me because I didn't really realize the gravity of the situation yet. Thanks to my 'happy drugs', I wasn't too upset yet--I told Rich in the truck after to stop looking so gloomy! Poor guy, he just found out his wife had cancer! I'm sure he was overwhelmed! (I don't think I'll ever know how hard all of this was on him, as he did a good job of keeping it from me. He was an EXCELLENT caregiver, and I'll always be grateful for that!)
Like I said, things moved quickly. My CT scan didn't show any other areas of cancer (except a possible lymph node). My gastro doc also contacted a surgeon, and an appt. to see him was scheduled, then my pre-op, then the surgery on Feb. 20th, just 2 weeks later. During surgery, 18" of my colon was removed and I was able to be reconnected. I came close to needing a colostomy, but am thankful I didn't! It was a tough surgery, and I was in the hospital 8 days. 2 of 20 lymph nodes had cancer, and I was stage 3b.
My wonderful oncologist told me this type of cancer could be CURED. Because of my young age (44), I was given everything they could possibly throw at me! None of my chemos were reduced, even with bad side effects. Once he even let me get chemo when my counts were really low--the nurse had to go ask him if the orders were correct! But he knew my counts always bounced back quickly when I had a neupogen shot, so he wasn't worried! I think it made a difference that my onc knew me well enough to know that I really wanted to complete all the treatments. If I had said it was too hard and I wanted to back off a bit he probably would have, as I think he would have respected my wishes. Same thing with radiation. That was even more difficult, and I was told I didn't need to finish, but it was important to me to finish those last 3, and I did! Although, I have to say, I never realized all the side effects I would have to live with!
Sometimes I have a hard time remembering how awful it all was, and other times I remember too well! I get frustrated dealing with painful side effects, but mostly, I am just so glad to be living life, cancer free. I am enjoying my children and grandchildren. My girls are such a blessing to me! They really stepped up and did everything they could to help me get through those tough days of cancer treatment. I'm sure it was hard to watch their mom get cancer TWICE. They are amazing young women!
Enough reminiscing...my 6 month CT scans are coming up next Monday, Feb. 18th. I'll also get my labs done that day too. Then the following week I see my oncologist and have a mammogram. This coming Thurs. (the 14th) I'll see my colorectal surgeon about the fistula, and I'm thinking I'll have to have surgery on that soon. That is a side effect from surgery and radiation. :(
1 more year and I'll hit that 5 year mark! I'm going to ask Dr. J about being 'cured'; if that still fits my case or not. I don't remember if the breast cancer will ever be considered cured--maybe because I was only stage 2b, I can be cured of that too. I'm not sure--I hope I remember to ask! April 1st will be 3 years from the breast cancer diagnosis.
Life goes on, and God is good! :)
Love,
Tina
Showing posts with label family. Show all posts
Showing posts with label family. Show all posts
Monday, February 11, 2013
Four Years!
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Tuesday, November 27, 2012
Another Update
Well, don't know if anyone is out there reading this any more, but thought it was time for an update. I've written blog posts in my head many times, but for some reason I just haven't taken the time to actually write it here!
As always, I'll start with a health update. I saw both my colorectal surgeon (Dr.T) and my oncologist (Dr. J) a few weeks ago. The fistula has been bleeding more, and apparently something came loose, and Dr.T fixed it. I found out she does colonoscopies (I had been going to a gastro doc for my previous scopes) and told her I'd like to see her for my next one, which is due in March. Because there has been some bleeding, Dr. T. said insurance wouldn't have a problem with doing it sooner, and she figured my deductible has probably been met for the year, so we may as well get it done. She assured me, a couple of times, that she doesn't think the bleeding means there is anything wrong, and I agree. Because of the radiation damage and fistula, there will always be some bleeding. So, I am scheduled to have my colonoscopy next Monday, Dec. 3rd (yikes!).
My 3 month check up with Dr. J went well. My blood tests are all ok, although my hemoglobin and red blood cell count both dropped a little. Dr. J wasn't too concerned, and I told him I started taking a daily iron pill. He checked my reflexes this time, and my wrists and knees were fine, but my ankles still don't respond. This is from the neuropathy in my feet. I've been noticing that my balance seems slightly worse. Just small things, nothing major. This is probably from the neuropathy also. I told him next time I see him (in 3 months) I'll be 4 years out from my diagnosis of colon cancer (and 3 years from breast cancer). He said that if the cancer does return, it wouldn't be as aggressive as a cancer that came back sooner. He still wants to do scans every 6 months, so if anything does turn up we would be able to fight it aggressively, because I am still young and healthy (I love hearing that I am young!). Dr. J also asked if I have been exercising, which the answer is an obvious no. I think that was his gentle way of telling me he noticed I've been gaining weight. This weight thing is so frustrating! My metabolism is almost non-existent! Oh well...I'll just have to try harder!
Up until about 2 weeks ago I had been in a lot of pain (backside issues). Sometimes it gets me a bit down. You'd think after nearly 4 years I would have figured out what causes the 'bad' days. All I know is I have more bad days than good. Although, whenever I have a stretch of good (like now), I hope that this will become the norm, and not the bad days!
I find there are still a lot of things that bring me back to my chemo days. Thankfully, the nausea doesn't come back though. For instance, today I heated up a bowl of leftover mashed potatoes, and it reminded me of how I ate them a lot during chemo. I could almost feel that fog I was in for so many days each round of chemo. There are reminders almost daily.
I always try to make sure people know (both those that are recently dx'd with cancer, and those that don't have it) that when the treatment stops, things don't go back to "normal". This is where the term "new normal" really fits. Because side effects, pain, psychological effects, are all a part of my life now. I don't mean that to sound so bad, because I truly am grateful to be here and be cancer free. But I think people need to know, so they can understand what they might go through, or what someone else might be dealing with.
God has answered so many prayers recently for my family and me. I'm going to press in and pray for healing for my pain issues. I've been praying for help with my fatigue, and I am feeling a bit better. I just get busy and unfortunately don't have much energy left to spend time in God's Word as much as I should. I really need to do that more...there is nothing like the feeling I get when I spend time with God!
Family update: it's been so long since I blogged, I forgot I never wrote about my new granddaughter! Alyssa and Jaren had their baby on 10/15, 3 weeks early, but she was considered full term. They named her Selah ("say-la") Marie. Selah is a musical term in Psalms that means to pause, or pause and reflect. She is a beautiful little girl, and the new family is doing great. They have plenty of babysitters to help them out! Here is a picture of Selah, and one of my grandsons:
Aren't they cute? Charlie is doing so well! He is standing by himself in this picture! He can walk with a walker. It's hard to believe he is the same tiny 3 and a half year old that came to us from Ukraine. What a gift he is! Brennan is as smart as ever, and at the age of 3 he is reading a few words! Love my babies!
Shonna is doing great at college--she just registered for spring sem. I LOVE having her back in MN!
Thanks for reading! Let me know if there is anything I can do for any of you readers--be sure to contact me if you have questions about cancer (chemo, radiation, breast, colon, etc., etc.) OR if you want info about adopting a beautiful child from an orphanage. Or maybe you want to know how you can help a child other ways besides adopting. Please ask! You can e-mail me at nuttyoaks@gmaildotcom. You can also send me prayer requests, and I'll be happy to pray for you or send you some helpful Bible verses. :)
God bless!
Tina
As always, I'll start with a health update. I saw both my colorectal surgeon (Dr.T) and my oncologist (Dr. J) a few weeks ago. The fistula has been bleeding more, and apparently something came loose, and Dr.T fixed it. I found out she does colonoscopies (I had been going to a gastro doc for my previous scopes) and told her I'd like to see her for my next one, which is due in March. Because there has been some bleeding, Dr. T. said insurance wouldn't have a problem with doing it sooner, and she figured my deductible has probably been met for the year, so we may as well get it done. She assured me, a couple of times, that she doesn't think the bleeding means there is anything wrong, and I agree. Because of the radiation damage and fistula, there will always be some bleeding. So, I am scheduled to have my colonoscopy next Monday, Dec. 3rd (yikes!).
My 3 month check up with Dr. J went well. My blood tests are all ok, although my hemoglobin and red blood cell count both dropped a little. Dr. J wasn't too concerned, and I told him I started taking a daily iron pill. He checked my reflexes this time, and my wrists and knees were fine, but my ankles still don't respond. This is from the neuropathy in my feet. I've been noticing that my balance seems slightly worse. Just small things, nothing major. This is probably from the neuropathy also. I told him next time I see him (in 3 months) I'll be 4 years out from my diagnosis of colon cancer (and 3 years from breast cancer). He said that if the cancer does return, it wouldn't be as aggressive as a cancer that came back sooner. He still wants to do scans every 6 months, so if anything does turn up we would be able to fight it aggressively, because I am still young and healthy (I love hearing that I am young!). Dr. J also asked if I have been exercising, which the answer is an obvious no. I think that was his gentle way of telling me he noticed I've been gaining weight. This weight thing is so frustrating! My metabolism is almost non-existent! Oh well...I'll just have to try harder!
Up until about 2 weeks ago I had been in a lot of pain (backside issues). Sometimes it gets me a bit down. You'd think after nearly 4 years I would have figured out what causes the 'bad' days. All I know is I have more bad days than good. Although, whenever I have a stretch of good (like now), I hope that this will become the norm, and not the bad days!
I find there are still a lot of things that bring me back to my chemo days. Thankfully, the nausea doesn't come back though. For instance, today I heated up a bowl of leftover mashed potatoes, and it reminded me of how I ate them a lot during chemo. I could almost feel that fog I was in for so many days each round of chemo. There are reminders almost daily.
I always try to make sure people know (both those that are recently dx'd with cancer, and those that don't have it) that when the treatment stops, things don't go back to "normal". This is where the term "new normal" really fits. Because side effects, pain, psychological effects, are all a part of my life now. I don't mean that to sound so bad, because I truly am grateful to be here and be cancer free. But I think people need to know, so they can understand what they might go through, or what someone else might be dealing with.
God has answered so many prayers recently for my family and me. I'm going to press in and pray for healing for my pain issues. I've been praying for help with my fatigue, and I am feeling a bit better. I just get busy and unfortunately don't have much energy left to spend time in God's Word as much as I should. I really need to do that more...there is nothing like the feeling I get when I spend time with God!
Family update: it's been so long since I blogged, I forgot I never wrote about my new granddaughter! Alyssa and Jaren had their baby on 10/15, 3 weeks early, but she was considered full term. They named her Selah ("say-la") Marie. Selah is a musical term in Psalms that means to pause, or pause and reflect. She is a beautiful little girl, and the new family is doing great. They have plenty of babysitters to help them out! Here is a picture of Selah, and one of my grandsons:
Aren't they cute? Charlie is doing so well! He is standing by himself in this picture! He can walk with a walker. It's hard to believe he is the same tiny 3 and a half year old that came to us from Ukraine. What a gift he is! Brennan is as smart as ever, and at the age of 3 he is reading a few words! Love my babies!
Shonna is doing great at college--she just registered for spring sem. I LOVE having her back in MN!
Thanks for reading! Let me know if there is anything I can do for any of you readers--be sure to contact me if you have questions about cancer (chemo, radiation, breast, colon, etc., etc.) OR if you want info about adopting a beautiful child from an orphanage. Or maybe you want to know how you can help a child other ways besides adopting. Please ask! You can e-mail me at nuttyoaks@gmaildotcom. You can also send me prayer requests, and I'll be happy to pray for you or send you some helpful Bible verses. :)
God bless!
Tina
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Tuesday, November 29, 2011
The Holiday Season is Upon Us!
I can't believe Thanksgiving has come and gone, and Christmas is quickly approaching! I feel like I'm behind already! You'd think this would be a normal feeling for me, since I am always behind, but I wish I could be ahead just one Christmas season. Well, it's still early (not even December yet!), so maybe I'll catch up.
I do love this time of year though--a national day just for giving thanks to God, and of course Christmas, the celebration of the birth of God's greatest gift--our savior Jesus! I hope everyone takes the time to soak in the meaning of the season. Don't rush through and miss the beauty of it all!
We had a WONDERFUL Thanksgiving! We've been having it here, at our house, the past few years, with our kids and grandkids, and usually my sister too. It's very nice. Everyone brings something, and my turkeys have been turning out PERFECT! That's a big deal to me, because years ago, as a young wife and mom, I tried to make a turkey and it didn't turn out. I cried. My wonderful, patient, husband ran up to the store to buy some deli chicken to go with the rest of the meal I had prepared. I said I'd never cook another turkey! Well, about 20 years later, I thought I'd give it another shot, and it turned out great!
This was Charlie's 1st Thanksgiving! He is getting to be such a big boy! He has physical, occupational, and speech therapy privately and through preschool. He is learning to crawl, stand, and walk. All his muscles are being worked--including core and mouth. I love all his facial expressions. He is a happy, funny, little boy.
His little brother, Brennan, is growing quickly too! He knows all his colors, and his ABCs. He loves pointing out letters and saying them all. I love the way he says things, in his own Brennan way!
Shonna came home for the holiday. She was going to be here for just a few days, but she surprised us and came home early! She is back at school now, but will be back in a few weeks for a whole month!
I had my 3 month bloodwork and check-up with my oncologist recently. Everything looks good! My hemoglobin is back up into the normal range for the first time in over 2 years. Still would like it a bit higher though. My neuropathy in my feet has been bothering me more often. Right now my feet feel tingly and like the bottoms are burning. I found something that helps though--a foot massage! Really, it does help, and I'm blessed with a husband who is willing!
My next check-up will be in 3 months, and I'll have more bloodwork and ct scans before I see my onc. My next mammogram and MRI will be in April. After all those tests are done, I might get my port removed. I like having it for the tests; it saves my veins.
Well, I'm going to go get a much needed foot rub now! May the next few weeks bring you abundant joy and blessings! Even when life doesn't seem so good, we can have true joy in knowing Jesus as our Savior, friend, and Lord!
Love,
Tina
I do love this time of year though--a national day just for giving thanks to God, and of course Christmas, the celebration of the birth of God's greatest gift--our savior Jesus! I hope everyone takes the time to soak in the meaning of the season. Don't rush through and miss the beauty of it all!
We had a WONDERFUL Thanksgiving! We've been having it here, at our house, the past few years, with our kids and grandkids, and usually my sister too. It's very nice. Everyone brings something, and my turkeys have been turning out PERFECT! That's a big deal to me, because years ago, as a young wife and mom, I tried to make a turkey and it didn't turn out. I cried. My wonderful, patient, husband ran up to the store to buy some deli chicken to go with the rest of the meal I had prepared. I said I'd never cook another turkey! Well, about 20 years later, I thought I'd give it another shot, and it turned out great!
This was Charlie's 1st Thanksgiving! He is getting to be such a big boy! He has physical, occupational, and speech therapy privately and through preschool. He is learning to crawl, stand, and walk. All his muscles are being worked--including core and mouth. I love all his facial expressions. He is a happy, funny, little boy.
His little brother, Brennan, is growing quickly too! He knows all his colors, and his ABCs. He loves pointing out letters and saying them all. I love the way he says things, in his own Brennan way!
Shonna came home for the holiday. She was going to be here for just a few days, but she surprised us and came home early! She is back at school now, but will be back in a few weeks for a whole month!
I had my 3 month bloodwork and check-up with my oncologist recently. Everything looks good! My hemoglobin is back up into the normal range for the first time in over 2 years. Still would like it a bit higher though. My neuropathy in my feet has been bothering me more often. Right now my feet feel tingly and like the bottoms are burning. I found something that helps though--a foot massage! Really, it does help, and I'm blessed with a husband who is willing!
My next check-up will be in 3 months, and I'll have more bloodwork and ct scans before I see my onc. My next mammogram and MRI will be in April. After all those tests are done, I might get my port removed. I like having it for the tests; it saves my veins.
Well, I'm going to go get a much needed foot rub now! May the next few weeks bring you abundant joy and blessings! Even when life doesn't seem so good, we can have true joy in knowing Jesus as our Savior, friend, and Lord!
Love,
Tina
Wednesday, May 19, 2010
Busy Busy
I have thought often, this last week, about updating my blog. But either I have been busy, or just too tired. I'm pretty tired right now too. I can hardly do anything after work these days. Not sure why I got so tired again, I had been doing better. I know my thyroid has been messed up again, and that takes a while to get back to where its supposed to be.
Alyssa and Jaren's wedding is coming up on Sunday. I'm so glad she has everything under control, because I haven't been much help! Tomorrow night we have a rehearsal, Friday night we have some other plans, Saturday we have the groom's dinner at the Zech's, and Sunday we have to up bright and early to start getting ready for the wedding/reception. Then Monday is when I lose my left breast to the surgeon. :(
After that I'll be able to finally get some rest, while I am healing. But as soon as I feel well enough I have to try on and buy a wig, buy scarves and hats, and get my hair cut short. Then it will be time to start chemo.
I really hope this chemo doesn't make me throw up. Its supposed to be a little easier to handle than my last stuff, so I hope that's the case for me. I've been reading the discussion boards and alot of people do have some nausea, and most have a few days of fatigue--where they lay around for 2 or 3 days. That's not so bad. It's also supposed to cause constipation--which, if it doesn't get too bad, is actually kinda nice! When I took pain meds after my lumpectomy it was nice to only have to go once or twice a day! I just make sure I take Senekot or something so it doesn't get too bad.
Last Saturday I had to shop for a dress for the wedding. I was not happy that I couldn't find just the right dress, and looking at cute clothes was depressing me. I felt like crying over every little thing, and couldn't figure out why. Then I realized that I was mourning what I was about to lose. Looking at clothes and knowing it'll be a long time before I look good in them again. And I was upset about losing my hair too. It just all caught up to me and I wanted to hide and cry. But, of course we had a busy day! A friend was talking to me at a grad party at church and she wanted to know how I was REALLY doing (a true friend!), and I started crying. We went into the prayer room (with Rich too), and talked a bit, and then she prayed for me. I felt much better after that, and have been feeling better since. I'm still not happy about the whole thing, more like resigned to the fact that its going to happen. I feel like my whole life is about to change. I don't want it to! I'm so thankful I have such a loving and supportive family. They will love me and be by my side no matter what I look like! I'm also blessed to be a part of a wonderful church family. They really let Jesus shine through them!
Only 2 more days of work! I don't know when I'll be able to go back. I'll let the school know in August whether or not I'll be coming back at the start of the school year.
Well, Rich and I are going to go for a little walk--gotta be back for American Idol! I'll put up some pics of the wedding when I get a chance.
Love to all!
Tina
1Peter 1:6-7, "In this you greatly rejoice, though now for a little while you may have had to suffer grief in all kinds of trials. These have come so that your faith--of greater worth than gold, which perishes even though refined by fire--may be proved genuine and may result in praise, glory and honor when Jesus Christ is revealed." (NIV)
Alyssa and Jaren's wedding is coming up on Sunday. I'm so glad she has everything under control, because I haven't been much help! Tomorrow night we have a rehearsal, Friday night we have some other plans, Saturday we have the groom's dinner at the Zech's, and Sunday we have to up bright and early to start getting ready for the wedding/reception. Then Monday is when I lose my left breast to the surgeon. :(
After that I'll be able to finally get some rest, while I am healing. But as soon as I feel well enough I have to try on and buy a wig, buy scarves and hats, and get my hair cut short. Then it will be time to start chemo.
I really hope this chemo doesn't make me throw up. Its supposed to be a little easier to handle than my last stuff, so I hope that's the case for me. I've been reading the discussion boards and alot of people do have some nausea, and most have a few days of fatigue--where they lay around for 2 or 3 days. That's not so bad. It's also supposed to cause constipation--which, if it doesn't get too bad, is actually kinda nice! When I took pain meds after my lumpectomy it was nice to only have to go once or twice a day! I just make sure I take Senekot or something so it doesn't get too bad.
Last Saturday I had to shop for a dress for the wedding. I was not happy that I couldn't find just the right dress, and looking at cute clothes was depressing me. I felt like crying over every little thing, and couldn't figure out why. Then I realized that I was mourning what I was about to lose. Looking at clothes and knowing it'll be a long time before I look good in them again. And I was upset about losing my hair too. It just all caught up to me and I wanted to hide and cry. But, of course we had a busy day! A friend was talking to me at a grad party at church and she wanted to know how I was REALLY doing (a true friend!), and I started crying. We went into the prayer room (with Rich too), and talked a bit, and then she prayed for me. I felt much better after that, and have been feeling better since. I'm still not happy about the whole thing, more like resigned to the fact that its going to happen. I feel like my whole life is about to change. I don't want it to! I'm so thankful I have such a loving and supportive family. They will love me and be by my side no matter what I look like! I'm also blessed to be a part of a wonderful church family. They really let Jesus shine through them!
Only 2 more days of work! I don't know when I'll be able to go back. I'll let the school know in August whether or not I'll be coming back at the start of the school year.
Well, Rich and I are going to go for a little walk--gotta be back for American Idol! I'll put up some pics of the wedding when I get a chance.
Love to all!
Tina
1Peter 1:6-7, "In this you greatly rejoice, though now for a little while you may have had to suffer grief in all kinds of trials. These have come so that your faith--of greater worth than gold, which perishes even though refined by fire--may be proved genuine and may result in praise, glory and honor when Jesus Christ is revealed." (NIV)
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