Showing posts with label mouth sores. Show all posts
Showing posts with label mouth sores. Show all posts

Wednesday, June 23, 2010

Some Pics and an Update


The top pic is of me getting the "red devil" (Adriamycin) at my first chemo on June 14th.  The nurse has to slowly inject it into my port tubing.  It is a toxic drug and can cause a lot of damage if it should leak out of the vein.  That is why the nurse has to do it, instead of it hanging in an iv bag like the other chemo drugs.  Notice that she gets gown, gloves, and glasses, and I don't :).  This nurse is one of 2 that I usually have.  Her name is Andrea, and we just love her (well, we love them all!).  She is so perky and happy, and she reminds us of our niece Kyla.  We love to hear her stories about her toddler, and she loves to look at our pics of family, and especially Brennan!  I hope she can always stay positive--she is such a bright face in a place that can be so depressing.  I don't know how those nurses do it!  It's definitely a God-given gift!
The 2nd pic is a few days later when I got my new haircut.  Everyone seems to really like it.  On Facebook I joked how I paid $38 for a 10 day haircut, because it should be falling out soon.  I'm glad I tried something new first.  Gotta have a little fun, right?  And now I'll have less hair to fall out.
I have to say that I had some "down" days last week.  Not really depressed, just down.  I had so hoped that this chemo would be easier than my last stuff. But it really wasn't. Maybe I was a little less "out of it", but just barely, and this was only my first round.  Thank goodness I only have 4 rounds of this stuff, instead of 12 like last time!  I will have more chemo (Taxol) after these 4 rounds, but maybe that won't be as bad?  I think I've heard that its not--but with me, you never know!  My nausea has been there most every day, but thankfully, no vomiting.  Today was the first day I didn't need any anti-nausea meds.  The past few days I've just needed one.  I also have had more mouth sores.  It got to the point where my whole mouth felt pretty hacked up, but it didn't get too painful.  I've been pretty good about rinsing my mouth with baking soda and water.  Today my mouth seems to be getting better.
The day after chemo I had to get a Neulasta shot.  I had no bone pain at all from it--until yesterday!  I suppose that makes sense, because the shot works for 2 weeks, and now is the time in my chemo cycle when my white blood counts are taking a hit.  I took ibuprofen and Tylenol (and a claritin), and it didn't get too bad.  I will keep alternating the pills to stay ahead of the pain. 
We had Shonna's grad party on Sunday at our church.  My sister, Dee, and my friend, Heidi, did a TON of work for the party.  I had lots of other helpers too!  I was a little out of it, and had to sit a lot, but I'm very happy with how things turned out.  And glad its over with!  That was the last graduation for my hubby's family.  We have a few years to wait before the last one on my side!  Emma is going in to 6th grade, I think?
Well, I'm sure there was more I was going to write about, but can't think of what that might be.  I'm feeling good today, and hoping to have some more good days before round 2 on Monday.  There's so much to do!  I need to just accept that I won't be able to do much next week, and go with it.  Its when I try to fight it, and can't, that I start to feel depressed.  Cancer really sucks (I so hate that word, but nothing sounds as right).  I will try to remember to spend more time reading Psalms and reading my Bible verses that helped me so much last time.  Like I said before, I kept trying to fight the fatigue, instead of finding ways to make it through better.  Be warned, family!  I'll be taking to my room and doing what I have to, to get through this!  I know it sucks for them too.  I'm sure they're just as sick and tired of watching me be sick and tired, as I am feeling that way (did that make sense?).  But they are wonderful and strong and take good care of me!  Keep them in your prayers!
Love and blessings to you all!
Tina

Friday, July 10, 2009

Halfway There!

I've had 14 radiation treatments so far--14 to go!!
Last time I wrote I had talked to the doc about my tummy cramps, and was told to try kaopectate. I found out its the same ingredient as pepto bismol, but stronger. Its been working pretty well! Thank God! Tues. night the cramps got worse and I only got 2-3 hours sleep--and had to be at radiation at 9:45 to meet with the dietician. I was not very awake! I couldn't wait to get back home, but had to stop at 2 stores to find the kaopectate. Needless to say, I slept most of the afternoon. I've been taking the med. off and on since Wed. afternoon, and my tummy is MUCH better. I am being careful about what I eat, trying not to eat too much at one sitting, and keepin' it bland!
Every week when I see the radiation doc (Dr. B.) and his nurse, Donnie, they both ask if I have any mouth sores, and they ask if I'm having trouble with my hands and feet. Well, next Tuesday when I see them I'll be able to say yes to both! The mouth sores had started a little the last time I saw them, but it wasn't bad. They are getting worse each day. It is affecting my taste too, so nothing tastes very good. There is a mouth rinse they can give me that sort of numbs the mouth and stops the pain--but doesn't get rid of the sores. The inside of my mouth is rough feeling, feels like something is coating it, and feels like I ate something really hard and scratchy that tore it up. I do rinse with baking soda/water a couple of times a day. Not sure if it really helps, but everything I read says to do it and the doc told me to also.
As for the hands and feet, the tips of my fingers hurt a bit--its really hard to flip open my shampoo and body wash-- and the soles of my feet are getting very sore and tender. Walking is getting painful. I don't know if there is any "magic pill" for this side effect--from what I've read there doesn't seem to be. I guess I'll find out Tues.!
I was happy to hear that one of my blog friend's colonoscopy came back clear! She finished her treatment in Dec. (I think). I can't wait until I get to hear "all clear"! I think every cancer survivor lives with a little bit(or a lot!) of fear when it comes time to have these tests. I'm sure I'll be nervous! I think reading the blogs of those that have gone before me will help me navigate the "post-cancer" road. Just because the doc declares you cancer-free, doesn't mean your life is instantly normal! This is something that will affect me, my hubby, and my family for the rest of our lives. I'm glad that God is walking with me, and I hope I learn whatever it is he wants me too. He has a purpose and a plan for me! "in EVERYTHING (good, bad and ugly!) give thanks"!!
Love and blessings to you all!
Tina